The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome

Detalhes bibliográficos
Autor(a) principal: RONCA, Roberta Pasqualucci
Data de Publicação: 2023
Outros Autores: ROCHA, Marina Monzani, CAMPOS-POZZI, Denise, CYMROT, Raquel, BLASCOVI-ASSIS, Silvana Maria
Tipo de documento: Artigo
Idioma: eng
por
Título da fonte: Estudos de Psicologia (Campinas)
Texto Completo: https://periodicos.puc-campinas.edu.br/estpsi/article/view/10071
Resumo: ObjectiveThe objective of this study was to evaluate the influence of the presence of siblings with normal development on the burden and quality of life of parents of adolescents with Down syndrome.MethodsCross sectional and correlational study with 25 caregivers divided in two groups: parents who had only children with Down syndrome and parents with other children with normal development. The caregivers were selected from a convenient sample and answered the World Health Organization Quality of Life, Zarit Burden Interview and Brazil’s Economic Classification Criteria.ResultsIt was found that both groups experienced moderate burden and regular quality of life for most families, with no significant difference.ConclusionIt was concluded that the presence of siblings with normal development was not a factor influencing the burden and quality of life of parents of adolescents with Down syndrome.
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spelling The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndromeA influência de irmãos com desenvolvimento típico na sobrecarga e qualidade de vida de pais de adolescentes com síndrome de DownCaregiversDown syndromeFamilyFamily RelationsQuality of lifeCuidadoresSíndrome de DownFamíliaRelações FamiliaresQualidade de vidaObjectiveThe objective of this study was to evaluate the influence of the presence of siblings with normal development on the burden and quality of life of parents of adolescents with Down syndrome.MethodsCross sectional and correlational study with 25 caregivers divided in two groups: parents who had only children with Down syndrome and parents with other children with normal development. The caregivers were selected from a convenient sample and answered the World Health Organization Quality of Life, Zarit Burden Interview and Brazil’s Economic Classification Criteria.ResultsIt was found that both groups experienced moderate burden and regular quality of life for most families, with no significant difference.ConclusionIt was concluded that the presence of siblings with normal development was not a factor influencing the burden and quality of life of parents of adolescents with Down syndrome.ObjetivoO objetivo deste estudo foi avaliar a influência da presença de irmãos com desenvolvimento típico na sobrecarga e na qualidade de vida de pais de adolescentes com síndrome de Down.MétodosFoi realizado um estudo transversal e correlacional, com 25 cuidadores divididos em dois grupos: pais com filhos únicos com síndrome de Down e pais com outros filhos com desenvolvimento típico. Os cuidadores foram selecionados a partir de uma amostragem de conveniência e responderam ao World Health Organization Quality of Life, ao Zarit Burden Interview e ao Critério de Classificação Econômica Brasil.ResultadosVerificou-se que ambos os grupos apresentaram sobrecarga moderada e qualidade de vida regular para a maioria das famílias, não havendo diferença significativa.ConclusãoConclui-se que a presença de irmãos com desenvolvimento típico não foi fator de influência na sobrecarga e na qualidade de vida de pais de adolescentes com síndrome de Down.Núcleo de Editoração - PUC-Campinas2023-10-20info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdftext/xmlhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/10071Psychological Studies; Vol. 40 (2023): Estudos de Psicologia (Campinas)Estudos de Psicologia; Vol. 40 (2023): Estudos de Psicologia (Campinas)Estudos de Psicologia; v. 40 (2023): Estudos de Psicologia (Campinas)1982-0275reponame:Estudos de Psicologia (Campinas)instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)instacron:PUC_CAMPengporhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/10071/7435https://periodicos.puc-campinas.edu.br/estpsi/article/view/10071/7436Copyright (c) 2023 Roberta Pasqualucci RONCA, Marina Monzani ROCHA, Denise CAMPOS-POZZI, Raquel CYMROT, Silvana Maria BLASCOVI-ASSIShttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessRONCA, Roberta PasqualucciROCHA, Marina MonzaniCAMPOS-POZZI, DeniseCYMROT, RaquelBLASCOVI-ASSIS, Silvana Maria2024-04-23T10:36:29Zoai:ojs.periodicos.puc-campinas.edu.br:article/10071Revistahttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudosPRIhttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudos/oaisbi.ne_estpsi@puc-campinas.edu.br||estudosdepsicologia@puc-campinas.edu.br||psychologicalstudies@puc-campinas.edu.br1982-02750103-166Xopendoar:2024-04-23T10:36:29Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)false
dc.title.none.fl_str_mv The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome
A influência de irmãos com desenvolvimento típico na sobrecarga e qualidade de vida de pais de adolescentes com síndrome de Down
title The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome
spellingShingle The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome
RONCA, Roberta Pasqualucci
Caregivers
Down syndrome
Family
Family Relations
Quality of life
Cuidadores
Síndrome de Down
Família
Relações Familiares
Qualidade de vida
title_short The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome
title_full The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome
title_fullStr The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome
title_full_unstemmed The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome
title_sort The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome
author RONCA, Roberta Pasqualucci
author_facet RONCA, Roberta Pasqualucci
ROCHA, Marina Monzani
CAMPOS-POZZI, Denise
CYMROT, Raquel
BLASCOVI-ASSIS, Silvana Maria
author_role author
author2 ROCHA, Marina Monzani
CAMPOS-POZZI, Denise
CYMROT, Raquel
BLASCOVI-ASSIS, Silvana Maria
author2_role author
author
author
author
dc.contributor.author.fl_str_mv RONCA, Roberta Pasqualucci
ROCHA, Marina Monzani
CAMPOS-POZZI, Denise
CYMROT, Raquel
BLASCOVI-ASSIS, Silvana Maria
dc.subject.por.fl_str_mv Caregivers
Down syndrome
Family
Family Relations
Quality of life
Cuidadores
Síndrome de Down
Família
Relações Familiares
Qualidade de vida
topic Caregivers
Down syndrome
Family
Family Relations
Quality of life
Cuidadores
Síndrome de Down
Família
Relações Familiares
Qualidade de vida
description ObjectiveThe objective of this study was to evaluate the influence of the presence of siblings with normal development on the burden and quality of life of parents of adolescents with Down syndrome.MethodsCross sectional and correlational study with 25 caregivers divided in two groups: parents who had only children with Down syndrome and parents with other children with normal development. The caregivers were selected from a convenient sample and answered the World Health Organization Quality of Life, Zarit Burden Interview and Brazil’s Economic Classification Criteria.ResultsIt was found that both groups experienced moderate burden and regular quality of life for most families, with no significant difference.ConclusionIt was concluded that the presence of siblings with normal development was not a factor influencing the burden and quality of life of parents of adolescents with Down syndrome.
publishDate 2023
dc.date.none.fl_str_mv 2023-10-20
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
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dc.identifier.uri.fl_str_mv https://periodicos.puc-campinas.edu.br/estpsi/article/view/10071
url https://periodicos.puc-campinas.edu.br/estpsi/article/view/10071
dc.language.iso.fl_str_mv eng
por
language eng
por
dc.relation.none.fl_str_mv https://periodicos.puc-campinas.edu.br/estpsi/article/view/10071/7435
https://periodicos.puc-campinas.edu.br/estpsi/article/view/10071/7436
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
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dc.publisher.none.fl_str_mv Núcleo de Editoração - PUC-Campinas
publisher.none.fl_str_mv Núcleo de Editoração - PUC-Campinas
dc.source.none.fl_str_mv Psychological Studies; Vol. 40 (2023): Estudos de Psicologia (Campinas)
Estudos de Psicologia; Vol. 40 (2023): Estudos de Psicologia (Campinas)
Estudos de Psicologia; v. 40 (2023): Estudos de Psicologia (Campinas)
1982-0275
reponame:Estudos de Psicologia (Campinas)
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repository.name.fl_str_mv Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
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