Family Caregivers of Seniors with Alzheimer's Disease
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2017 |
| Outros Autores: | , , , , |
| Tipo de documento: | Artigo |
| Idioma: | por |
| Título da fonte: | Revista Kairós (Online) |
| Texto Completo: | https://revistas.pucsp.br/index.php/kairos/article/view/2176-901X.2017v20i1p409-426 |
Resumo: | This study aimed to investigate the perspective of family caregivers of older adults with probable / possible diagnosis of Alzheimer's disease: the initial reaction of the family before the probable / possible diagnosis of Alzheimer's disease; the main activities carried out with these elderly; sources of help in the care and the degree of satisfaction in relation thereto; the feelings experienced on the care task and the family dynamics after illness. The sample consisted of 17 family caregivers who relied on the help of the Association of Relatives and Friends of the Elderly (AFAI). Data were collected through a questionnaire with open and closed questions. The results showed that the initial reaction of the family was unfavorable against the probable / possible diagnosis of AD and with the progression of the disease, caregivers experienced unfavorable feelings about the care task and changes in family dynamics.Keywords: Alzheimer's disease; Caregiver; Family. |
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Family Caregivers of Seniors with Alzheimer's DiseaseCuidadores Familiares de Personas Mayores con Enfermedad de AlzheimerCuidadores Familiares de Idosos com a Doença de AlzheimerAlzheimer's diseaseCaregiverFamily.Doença de AlzheimerCuidadorFamília.Enfermedad de AlzheimerCuidadorFamilia.This study aimed to investigate the perspective of family caregivers of older adults with probable / possible diagnosis of Alzheimer's disease: the initial reaction of the family before the probable / possible diagnosis of Alzheimer's disease; the main activities carried out with these elderly; sources of help in the care and the degree of satisfaction in relation thereto; the feelings experienced on the care task and the family dynamics after illness. The sample consisted of 17 family caregivers who relied on the help of the Association of Relatives and Friends of the Elderly (AFAI). Data were collected through a questionnaire with open and closed questions. The results showed that the initial reaction of the family was unfavorable against the probable / possible diagnosis of AD and with the progression of the disease, caregivers experienced unfavorable feelings about the care task and changes in family dynamics.Keywords: Alzheimer's disease; Caregiver; Family.El objetivo de este estudio fue investigar la perspectiva de los cuidadores familiares de adultos mayores con diagnóstico probable / posible de la enfermedad de Alzheimer: la reacción inicial de la familia antes del probable / posible diagnóstico de la enfermedad de Alzheimer; Las principales actividades realizadas con estos ancianos; Las fuentes de ayuda en el cuidado y el grado de satisfacción en relación con el mismo; Los sentimientos experimentados en la tarea de cuidado y la dinámica familiar después de la enfermedad. La muestra consistió en 17 cuidadores familiares que confiaron en la ayuda de la Asociación de Familiares y Amigos de Ancianos (AFAI). Los datos fueron recogidos a través de un cuestionario con preguntas abiertas y cerradas. Los resultados mostraron que la reacción inicial de la familia fue desfavorable frente al diagnóstico probable / posible de la EA y con la progresión de la enfermedad, los cuidadores experimentaron sentimientos desfavorables sobre la tarea de cuidado y cambios en la dinámica familiar.Palabras clave: Enfermedad de Alzheimer; Cuidador; Familia. RESUMO: Este estudo teve como objetivo investigar na perspectiva de cuidadores familiares de idosos com provável/possível diagnóstico da doença de Alzheimer: a reação inicial da família diante do provável/possível diagnóstico da doença de Alzheimer; as principais atividades realizadas com estes idosos; as fontes de auxílio no cuidado e o grau de satisfação em relação a esse auxílio; os sentimentos vivenciados diante da tarefa de cuidar e a dinâmica familiar após a enfermidade. A amostra foi composta por 17 cuidadores familiares que contaram com o auxílio da Associação de Familiares e Amigos dos Idosos (AFAI). Os dados foram coletados por meio de um questionário com perguntas abertas e fechadas. Os resultados demonstraram que a reação inicial dos familiares foi desfavorável diante do provável/possível diagnóstico da DA e com a progressão da doença, os cuidadores vivenciaram sentimentos desfavoráveis diante da tarefa de cuidar, desencadeando mudanças na dinâmica familiar.Palavras-chave: Doença de Alzheimer; Cuidador; Família.Pontifícia Universidade Católica de São Paulo2017-03-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://revistas.pucsp.br/index.php/kairos/article/view/2176-901X.2017v20i1p409-42610.23925/2176-901X.2017v20i1p409-426Revista Kairós-Gerontologia; v. 20 n. 1 (2017); 409-4262176-901X1516-2567reponame:Revista Kairós (Online)instname:Pontifícia Universidade Católica de São Paulo (PUC-SP)instacron:PUC_SPporhttps://revistas.pucsp.br/index.php/kairos/article/view/2176-901X.2017v20i1p409-426/23093Copyright (c) 2017 Kairós. Revista da Faculdade de Ciências Humanas e Saúde. ISSN 2176-901Xinfo:eu-repo/semantics/openAccessGarcia, Camila RodriguesCipolli, Gabriela CabettSantos, Jéssica Pucci dosFreitas, Luca PasqualiBraz, Mayara CartoniFalcão, Deusivania Vieira da Silva2018-10-22T08:14:19Zoai:ojs.pkp.sfu.ca:article/33514Revistahttp://revistas.pucsp.br/index.php/kairosPRIhttps://revistas.pucsp.br/kairos/oaikairos@pucsp.br||flalodo@terra.com.br|| contato@openjournalsolutions.com.br2176-901X1516-2567opendoar:2018-10-22T08:14:19Revista Kairós (Online) - Pontifícia Universidade Católica de São Paulo (PUC-SP)false |
| dc.title.none.fl_str_mv |
Family Caregivers of Seniors with Alzheimer's Disease Cuidadores Familiares de Personas Mayores con Enfermedad de Alzheimer Cuidadores Familiares de Idosos com a Doença de Alzheimer |
| title |
Family Caregivers of Seniors with Alzheimer's Disease |
| spellingShingle |
Family Caregivers of Seniors with Alzheimer's Disease Garcia, Camila Rodrigues Alzheimer's disease Caregiver Family. Doença de Alzheimer Cuidador Família. Enfermedad de Alzheimer Cuidador Familia. |
| title_short |
Family Caregivers of Seniors with Alzheimer's Disease |
| title_full |
Family Caregivers of Seniors with Alzheimer's Disease |
| title_fullStr |
Family Caregivers of Seniors with Alzheimer's Disease |
| title_full_unstemmed |
Family Caregivers of Seniors with Alzheimer's Disease |
| title_sort |
Family Caregivers of Seniors with Alzheimer's Disease |
| author |
Garcia, Camila Rodrigues |
| author_facet |
Garcia, Camila Rodrigues Cipolli, Gabriela Cabett Santos, Jéssica Pucci dos Freitas, Luca Pasquali Braz, Mayara Cartoni Falcão, Deusivania Vieira da Silva |
| author_role |
author |
| author2 |
Cipolli, Gabriela Cabett Santos, Jéssica Pucci dos Freitas, Luca Pasquali Braz, Mayara Cartoni Falcão, Deusivania Vieira da Silva |
| author2_role |
author author author author author |
| dc.contributor.author.fl_str_mv |
Garcia, Camila Rodrigues Cipolli, Gabriela Cabett Santos, Jéssica Pucci dos Freitas, Luca Pasquali Braz, Mayara Cartoni Falcão, Deusivania Vieira da Silva |
| dc.subject.por.fl_str_mv |
Alzheimer's disease Caregiver Family. Doença de Alzheimer Cuidador Família. Enfermedad de Alzheimer Cuidador Familia. |
| topic |
Alzheimer's disease Caregiver Family. Doença de Alzheimer Cuidador Família. Enfermedad de Alzheimer Cuidador Familia. |
| description |
This study aimed to investigate the perspective of family caregivers of older adults with probable / possible diagnosis of Alzheimer's disease: the initial reaction of the family before the probable / possible diagnosis of Alzheimer's disease; the main activities carried out with these elderly; sources of help in the care and the degree of satisfaction in relation thereto; the feelings experienced on the care task and the family dynamics after illness. The sample consisted of 17 family caregivers who relied on the help of the Association of Relatives and Friends of the Elderly (AFAI). Data were collected through a questionnaire with open and closed questions. The results showed that the initial reaction of the family was unfavorable against the probable / possible diagnosis of AD and with the progression of the disease, caregivers experienced unfavorable feelings about the care task and changes in family dynamics.Keywords: Alzheimer's disease; Caregiver; Family. |
| publishDate |
2017 |
| dc.date.none.fl_str_mv |
2017-03-30 |
| dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
| format |
article |
| status_str |
publishedVersion |
| dc.identifier.uri.fl_str_mv |
https://revistas.pucsp.br/index.php/kairos/article/view/2176-901X.2017v20i1p409-426 10.23925/2176-901X.2017v20i1p409-426 |
| url |
https://revistas.pucsp.br/index.php/kairos/article/view/2176-901X.2017v20i1p409-426 |
| identifier_str_mv |
10.23925/2176-901X.2017v20i1p409-426 |
| dc.language.iso.fl_str_mv |
por |
| language |
por |
| dc.relation.none.fl_str_mv |
https://revistas.pucsp.br/index.php/kairos/article/view/2176-901X.2017v20i1p409-426/23093 |
| dc.rights.driver.fl_str_mv |
Copyright (c) 2017 Kairós. Revista da Faculdade de Ciências Humanas e Saúde. ISSN 2176-901X info:eu-repo/semantics/openAccess |
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Copyright (c) 2017 Kairós. Revista da Faculdade de Ciências Humanas e Saúde. ISSN 2176-901X |
| eu_rights_str_mv |
openAccess |
| dc.format.none.fl_str_mv |
application/pdf |
| dc.publisher.none.fl_str_mv |
Pontifícia Universidade Católica de São Paulo |
| publisher.none.fl_str_mv |
Pontifícia Universidade Católica de São Paulo |
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Revista Kairós-Gerontologia; v. 20 n. 1 (2017); 409-426 2176-901X 1516-2567 reponame:Revista Kairós (Online) instname:Pontifícia Universidade Católica de São Paulo (PUC-SP) instacron:PUC_SP |
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Pontifícia Universidade Católica de São Paulo (PUC-SP) |
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PUC_SP |
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PUC_SP |
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Revista Kairós (Online) |
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Revista Kairós (Online) |
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Revista Kairós (Online) - Pontifícia Universidade Católica de São Paulo (PUC-SP) |
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kairos@pucsp.br||flalodo@terra.com.br|| contato@openjournalsolutions.com.br |
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1799128692402683904 |