Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal
Autor(a) principal: | |
---|---|
Data de Publicação: | 2021 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10451/47068 |
Resumo: | Little has been said about the disruptive impact that the inability to eat and to participate in mealtimes has for patients with a life-threatening illness and their families. The aim of the current study is to overcome this gap and shed light on how food and eating practices are experienced by families at the end-of-life. An ethnographic research was developed in two Portuguese palliative care units: participant observation was conducted during 10 months and in-depth interviews were carried out with 10 patients with a life-threatening illness, 20 family members and 20 palliative care professionals. Food is not only a matter of nutrition in a biological sense, but also an act of giving care to patients with a life-threatening illness. The findings suggest that food and eating practices affect the processes of relationality and of doing family at the end-of-life in Portugal. Attention is particularly paid to gender differences. The study supports recent sociological research which understands the dying process as a relational experience and intends to develop sociological knowledge on the materialities of care. |
id |
RCAP_07268f757466220e0ca6120835561022 |
---|---|
oai_identifier_str |
oai:repositorio.ul.pt:10451/47068 |
network_acronym_str |
RCAP |
network_name_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository_id_str |
7160 |
spelling |
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugaleating practicesend-of-lifeethnographyfamilyfoodpatientsLittle has been said about the disruptive impact that the inability to eat and to participate in mealtimes has for patients with a life-threatening illness and their families. The aim of the current study is to overcome this gap and shed light on how food and eating practices are experienced by families at the end-of-life. An ethnographic research was developed in two Portuguese palliative care units: participant observation was conducted during 10 months and in-depth interviews were carried out with 10 patients with a life-threatening illness, 20 family members and 20 palliative care professionals. Food is not only a matter of nutrition in a biological sense, but also an act of giving care to patients with a life-threatening illness. The findings suggest that food and eating practices affect the processes of relationality and of doing family at the end-of-life in Portugal. Attention is particularly paid to gender differences. The study supports recent sociological research which understands the dying process as a relational experience and intends to develop sociological knowledge on the materialities of care.WileyRepositório da Universidade de LisboaHilario, Ana PatriciaAugusto, Fábio Rafael2021-03-25T15:14:11Z2021-02-112021-02-11T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/47068engHilário, A. P., Augusto, F. R. (2021). Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal. Health and Social Care in the Community, 29(6): e232-e239. DOI 10.1111/hsc.133451365-252410.1111/hsc.13345metadata only accessinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:49:18Zoai:repositorio.ul.pt:10451/47068Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:58:53.912553Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal |
title |
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal |
spellingShingle |
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal Hilario, Ana Patricia eating practices end-of-life ethnography family food patients |
title_short |
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal |
title_full |
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal |
title_fullStr |
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal |
title_full_unstemmed |
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal |
title_sort |
Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal |
author |
Hilario, Ana Patricia |
author_facet |
Hilario, Ana Patricia Augusto, Fábio Rafael |
author_role |
author |
author2 |
Augusto, Fábio Rafael |
author2_role |
author |
dc.contributor.none.fl_str_mv |
Repositório da Universidade de Lisboa |
dc.contributor.author.fl_str_mv |
Hilario, Ana Patricia Augusto, Fábio Rafael |
dc.subject.por.fl_str_mv |
eating practices end-of-life ethnography family food patients |
topic |
eating practices end-of-life ethnography family food patients |
description |
Little has been said about the disruptive impact that the inability to eat and to participate in mealtimes has for patients with a life-threatening illness and their families. The aim of the current study is to overcome this gap and shed light on how food and eating practices are experienced by families at the end-of-life. An ethnographic research was developed in two Portuguese palliative care units: participant observation was conducted during 10 months and in-depth interviews were carried out with 10 patients with a life-threatening illness, 20 family members and 20 palliative care professionals. Food is not only a matter of nutrition in a biological sense, but also an act of giving care to patients with a life-threatening illness. The findings suggest that food and eating practices affect the processes of relationality and of doing family at the end-of-life in Portugal. Attention is particularly paid to gender differences. The study supports recent sociological research which understands the dying process as a relational experience and intends to develop sociological knowledge on the materialities of care. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-03-25T15:14:11Z 2021-02-11 2021-02-11T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10451/47068 |
url |
http://hdl.handle.net/10451/47068 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Hilário, A. P., Augusto, F. R. (2021). Feeding the family at the end‐of‐life: An ethnographic study on the role of food and eating practices for families facing death in Portugal. Health and Social Care in the Community, 29(6): e232-e239. DOI 10.1111/hsc.13345 1365-2524 10.1111/hsc.13345 |
dc.rights.driver.fl_str_mv |
metadata only access info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
metadata only access |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Wiley |
publisher.none.fl_str_mv |
Wiley |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
|
_version_ |
1799134534880460800 |