Families’ situation of caring for a child with a chronic condition: a mixed methods study

Detalhes bibliográficos
Autor(a) principal: Macêdo, Maísa Mara Lopes
Data de Publicação: 2024
Outros Autores: Felizardo, Melissa Joice de Abreu, Henriques, Nayara Luiza, Deodato, Sérgio, Duarte, Elysângela Dittz
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.14/44310
Resumo: Objective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component “Definition of the Situation”. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis. Results: Family members reported a view of normality in relation to CCC, also verified by the Child’s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child’s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales. Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child.
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spelling Families’ situation of caring for a child with a chronic condition: a mixed methods studySituação de cuidar de uma criança com condição crônica pelas famílias: estudo de métodos mistosFamily nursingPediatric nursingFamilyChild careChronic diseaseObjective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component “Definition of the Situation”. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis. Results: Family members reported a view of normality in relation to CCC, also verified by the Child’s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child’s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales. Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child.Veritati - Repositório Institucional da Universidade Católica PortuguesaMacêdo, Maísa Mara LopesFelizardo, Melissa Joice de AbreuHenriques, Nayara LuizaDeodato, SérgioDuarte, Elysângela Dittz2024-03-19T09:12:30Z20242024-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfapplication/pdfhttp://hdl.handle.net/10400.14/44310eng0080-623410.1590/1980-220x-reeusp-2023-0304en8518778552838466905001184071100001info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-09-06T12:46:11Zoai:repositorio.ucp.pt:10400.14/44310Portal AgregadorONGhttps://www.rcaap.pt/oai/openairemluisa.alvim@gmail.comopendoar:71602024-09-06T12:46:11Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Families’ situation of caring for a child with a chronic condition: a mixed methods study
Situação de cuidar de uma criança com condição crônica pelas famílias: estudo de métodos mistos
title Families’ situation of caring for a child with a chronic condition: a mixed methods study
spellingShingle Families’ situation of caring for a child with a chronic condition: a mixed methods study
Macêdo, Maísa Mara Lopes
Family nursing
Pediatric nursing
Family
Child care
Chronic disease
title_short Families’ situation of caring for a child with a chronic condition: a mixed methods study
title_full Families’ situation of caring for a child with a chronic condition: a mixed methods study
title_fullStr Families’ situation of caring for a child with a chronic condition: a mixed methods study
title_full_unstemmed Families’ situation of caring for a child with a chronic condition: a mixed methods study
title_sort Families’ situation of caring for a child with a chronic condition: a mixed methods study
author Macêdo, Maísa Mara Lopes
author_facet Macêdo, Maísa Mara Lopes
Felizardo, Melissa Joice de Abreu
Henriques, Nayara Luiza
Deodato, Sérgio
Duarte, Elysângela Dittz
author_role author
author2 Felizardo, Melissa Joice de Abreu
Henriques, Nayara Luiza
Deodato, Sérgio
Duarte, Elysângela Dittz
author2_role author
author
author
author
dc.contributor.none.fl_str_mv Veritati - Repositório Institucional da Universidade Católica Portuguesa
dc.contributor.author.fl_str_mv Macêdo, Maísa Mara Lopes
Felizardo, Melissa Joice de Abreu
Henriques, Nayara Luiza
Deodato, Sérgio
Duarte, Elysângela Dittz
dc.subject.por.fl_str_mv Family nursing
Pediatric nursing
Family
Child care
Chronic disease
topic Family nursing
Pediatric nursing
Family
Child care
Chronic disease
description Objective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component “Definition of the Situation”. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis. Results: Family members reported a view of normality in relation to CCC, also verified by the Child’s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child’s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales. Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child.
publishDate 2024
dc.date.none.fl_str_mv 2024-03-19T09:12:30Z
2024
2024-01-01T00:00:00Z
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dc.language.iso.fl_str_mv eng
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10.1590/1980-220x-reeusp-2023-0304en
85187785528
38466905
001184071100001
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reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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