Families’ situation of caring for a child with a chronic condition: a mixed methods study
Autor(a) principal: | |
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Data de Publicação: | 2024 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.14/44310 |
Resumo: | Objective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component “Definition of the Situation”. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis. Results: Family members reported a view of normality in relation to CCC, also verified by the Child’s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child’s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales. Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child. |
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Families’ situation of caring for a child with a chronic condition: a mixed methods studySituação de cuidar de uma criança com condição crônica pelas famílias: estudo de métodos mistosFamily nursingPediatric nursingFamilyChild careChronic diseaseObjective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component “Definition of the Situation”. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis. Results: Family members reported a view of normality in relation to CCC, also verified by the Child’s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child’s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales. Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child.Veritati - Repositório Institucional da Universidade Católica PortuguesaMacêdo, Maísa Mara LopesFelizardo, Melissa Joice de AbreuHenriques, Nayara LuizaDeodato, SérgioDuarte, Elysângela Dittz2024-03-19T09:12:30Z20242024-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfapplication/pdfhttp://hdl.handle.net/10400.14/44310eng0080-623410.1590/1980-220x-reeusp-2023-0304en8518778552838466905001184071100001info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-09-06T12:46:11Zoai:repositorio.ucp.pt:10400.14/44310Portal AgregadorONGhttps://www.rcaap.pt/oai/openairemluisa.alvim@gmail.comopendoar:71602024-09-06T12:46:11Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Families’ situation of caring for a child with a chronic condition: a mixed methods study Situação de cuidar de uma criança com condição crônica pelas famílias: estudo de métodos mistos |
title |
Families’ situation of caring for a child with a chronic condition: a mixed methods study |
spellingShingle |
Families’ situation of caring for a child with a chronic condition: a mixed methods study Macêdo, Maísa Mara Lopes Family nursing Pediatric nursing Family Child care Chronic disease |
title_short |
Families’ situation of caring for a child with a chronic condition: a mixed methods study |
title_full |
Families’ situation of caring for a child with a chronic condition: a mixed methods study |
title_fullStr |
Families’ situation of caring for a child with a chronic condition: a mixed methods study |
title_full_unstemmed |
Families’ situation of caring for a child with a chronic condition: a mixed methods study |
title_sort |
Families’ situation of caring for a child with a chronic condition: a mixed methods study |
author |
Macêdo, Maísa Mara Lopes |
author_facet |
Macêdo, Maísa Mara Lopes Felizardo, Melissa Joice de Abreu Henriques, Nayara Luiza Deodato, Sérgio Duarte, Elysângela Dittz |
author_role |
author |
author2 |
Felizardo, Melissa Joice de Abreu Henriques, Nayara Luiza Deodato, Sérgio Duarte, Elysângela Dittz |
author2_role |
author author author author |
dc.contributor.none.fl_str_mv |
Veritati - Repositório Institucional da Universidade Católica Portuguesa |
dc.contributor.author.fl_str_mv |
Macêdo, Maísa Mara Lopes Felizardo, Melissa Joice de Abreu Henriques, Nayara Luiza Deodato, Sérgio Duarte, Elysângela Dittz |
dc.subject.por.fl_str_mv |
Family nursing Pediatric nursing Family Child care Chronic disease |
topic |
Family nursing Pediatric nursing Family Child care Chronic disease |
description |
Objective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component “Definition of the Situation”. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis. Results: Family members reported a view of normality in relation to CCC, also verified by the Child’s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child’s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales. Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child. |
publishDate |
2024 |
dc.date.none.fl_str_mv |
2024-03-19T09:12:30Z 2024 2024-01-01T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.14/44310 |
url |
http://hdl.handle.net/10400.14/44310 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
0080-6234 10.1590/1980-220x-reeusp-2023-0304en 85187785528 38466905 001184071100001 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
mluisa.alvim@gmail.com |
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1817547118321074176 |