"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease

Detalhes bibliográficos
Autor(a) principal: Lima, Lígia
Data de Publicação: 2013
Outros Autores: Serra de Lemos, Marina
Tipo de documento: Artigo
Idioma: por
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: https://doi.org/10.31877/on.2013.24.04
Resumo: This study is part of a wider research project on children’s conceptions of health and disease aimed to investigate if the experience of having different chronic diseases has an influence on children’s conceptualizations about these phenomena. Accordingly the conceptions of health and disease were analyzed in children with different types of chronic disease, specifically cancer, asthma and diabetes, assuming that these diseases and their treatments involve distinct experiences. Participants were 79 children aged 6 to 13 years diagnosed with chronic disease and who were followed at three health institutions in the North of Portugal. Thirty children had asthma, 23 diabetes and 26 malignant diseases. Children’s conceptions of health and illness were collected using the method of “Draw and write” (Williams, Wetton & Moon, 1989) and data was analyzed through content analysis using a system by Boruchovitch and Mednick (1997, 2002), adapted by Lima and Lemos (2008) and previously validated (inter-observer agreement -93%). Findings revealed statistically significant differences in some aspects of the conceptions of health and illness depending on the type of pathology. The results of this study suggest that the experience of having a serious disease like cancer has a strong influence on children’s conceptions about health and illness, which can be used to guide support services to children with oncological disease.
id RCAP_2c1cdcafe894c8c292e84911c1a5c0a5
oai_identifier_str oai:oai.onco.news:article/160
network_acronym_str RCAP
network_name_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository_id_str 7160
spelling "Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease“Saúde é poder fazer as coisas normais” – especificidades das conceções infantis de saúde e doença em crianças com doença oncológicaconceções infantis de saúde e doençadoença crónicadoença oncológicachildren’s conceptions of health and illnesschronic diseasemalignant diseaseThis study is part of a wider research project on children’s conceptions of health and disease aimed to investigate if the experience of having different chronic diseases has an influence on children’s conceptualizations about these phenomena. Accordingly the conceptions of health and disease were analyzed in children with different types of chronic disease, specifically cancer, asthma and diabetes, assuming that these diseases and their treatments involve distinct experiences. Participants were 79 children aged 6 to 13 years diagnosed with chronic disease and who were followed at three health institutions in the North of Portugal. Thirty children had asthma, 23 diabetes and 26 malignant diseases. Children’s conceptions of health and illness were collected using the method of “Draw and write” (Williams, Wetton & Moon, 1989) and data was analyzed through content analysis using a system by Boruchovitch and Mednick (1997, 2002), adapted by Lima and Lemos (2008) and previously validated (inter-observer agreement -93%). Findings revealed statistically significant differences in some aspects of the conceptions of health and illness depending on the type of pathology. The results of this study suggest that the experience of having a serious disease like cancer has a strong influence on children’s conceptions about health and illness, which can be used to guide support services to children with oncological disease.Este estudo insere-se num projeto mais abrangente sobre conceções infantis de saúde e doença que tem como finalidade analisar em que medida a experiência de doença tem influência nas conceptualizações das crianças acerca destes fenómenos. Nesse sentido foram analisadas as conceções de saúde e doença de crianças com diferentes tipos de patologia crónica, mais concretamente doença oncológica, asma e diabetes, assumindo que estas doenças e seus tratamentos envolvem vivências diferentes e específicas.Os participantes foram 79 crianças com idades entre os 6 e os 13 anos diagnosticadas com doença crónica e que eram seguidos em 3 instituições de saúde do Norte do país. Do total de crianças, 30 sofriam de asma, 23 de diabetes e 26 de doença oncológica. As conceções de saúde e doença foram recolhidas com recurso ao método de “Desenhar e escrever” (Williams, Wetton & Moon, 1989). Para a codificação dos textos das crianças, utilizou-se o sistema de Boruchovitch e Mednick (1997, 2002), adaptado por Lima e Lemos (2008) e previamente validade através da obtenção de acordo inter-observadores (93%). Encontraram-se diferenças estatisticamente significativas em alguns aspetos das conceções de saúde e doença em função do tipo de patologia analisado. Os resultados deste estudo sugerem que a experiência de ter uma doença grave como o cancro tem uma forte influência nas representações conceções da criança acerca da saúde e doença, o que poderá ser usado para orientar serviços de apoio às crianças com doença oncológica.AEOP – Associação de Enfermagem Oncológica Portuguesa2013-07-10info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.31877/on.2013.24.04https://doi.org/10.31877/on.2013.24.04Onco.news; No. 24 (2013): Onco.News Journal; 39-45Onco.News; N.º 24 (2013): Revista Onco.News; 39-452183-69141646-7868reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporhttps://onco.news/index.php/journal/article/view/160https://onco.news/index.php/journal/article/view/160/167Lima, LígiaSerra de Lemos, Marinainfo:eu-repo/semantics/openAccess2024-03-16T07:55:24Zoai:oai.onco.news:article/160Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T04:01:24.090800Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv "Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
“Saúde é poder fazer as coisas normais” – especificidades das conceções infantis de saúde e doença em crianças com doença oncológica
title "Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
spellingShingle "Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
Lima, Lígia
conceções infantis de saúde e doença
doença crónica
doença oncológica
children’s conceptions of health and illness
chronic disease
malignant disease
title_short "Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
title_full "Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
title_fullStr "Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
title_full_unstemmed "Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
title_sort "Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
author Lima, Lígia
author_facet Lima, Lígia
Serra de Lemos, Marina
author_role author
author2 Serra de Lemos, Marina
author2_role author
dc.contributor.author.fl_str_mv Lima, Lígia
Serra de Lemos, Marina
dc.subject.por.fl_str_mv conceções infantis de saúde e doença
doença crónica
doença oncológica
children’s conceptions of health and illness
chronic disease
malignant disease
topic conceções infantis de saúde e doença
doença crónica
doença oncológica
children’s conceptions of health and illness
chronic disease
malignant disease
description This study is part of a wider research project on children’s conceptions of health and disease aimed to investigate if the experience of having different chronic diseases has an influence on children’s conceptualizations about these phenomena. Accordingly the conceptions of health and disease were analyzed in children with different types of chronic disease, specifically cancer, asthma and diabetes, assuming that these diseases and their treatments involve distinct experiences. Participants were 79 children aged 6 to 13 years diagnosed with chronic disease and who were followed at three health institutions in the North of Portugal. Thirty children had asthma, 23 diabetes and 26 malignant diseases. Children’s conceptions of health and illness were collected using the method of “Draw and write” (Williams, Wetton & Moon, 1989) and data was analyzed through content analysis using a system by Boruchovitch and Mednick (1997, 2002), adapted by Lima and Lemos (2008) and previously validated (inter-observer agreement -93%). Findings revealed statistically significant differences in some aspects of the conceptions of health and illness depending on the type of pathology. The results of this study suggest that the experience of having a serious disease like cancer has a strong influence on children’s conceptions about health and illness, which can be used to guide support services to children with oncological disease.
publishDate 2013
dc.date.none.fl_str_mv 2013-07-10
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://doi.org/10.31877/on.2013.24.04
https://doi.org/10.31877/on.2013.24.04
url https://doi.org/10.31877/on.2013.24.04
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://onco.news/index.php/journal/article/view/160
https://onco.news/index.php/journal/article/view/160/167
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv AEOP – Associação de Enfermagem Oncológica Portuguesa
publisher.none.fl_str_mv AEOP – Associação de Enfermagem Oncológica Portuguesa
dc.source.none.fl_str_mv Onco.news; No. 24 (2013): Onco.News Journal; 39-45
Onco.News; N.º 24 (2013): Revista Onco.News; 39-45
2183-6914
1646-7868
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
_version_ 1799138187666259968