"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease
Autor(a) principal: | |
---|---|
Data de Publicação: | 2013 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://doi.org/10.31877/on.2013.24.04 |
Resumo: | This study is part of a wider research project on children’s conceptions of health and disease aimed to investigate if the experience of having different chronic diseases has an influence on children’s conceptualizations about these phenomena. Accordingly the conceptions of health and disease were analyzed in children with different types of chronic disease, specifically cancer, asthma and diabetes, assuming that these diseases and their treatments involve distinct experiences. Participants were 79 children aged 6 to 13 years diagnosed with chronic disease and who were followed at three health institutions in the North of Portugal. Thirty children had asthma, 23 diabetes and 26 malignant diseases. Children’s conceptions of health and illness were collected using the method of “Draw and write” (Williams, Wetton & Moon, 1989) and data was analyzed through content analysis using a system by Boruchovitch and Mednick (1997, 2002), adapted by Lima and Lemos (2008) and previously validated (inter-observer agreement -93%). Findings revealed statistically significant differences in some aspects of the conceptions of health and illness depending on the type of pathology. The results of this study suggest that the experience of having a serious disease like cancer has a strong influence on children’s conceptions about health and illness, which can be used to guide support services to children with oncological disease. |
id |
RCAP_2c1cdcafe894c8c292e84911c1a5c0a5 |
---|---|
oai_identifier_str |
oai:oai.onco.news:article/160 |
network_acronym_str |
RCAP |
network_name_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository_id_str |
7160 |
spelling |
"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease“Saúde é poder fazer as coisas normais” – especificidades das conceções infantis de saúde e doença em crianças com doença oncológicaconceções infantis de saúde e doençadoença crónicadoença oncológicachildren’s conceptions of health and illnesschronic diseasemalignant diseaseThis study is part of a wider research project on children’s conceptions of health and disease aimed to investigate if the experience of having different chronic diseases has an influence on children’s conceptualizations about these phenomena. Accordingly the conceptions of health and disease were analyzed in children with different types of chronic disease, specifically cancer, asthma and diabetes, assuming that these diseases and their treatments involve distinct experiences. Participants were 79 children aged 6 to 13 years diagnosed with chronic disease and who were followed at three health institutions in the North of Portugal. Thirty children had asthma, 23 diabetes and 26 malignant diseases. Children’s conceptions of health and illness were collected using the method of “Draw and write” (Williams, Wetton & Moon, 1989) and data was analyzed through content analysis using a system by Boruchovitch and Mednick (1997, 2002), adapted by Lima and Lemos (2008) and previously validated (inter-observer agreement -93%). Findings revealed statistically significant differences in some aspects of the conceptions of health and illness depending on the type of pathology. The results of this study suggest that the experience of having a serious disease like cancer has a strong influence on children’s conceptions about health and illness, which can be used to guide support services to children with oncological disease.Este estudo insere-se num projeto mais abrangente sobre conceções infantis de saúde e doença que tem como finalidade analisar em que medida a experiência de doença tem influência nas conceptualizações das crianças acerca destes fenómenos. Nesse sentido foram analisadas as conceções de saúde e doença de crianças com diferentes tipos de patologia crónica, mais concretamente doença oncológica, asma e diabetes, assumindo que estas doenças e seus tratamentos envolvem vivências diferentes e específicas.Os participantes foram 79 crianças com idades entre os 6 e os 13 anos diagnosticadas com doença crónica e que eram seguidos em 3 instituições de saúde do Norte do país. Do total de crianças, 30 sofriam de asma, 23 de diabetes e 26 de doença oncológica. As conceções de saúde e doença foram recolhidas com recurso ao método de “Desenhar e escrever” (Williams, Wetton & Moon, 1989). Para a codificação dos textos das crianças, utilizou-se o sistema de Boruchovitch e Mednick (1997, 2002), adaptado por Lima e Lemos (2008) e previamente validade através da obtenção de acordo inter-observadores (93%). Encontraram-se diferenças estatisticamente significativas em alguns aspetos das conceções de saúde e doença em função do tipo de patologia analisado. Os resultados deste estudo sugerem que a experiência de ter uma doença grave como o cancro tem uma forte influência nas representações conceções da criança acerca da saúde e doença, o que poderá ser usado para orientar serviços de apoio às crianças com doença oncológica.AEOP – Associação de Enfermagem Oncológica Portuguesa2013-07-10info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.31877/on.2013.24.04https://doi.org/10.31877/on.2013.24.04Onco.news; No. 24 (2013): Onco.News Journal; 39-45Onco.News; N.º 24 (2013): Revista Onco.News; 39-452183-69141646-7868reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporhttps://onco.news/index.php/journal/article/view/160https://onco.news/index.php/journal/article/view/160/167Lima, LígiaSerra de Lemos, Marinainfo:eu-repo/semantics/openAccess2024-03-16T07:55:24Zoai:oai.onco.news:article/160Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T04:01:24.090800Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease “Saúde é poder fazer as coisas normais” – especificidades das conceções infantis de saúde e doença em crianças com doença oncológica |
title |
"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease |
spellingShingle |
"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease Lima, Lígia conceções infantis de saúde e doença doença crónica doença oncológica children’s conceptions of health and illness chronic disease malignant disease |
title_short |
"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease |
title_full |
"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease |
title_fullStr |
"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease |
title_full_unstemmed |
"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease |
title_sort |
"Health is being able to do normal things" - specificities of children's conceptions of health and illness in children with cancer disease |
author |
Lima, Lígia |
author_facet |
Lima, Lígia Serra de Lemos, Marina |
author_role |
author |
author2 |
Serra de Lemos, Marina |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Lima, Lígia Serra de Lemos, Marina |
dc.subject.por.fl_str_mv |
conceções infantis de saúde e doença doença crónica doença oncológica children’s conceptions of health and illness chronic disease malignant disease |
topic |
conceções infantis de saúde e doença doença crónica doença oncológica children’s conceptions of health and illness chronic disease malignant disease |
description |
This study is part of a wider research project on children’s conceptions of health and disease aimed to investigate if the experience of having different chronic diseases has an influence on children’s conceptualizations about these phenomena. Accordingly the conceptions of health and disease were analyzed in children with different types of chronic disease, specifically cancer, asthma and diabetes, assuming that these diseases and their treatments involve distinct experiences. Participants were 79 children aged 6 to 13 years diagnosed with chronic disease and who were followed at three health institutions in the North of Portugal. Thirty children had asthma, 23 diabetes and 26 malignant diseases. Children’s conceptions of health and illness were collected using the method of “Draw and write” (Williams, Wetton & Moon, 1989) and data was analyzed through content analysis using a system by Boruchovitch and Mednick (1997, 2002), adapted by Lima and Lemos (2008) and previously validated (inter-observer agreement -93%). Findings revealed statistically significant differences in some aspects of the conceptions of health and illness depending on the type of pathology. The results of this study suggest that the experience of having a serious disease like cancer has a strong influence on children’s conceptions about health and illness, which can be used to guide support services to children with oncological disease. |
publishDate |
2013 |
dc.date.none.fl_str_mv |
2013-07-10 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://doi.org/10.31877/on.2013.24.04 https://doi.org/10.31877/on.2013.24.04 |
url |
https://doi.org/10.31877/on.2013.24.04 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://onco.news/index.php/journal/article/view/160 https://onco.news/index.php/journal/article/view/160/167 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
AEOP – Associação de Enfermagem Oncológica Portuguesa |
publisher.none.fl_str_mv |
AEOP – Associação de Enfermagem Oncológica Portuguesa |
dc.source.none.fl_str_mv |
Onco.news; No. 24 (2013): Onco.News Journal; 39-45 Onco.News; N.º 24 (2013): Revista Onco.News; 39-45 2183-6914 1646-7868 reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
|
_version_ |
1799138187666259968 |