Do parents of children with cancer want to participate in treatment decision-making?
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10437/12468 |
Resumo: | Purpose: This study aimed to describe parents’ preferences regarding their role in treatment decision-making when a child has cancer and examines whether their preferences were related to the parents (sex and education level), patients’ characteristics (age group and treatment status), and healthcare context features (parents’ perception of family-centered care). Methods: Two-hundred and twenty-eight parents of children/adolescents with cancer were recruited from two Portuguese pediatric oncology wards. Participants provided sociodemographic and clinical information. The Control Preferences Scale for Pediatrics was used to assess the parents’ preferred role in treatment decision-making. The Measure of Process of Care assessed the parents’ perception of family-centered care (family-centered services and providing general information subscales). Results: Results showed that parents preferred a passive-collaborative role (44.8%), followed by collaborative (27.8%), passive (20.9%) and active-collaborative (6.5%). None preferred an active role. Chi-square test showed that most of the parents preferring an active-collaborative role had higher education degrees, while those preferring a passive role had lower education degrees. Additionally, groups did not differ according to the parents’ sex, patients’ age and treatment status. A multivariate analysis of variance showed that parents preferring an active-collaborative role reported lower scores on family-centered services compared to those preferring passive-collaborative and passive roles. Finally, no differences were found concerning providing general information scores. Conclusions: This study’s findings may guide professionals in identifying parents’ preferences regarding their participation in treatment decision-making process. Mapping their preferences may support professionals in promoting desirable levels of parental involvement when decisions are necessary in pediatric oncology context. |
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Do parents of children with cancer want to participate in treatment decision-making?PSICOLOGIAPEDIATRIAONCOLOGIACANCROTOMADA DE DECISÃOTRATAMENTOS MÉDICOSFAMÍLIAPAISPSYCHOLOGYPAEDIATRICSONCOLOGYCANCERDECISION MAKINGMEDICAL TREATMENTSFAMILYPARENTSPurpose: This study aimed to describe parents’ preferences regarding their role in treatment decision-making when a child has cancer and examines whether their preferences were related to the parents (sex and education level), patients’ characteristics (age group and treatment status), and healthcare context features (parents’ perception of family-centered care). Methods: Two-hundred and twenty-eight parents of children/adolescents with cancer were recruited from two Portuguese pediatric oncology wards. Participants provided sociodemographic and clinical information. The Control Preferences Scale for Pediatrics was used to assess the parents’ preferred role in treatment decision-making. The Measure of Process of Care assessed the parents’ perception of family-centered care (family-centered services and providing general information subscales). Results: Results showed that parents preferred a passive-collaborative role (44.8%), followed by collaborative (27.8%), passive (20.9%) and active-collaborative (6.5%). None preferred an active role. Chi-square test showed that most of the parents preferring an active-collaborative role had higher education degrees, while those preferring a passive role had lower education degrees. Additionally, groups did not differ according to the parents’ sex, patients’ age and treatment status. A multivariate analysis of variance showed that parents preferring an active-collaborative role reported lower scores on family-centered services compared to those preferring passive-collaborative and passive roles. Finally, no differences were found concerning providing general information scores. Conclusions: This study’s findings may guide professionals in identifying parents’ preferences regarding their participation in treatment decision-making process. Mapping their preferences may support professionals in promoting desirable levels of parental involvement when decisions are necessary in pediatric oncology context.ICMJE2022-01-21T14:39:16Z2020-01-01T00:00:00Z2020info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10437/12468engSalvador, ÁgataCrespo, Carla Alexandra MesquitaRoberto, Magda SofiaBarros, Luísainfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-03-09T14:10:11Zoai:recil.ensinolusofona.pt:10437/12468Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T17:17:00.626789Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Do parents of children with cancer want to participate in treatment decision-making? |
title |
Do parents of children with cancer want to participate in treatment decision-making? |
spellingShingle |
Do parents of children with cancer want to participate in treatment decision-making? Salvador, Ágata PSICOLOGIA PEDIATRIA ONCOLOGIA CANCRO TOMADA DE DECISÃO TRATAMENTOS MÉDICOS FAMÍLIA PAIS PSYCHOLOGY PAEDIATRICS ONCOLOGY CANCER DECISION MAKING MEDICAL TREATMENTS FAMILY PARENTS |
title_short |
Do parents of children with cancer want to participate in treatment decision-making? |
title_full |
Do parents of children with cancer want to participate in treatment decision-making? |
title_fullStr |
Do parents of children with cancer want to participate in treatment decision-making? |
title_full_unstemmed |
Do parents of children with cancer want to participate in treatment decision-making? |
title_sort |
Do parents of children with cancer want to participate in treatment decision-making? |
author |
Salvador, Ágata |
author_facet |
Salvador, Ágata Crespo, Carla Alexandra Mesquita Roberto, Magda Sofia Barros, Luísa |
author_role |
author |
author2 |
Crespo, Carla Alexandra Mesquita Roberto, Magda Sofia Barros, Luísa |
author2_role |
author author author |
dc.contributor.author.fl_str_mv |
Salvador, Ágata Crespo, Carla Alexandra Mesquita Roberto, Magda Sofia Barros, Luísa |
dc.subject.por.fl_str_mv |
PSICOLOGIA PEDIATRIA ONCOLOGIA CANCRO TOMADA DE DECISÃO TRATAMENTOS MÉDICOS FAMÍLIA PAIS PSYCHOLOGY PAEDIATRICS ONCOLOGY CANCER DECISION MAKING MEDICAL TREATMENTS FAMILY PARENTS |
topic |
PSICOLOGIA PEDIATRIA ONCOLOGIA CANCRO TOMADA DE DECISÃO TRATAMENTOS MÉDICOS FAMÍLIA PAIS PSYCHOLOGY PAEDIATRICS ONCOLOGY CANCER DECISION MAKING MEDICAL TREATMENTS FAMILY PARENTS |
description |
Purpose: This study aimed to describe parents’ preferences regarding their role in treatment decision-making when a child has cancer and examines whether their preferences were related to the parents (sex and education level), patients’ characteristics (age group and treatment status), and healthcare context features (parents’ perception of family-centered care). Methods: Two-hundred and twenty-eight parents of children/adolescents with cancer were recruited from two Portuguese pediatric oncology wards. Participants provided sociodemographic and clinical information. The Control Preferences Scale for Pediatrics was used to assess the parents’ preferred role in treatment decision-making. The Measure of Process of Care assessed the parents’ perception of family-centered care (family-centered services and providing general information subscales). Results: Results showed that parents preferred a passive-collaborative role (44.8%), followed by collaborative (27.8%), passive (20.9%) and active-collaborative (6.5%). None preferred an active role. Chi-square test showed that most of the parents preferring an active-collaborative role had higher education degrees, while those preferring a passive role had lower education degrees. Additionally, groups did not differ according to the parents’ sex, patients’ age and treatment status. A multivariate analysis of variance showed that parents preferring an active-collaborative role reported lower scores on family-centered services compared to those preferring passive-collaborative and passive roles. Finally, no differences were found concerning providing general information scores. Conclusions: This study’s findings may guide professionals in identifying parents’ preferences regarding their participation in treatment decision-making process. Mapping their preferences may support professionals in promoting desirable levels of parental involvement when decisions are necessary in pediatric oncology context. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-01-01T00:00:00Z 2020 2022-01-21T14:39:16Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10437/12468 |
url |
http://hdl.handle.net/10437/12468 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
ICMJE |
publisher.none.fl_str_mv |
ICMJE |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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