Family care of children with chronic conditions in the context of the pandemic by COVID-19

• Autor(a) principal: Macedo, Maísa Mara Lopes
• Data de Publicação: 2023
• Outros Autores: Henriques, Nayara Luiza, Deodato, Sérgio, Duarte, Elysângela Dittz
• Tipo de documento: Artigo
• Idioma: eng
• Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
• Texto Completo: http://hdl.handle.net/10400.14/41559
• topic: COVID-19; Child care; Chronic disease; Family; Qualitative research; Doença crônica; Cuidado da criança; Família; Pesquisa qualitativa

Objective: to describe how families experienced the care of children in chronic condition during the pandemic by CO-VID-19. Methods: qualitative study, guided by the Family Ma-nagement Style Model, conducted with 24 families of children in chronic condition. The data, collected by telephone contact through semi-structured interviews, were submitted to the-matic analysis. Results: data analysis resulted in three the-matic categories: Changes in the routine of family members; Emotions triggered in family members and children due to the pandemic; and Implications of the pandemic by COVID-19 for the continuity of care. They highlighted: incorporation of hygiene care, social distancing concomitant to domestic and professional activities at home; and feelings of fear and con-cern about the children's health and development and the need for caregivers to provide rehabilitation and support for school activities. Conclusion: it was observed that the pan-demic changed the family routine, produced negative feelings in families, modified care demands and compromised access to services. Contributions to practice: these results contri-bute to the identification of the repercussions of COVID-19 on families and children with chronic conditions and can help establish strategies to reduce the consequences of this pan-demic and other future health emergencies.