Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study

Detalhes bibliográficos
Autor(a) principal: Menjivar, Ana
Data de Publicação: 2020
Outros Autores: Torres, Xavier, Manyalich, Marti, Fehrman-Ekholm, Ingela, Papachristou, Christina, de Sousa-Amorim, Erika, Paredes, David, Hiesse, Christian, Yucetin, Levent, Oppenheimer, Federico, Kondi, Entela, Peri, Josep Maria, Kvarnström, Niclas, Ballesté, Chloë, Dias, Leonidio, Frade, Inês C., Lopes, Alice, Diekmann, Fritz, Revuelta, Ignacio
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.16/2717
Resumo: Living kidney donors' follow-up is usually focused on the assessment of the surgical and medical outcomes. Whilst the psychosocial follow-up is advocated in literature. It is still not entirely clear which exact psychosocial factors are related to a poor psychosocial outcome of donors. The aim of our study is to prospectively assess the donors' psychosocial risks factors to impaired health-related quality of life at 1-year post-donation and link their psychosocial profile before donation with their respective outcomes. The influence of the recipient's medical outcomes on their donor's psychosocial outcome was also examined. Sixty donors completed a battery of standardized psychometric instruments (quality of life, mental health, coping strategies, personality, socio-economic status), and ad hoc items regarding the donation process (e.g., motivations for donation, decision-making, risk assessment, and donor-recipient relationship). Donors' 1-year psychosocial follow-up was favorable and comparable with the general population. So far, cluster-analysis identified a subgroup of donors (28%) with a post-donation reduction of their health-related quality of life. This subgroup expressed comparatively to the rest, the need for more pre-donation information regarding surgery risks, and elevated fear of losing the recipient and commitment to stop their suffering.
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spelling Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective studyLiving kidney donors' follow-up is usually focused on the assessment of the surgical and medical outcomes. Whilst the psychosocial follow-up is advocated in literature. It is still not entirely clear which exact psychosocial factors are related to a poor psychosocial outcome of donors. The aim of our study is to prospectively assess the donors' psychosocial risks factors to impaired health-related quality of life at 1-year post-donation and link their psychosocial profile before donation with their respective outcomes. The influence of the recipient's medical outcomes on their donor's psychosocial outcome was also examined. Sixty donors completed a battery of standardized psychometric instruments (quality of life, mental health, coping strategies, personality, socio-economic status), and ad hoc items regarding the donation process (e.g., motivations for donation, decision-making, risk assessment, and donor-recipient relationship). Donors' 1-year psychosocial follow-up was favorable and comparable with the general population. So far, cluster-analysis identified a subgroup of donors (28%) with a post-donation reduction of their health-related quality of life. This subgroup expressed comparatively to the rest, the need for more pre-donation information regarding surgery risks, and elevated fear of losing the recipient and commitment to stop their suffering.Nature Publishing GroupRepositório Científico do Centro Hospitalar Universitário de Santo AntónioMenjivar, AnaTorres, XavierManyalich, MartiFehrman-Ekholm, IngelaPapachristou, Christinade Sousa-Amorim, ErikaParedes, DavidHiesse, ChristianYucetin, LeventOppenheimer, FedericoKondi, EntelaPeri, Josep MariaKvarnström, NiclasBallesté, ChloëDias, LeonidioFrade, Inês C.Lopes, AliceDiekmann, FritzRevuelta, Ignacio2022-07-12T13:38:50Z20202020-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.16/2717engMenjivar A, Torres X, Manyalich M, et al. Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study. Sci Rep. 2020;10(1):21343. Published 2020 Dec 7. doi:10.1038/s41598-020-78032-82045-232210.1038/s41598-020-78032-8info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-10-20T11:01:57Zoai:repositorio.chporto.pt:10400.16/2717Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:38:54.538858Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study
title Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study
spellingShingle Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study
Menjivar, Ana
title_short Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study
title_full Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study
title_fullStr Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study
title_full_unstemmed Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study
title_sort Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study
author Menjivar, Ana
author_facet Menjivar, Ana
Torres, Xavier
Manyalich, Marti
Fehrman-Ekholm, Ingela
Papachristou, Christina
de Sousa-Amorim, Erika
Paredes, David
Hiesse, Christian
Yucetin, Levent
Oppenheimer, Federico
Kondi, Entela
Peri, Josep Maria
Kvarnström, Niclas
Ballesté, Chloë
Dias, Leonidio
Frade, Inês C.
Lopes, Alice
Diekmann, Fritz
Revuelta, Ignacio
author_role author
author2 Torres, Xavier
Manyalich, Marti
Fehrman-Ekholm, Ingela
Papachristou, Christina
de Sousa-Amorim, Erika
Paredes, David
Hiesse, Christian
Yucetin, Levent
Oppenheimer, Federico
Kondi, Entela
Peri, Josep Maria
Kvarnström, Niclas
Ballesté, Chloë
Dias, Leonidio
Frade, Inês C.
Lopes, Alice
Diekmann, Fritz
Revuelta, Ignacio
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório Científico do Centro Hospitalar Universitário de Santo António
dc.contributor.author.fl_str_mv Menjivar, Ana
Torres, Xavier
Manyalich, Marti
Fehrman-Ekholm, Ingela
Papachristou, Christina
de Sousa-Amorim, Erika
Paredes, David
Hiesse, Christian
Yucetin, Levent
Oppenheimer, Federico
Kondi, Entela
Peri, Josep Maria
Kvarnström, Niclas
Ballesté, Chloë
Dias, Leonidio
Frade, Inês C.
Lopes, Alice
Diekmann, Fritz
Revuelta, Ignacio
description Living kidney donors' follow-up is usually focused on the assessment of the surgical and medical outcomes. Whilst the psychosocial follow-up is advocated in literature. It is still not entirely clear which exact psychosocial factors are related to a poor psychosocial outcome of donors. The aim of our study is to prospectively assess the donors' psychosocial risks factors to impaired health-related quality of life at 1-year post-donation and link their psychosocial profile before donation with their respective outcomes. The influence of the recipient's medical outcomes on their donor's psychosocial outcome was also examined. Sixty donors completed a battery of standardized psychometric instruments (quality of life, mental health, coping strategies, personality, socio-economic status), and ad hoc items regarding the donation process (e.g., motivations for donation, decision-making, risk assessment, and donor-recipient relationship). Donors' 1-year psychosocial follow-up was favorable and comparable with the general population. So far, cluster-analysis identified a subgroup of donors (28%) with a post-donation reduction of their health-related quality of life. This subgroup expressed comparatively to the rest, the need for more pre-donation information regarding surgery risks, and elevated fear of losing the recipient and commitment to stop their suffering.
publishDate 2020
dc.date.none.fl_str_mv 2020
2020-01-01T00:00:00Z
2022-07-12T13:38:50Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
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dc.identifier.uri.fl_str_mv http://hdl.handle.net/10400.16/2717
url http://hdl.handle.net/10400.16/2717
dc.language.iso.fl_str_mv eng
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dc.relation.none.fl_str_mv Menjivar A, Torres X, Manyalich M, et al. Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study. Sci Rep. 2020;10(1):21343. Published 2020 Dec 7. doi:10.1038/s41598-020-78032-8
2045-2322
10.1038/s41598-020-78032-8
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dc.publisher.none.fl_str_mv Nature Publishing Group
publisher.none.fl_str_mv Nature Publishing Group
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