Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , , , , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.16/2717 |
Resumo: | Living kidney donors' follow-up is usually focused on the assessment of the surgical and medical outcomes. Whilst the psychosocial follow-up is advocated in literature. It is still not entirely clear which exact psychosocial factors are related to a poor psychosocial outcome of donors. The aim of our study is to prospectively assess the donors' psychosocial risks factors to impaired health-related quality of life at 1-year post-donation and link their psychosocial profile before donation with their respective outcomes. The influence of the recipient's medical outcomes on their donor's psychosocial outcome was also examined. Sixty donors completed a battery of standardized psychometric instruments (quality of life, mental health, coping strategies, personality, socio-economic status), and ad hoc items regarding the donation process (e.g., motivations for donation, decision-making, risk assessment, and donor-recipient relationship). Donors' 1-year psychosocial follow-up was favorable and comparable with the general population. So far, cluster-analysis identified a subgroup of donors (28%) with a post-donation reduction of their health-related quality of life. This subgroup expressed comparatively to the rest, the need for more pre-donation information regarding surgery risks, and elevated fear of losing the recipient and commitment to stop their suffering. |
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Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective studyLiving kidney donors' follow-up is usually focused on the assessment of the surgical and medical outcomes. Whilst the psychosocial follow-up is advocated in literature. It is still not entirely clear which exact psychosocial factors are related to a poor psychosocial outcome of donors. The aim of our study is to prospectively assess the donors' psychosocial risks factors to impaired health-related quality of life at 1-year post-donation and link their psychosocial profile before donation with their respective outcomes. The influence of the recipient's medical outcomes on their donor's psychosocial outcome was also examined. Sixty donors completed a battery of standardized psychometric instruments (quality of life, mental health, coping strategies, personality, socio-economic status), and ad hoc items regarding the donation process (e.g., motivations for donation, decision-making, risk assessment, and donor-recipient relationship). Donors' 1-year psychosocial follow-up was favorable and comparable with the general population. So far, cluster-analysis identified a subgroup of donors (28%) with a post-donation reduction of their health-related quality of life. This subgroup expressed comparatively to the rest, the need for more pre-donation information regarding surgery risks, and elevated fear of losing the recipient and commitment to stop their suffering.Nature Publishing GroupRepositório Científico do Centro Hospitalar Universitário de Santo AntónioMenjivar, AnaTorres, XavierManyalich, MartiFehrman-Ekholm, IngelaPapachristou, Christinade Sousa-Amorim, ErikaParedes, DavidHiesse, ChristianYucetin, LeventOppenheimer, FedericoKondi, EntelaPeri, Josep MariaKvarnström, NiclasBallesté, ChloëDias, LeonidioFrade, Inês C.Lopes, AliceDiekmann, FritzRevuelta, Ignacio2022-07-12T13:38:50Z20202020-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.16/2717engMenjivar A, Torres X, Manyalich M, et al. Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study. Sci Rep. 2020;10(1):21343. Published 2020 Dec 7. doi:10.1038/s41598-020-78032-82045-232210.1038/s41598-020-78032-8info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-10-20T11:01:57Zoai:repositorio.chporto.pt:10400.16/2717Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:38:54.538858Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study |
title |
Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study |
spellingShingle |
Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study Menjivar, Ana |
title_short |
Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study |
title_full |
Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study |
title_fullStr |
Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study |
title_full_unstemmed |
Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study |
title_sort |
Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study |
author |
Menjivar, Ana |
author_facet |
Menjivar, Ana Torres, Xavier Manyalich, Marti Fehrman-Ekholm, Ingela Papachristou, Christina de Sousa-Amorim, Erika Paredes, David Hiesse, Christian Yucetin, Levent Oppenheimer, Federico Kondi, Entela Peri, Josep Maria Kvarnström, Niclas Ballesté, Chloë Dias, Leonidio Frade, Inês C. Lopes, Alice Diekmann, Fritz Revuelta, Ignacio |
author_role |
author |
author2 |
Torres, Xavier Manyalich, Marti Fehrman-Ekholm, Ingela Papachristou, Christina de Sousa-Amorim, Erika Paredes, David Hiesse, Christian Yucetin, Levent Oppenheimer, Federico Kondi, Entela Peri, Josep Maria Kvarnström, Niclas Ballesté, Chloë Dias, Leonidio Frade, Inês C. Lopes, Alice Diekmann, Fritz Revuelta, Ignacio |
author2_role |
author author author author author author author author author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Repositório Científico do Centro Hospitalar Universitário de Santo António |
dc.contributor.author.fl_str_mv |
Menjivar, Ana Torres, Xavier Manyalich, Marti Fehrman-Ekholm, Ingela Papachristou, Christina de Sousa-Amorim, Erika Paredes, David Hiesse, Christian Yucetin, Levent Oppenheimer, Federico Kondi, Entela Peri, Josep Maria Kvarnström, Niclas Ballesté, Chloë Dias, Leonidio Frade, Inês C. Lopes, Alice Diekmann, Fritz Revuelta, Ignacio |
description |
Living kidney donors' follow-up is usually focused on the assessment of the surgical and medical outcomes. Whilst the psychosocial follow-up is advocated in literature. It is still not entirely clear which exact psychosocial factors are related to a poor psychosocial outcome of donors. The aim of our study is to prospectively assess the donors' psychosocial risks factors to impaired health-related quality of life at 1-year post-donation and link their psychosocial profile before donation with their respective outcomes. The influence of the recipient's medical outcomes on their donor's psychosocial outcome was also examined. Sixty donors completed a battery of standardized psychometric instruments (quality of life, mental health, coping strategies, personality, socio-economic status), and ad hoc items regarding the donation process (e.g., motivations for donation, decision-making, risk assessment, and donor-recipient relationship). Donors' 1-year psychosocial follow-up was favorable and comparable with the general population. So far, cluster-analysis identified a subgroup of donors (28%) with a post-donation reduction of their health-related quality of life. This subgroup expressed comparatively to the rest, the need for more pre-donation information regarding surgery risks, and elevated fear of losing the recipient and commitment to stop their suffering. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020 2020-01-01T00:00:00Z 2022-07-12T13:38:50Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.16/2717 |
url |
http://hdl.handle.net/10400.16/2717 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Menjivar A, Torres X, Manyalich M, et al. Psychosocial risk factors for impaired health-related quality of life in living kidney donors: results from the ELIPSY prospective study. Sci Rep. 2020;10(1):21343. Published 2020 Dec 7. doi:10.1038/s41598-020-78032-8 2045-2322 10.1038/s41598-020-78032-8 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Nature Publishing Group |
publisher.none.fl_str_mv |
Nature Publishing Group |
dc.source.none.fl_str_mv |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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