Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2023 |
| Outros Autores: | , , , , , , , , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| Texto Completo: | http://hdl.handle.net/10362/160868 |
Resumo: | Funding Information: No funding was received for conducting this study. CEISUC/CIBB is funded by national funds through FCT, Foundation for Science and Technology, I.P., under the Multiannual Financing of R&D Units 2020–2023. Publisher Copyright: © 2023 by the authors. |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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7160 |
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Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaireoutcome assessmentquality of lifeSHAQsystemic sclerosisPollutionPublic Health, Environmental and Occupational HealthHealth, Toxicology and MutagenesisSDG 3 - Good Health and Well-beingFunding Information: No funding was received for conducting this study. CEISUC/CIBB is funded by national funds through FCT, Foundation for Science and Technology, I.P., under the Multiannual Financing of R&D Units 2020–2023. Publisher Copyright: © 2023 by the authors.The Health Assessment Questionnaire Disability Index (HAQ-DI) was completed with five visual analog scales to assess systemic sclerosis (SSc) called Scleroderma HAQ (SHAQ). We performed a validation of the European Portuguese version of SHAQ for patients with SSc. Patients with different forms of SSc from five Hospital Centers were invited. The reliability of the Portuguese SHAQ was evaluated by internal consistency and by test–retest reliability. Content validity was checked by two rheumatologists and by a panel of patients. Construct validity was assessed by structural validity and by known-groups hypothesis tests. Criterion validity was addressed with selected dimensions from the UCLA GIT 2.0, the SF-36v2, and the EuroQoL EQ-5D-5L. A total of 102 SSc patients agreed to participate, 31 of which answered to the retest. HAQ-DI demonstrated high internal consistency reliability (α = 0.866) and SHAQ also showed high test–retest reliability (ICC 0.61–0.95). We evidenced the unidimensionality of all VASs. HAQ-DI scores were worse in males, patients older than 65 years, and individuals with a diffuse form of SSc. Criterion validity was mainly evidenced through the correlation between the HAQ-DI and SF-36v2 physical summary measure (r = −0.688) and EQ-5D-5L index score (r = −0.723). Likewise, the SHAQ overall disease severity VAS was also correlated with SF-36v2 physical summary measure (r = −0.628). Mental score correlations were smaller. With the exception of the Raynaud’s VAS, all the other VASs correlated well with similar clinical variables. This paper provides evidence to demonstrate how reliable and valid the European Portuguese version of SHAQ is, to be used in SSc patients to assess the clinical severity under the perspective of patients.NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)Comprehensive Health Research Centre (CHRC) - pólo NMSRUNGenrinho, InêsFerreira, Pedro L.Santiago, TâniaCarones, AdrianaMazeda, CarolinaBarcelos, AnabelaBeirão, TiagoCosta, FlávioSantos, InêsCouto, MauraRato, MariaTerroso, GeorginaMonteiro, Paulo2023-12-04T22:34:29Z2023-112023-11-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10362/160868eng1661-7827PURE: 77650196https://doi.org/10.3390/ijerph20227062info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T05:43:37Zoai:run.unl.pt:10362/160868Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:58:14.873285Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
| dc.title.none.fl_str_mv |
Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire |
| title |
Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire |
| spellingShingle |
Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire Genrinho, Inês outcome assessment quality of life SHAQ systemic sclerosis Pollution Public Health, Environmental and Occupational Health Health, Toxicology and Mutagenesis SDG 3 - Good Health and Well-being |
| title_short |
Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire |
| title_full |
Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire |
| title_fullStr |
Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire |
| title_full_unstemmed |
Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire |
| title_sort |
Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire |
| author |
Genrinho, Inês |
| author_facet |
Genrinho, Inês Ferreira, Pedro L. Santiago, Tânia Carones, Adriana Mazeda, Carolina Barcelos, Anabela Beirão, Tiago Costa, Flávio Santos, Inês Couto, Maura Rato, Maria Terroso, Georgina Monteiro, Paulo |
| author_role |
author |
| author2 |
Ferreira, Pedro L. Santiago, Tânia Carones, Adriana Mazeda, Carolina Barcelos, Anabela Beirão, Tiago Costa, Flávio Santos, Inês Couto, Maura Rato, Maria Terroso, Georgina Monteiro, Paulo |
| author2_role |
author author author author author author author author author author author author |
| dc.contributor.none.fl_str_mv |
NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM) Comprehensive Health Research Centre (CHRC) - pólo NMS RUN |
| dc.contributor.author.fl_str_mv |
Genrinho, Inês Ferreira, Pedro L. Santiago, Tânia Carones, Adriana Mazeda, Carolina Barcelos, Anabela Beirão, Tiago Costa, Flávio Santos, Inês Couto, Maura Rato, Maria Terroso, Georgina Monteiro, Paulo |
| dc.subject.por.fl_str_mv |
outcome assessment quality of life SHAQ systemic sclerosis Pollution Public Health, Environmental and Occupational Health Health, Toxicology and Mutagenesis SDG 3 - Good Health and Well-being |
| topic |
outcome assessment quality of life SHAQ systemic sclerosis Pollution Public Health, Environmental and Occupational Health Health, Toxicology and Mutagenesis SDG 3 - Good Health and Well-being |
| description |
Funding Information: No funding was received for conducting this study. CEISUC/CIBB is funded by national funds through FCT, Foundation for Science and Technology, I.P., under the Multiannual Financing of R&D Units 2020–2023. Publisher Copyright: © 2023 by the authors. |
| publishDate |
2023 |
| dc.date.none.fl_str_mv |
2023-12-04T22:34:29Z 2023-11 2023-11-01T00:00:00Z |
| dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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article |
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publishedVersion |
| dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10362/160868 |
| url |
http://hdl.handle.net/10362/160868 |
| dc.language.iso.fl_str_mv |
eng |
| language |
eng |
| dc.relation.none.fl_str_mv |
1661-7827 PURE: 77650196 https://doi.org/10.3390/ijerph20227062 |
| dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799138163877216257 |