Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions

Detalhes bibliográficos
Autor(a) principal: Martins, Patrícia
Data de Publicação: 2021
Outros Autores: Dourado, Eduardo, Fonseca, João Eurico, Cordeiro, Inês, Romão, Vasco C., Resende, Catarina
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/58205
Resumo: © Sociedade Portuguesa de Reumatologia
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spelling Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directionsSystemic SclerosisSclerodermaPatient CareTertiary Care© Sociedade Portuguesa de ReumatologiaSystemic sclerosis (SSc) is an uncommon condition, with a wide range of manifestations, characterized by specific antibody production, vasculopathy and fibrosis of the skin and other internal organs. It is a complex disease, which is estimated to be rare in Portugal, although specific incidence data are missing. The aetiology of SSc remains unknown, but is likely to be multifactorial, involving genetic and environmental aspects. Its management is challenging and often requires a multidisciplinary approach. In 2011, we established a dedicated outpatient clinic for patients with SSc. Clinical data of every patient with a confirmed diagnosis of SSc is prospectively registered in Reuma.pt/SSc. In this manuscript, we aim to describe the general functioning of our SSc outpatient clinic, and to characterise the population of patients with SSc who are followed herein.Sociedade Portuguesa de ReumatologiaRepositório da Universidade de LisboaMartins, PatríciaDourado, EduardoFonseca, João EuricoCordeiro, InêsRomão, Vasco C.Resende, Catarina2023-06-14T13:51:35Z20212021-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/58205engActa Reumatol Port. 2021;46:257-2652795-4552info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T17:06:56Zoai:repositorio.ul.pt:10451/58205Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T22:08:30.730984Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions
title Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions
spellingShingle Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions
Martins, Patrícia
Systemic Sclerosis
Scleroderma
Patient Care
Tertiary Care
title_short Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions
title_full Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions
title_fullStr Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions
title_full_unstemmed Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions
title_sort Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions
author Martins, Patrícia
author_facet Martins, Patrícia
Dourado, Eduardo
Fonseca, João Eurico
Cordeiro, Inês
Romão, Vasco C.
Resende, Catarina
author_role author
author2 Dourado, Eduardo
Fonseca, João Eurico
Cordeiro, Inês
Romão, Vasco C.
Resende, Catarina
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Martins, Patrícia
Dourado, Eduardo
Fonseca, João Eurico
Cordeiro, Inês
Romão, Vasco C.
Resende, Catarina
dc.subject.por.fl_str_mv Systemic Sclerosis
Scleroderma
Patient Care
Tertiary Care
topic Systemic Sclerosis
Scleroderma
Patient Care
Tertiary Care
description © Sociedade Portuguesa de Reumatologia
publishDate 2021
dc.date.none.fl_str_mv 2021
2021-01-01T00:00:00Z
2023-06-14T13:51:35Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/58205
url http://hdl.handle.net/10451/58205
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Acta Reumatol Port. 2021;46:257-265
2795-4552
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Sociedade Portuguesa de Reumatologia
publisher.none.fl_str_mv Sociedade Portuguesa de Reumatologia
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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