Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10451/58205 |
Resumo: | © Sociedade Portuguesa de Reumatologia |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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7160 |
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Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directionsSystemic SclerosisSclerodermaPatient CareTertiary Care© Sociedade Portuguesa de ReumatologiaSystemic sclerosis (SSc) is an uncommon condition, with a wide range of manifestations, characterized by specific antibody production, vasculopathy and fibrosis of the skin and other internal organs. It is a complex disease, which is estimated to be rare in Portugal, although specific incidence data are missing. The aetiology of SSc remains unknown, but is likely to be multifactorial, involving genetic and environmental aspects. Its management is challenging and often requires a multidisciplinary approach. In 2011, we established a dedicated outpatient clinic for patients with SSc. Clinical data of every patient with a confirmed diagnosis of SSc is prospectively registered in Reuma.pt/SSc. In this manuscript, we aim to describe the general functioning of our SSc outpatient clinic, and to characterise the population of patients with SSc who are followed herein.Sociedade Portuguesa de ReumatologiaRepositório da Universidade de LisboaMartins, PatríciaDourado, EduardoFonseca, João EuricoCordeiro, InêsRomão, Vasco C.Resende, Catarina2023-06-14T13:51:35Z20212021-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/58205engActa Reumatol Port. 2021;46:257-2652795-4552info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T17:06:56Zoai:repositorio.ul.pt:10451/58205Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T22:08:30.730984Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions |
title |
Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions |
spellingShingle |
Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions Martins, Patrícia Systemic Sclerosis Scleroderma Patient Care Tertiary Care |
title_short |
Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions |
title_full |
Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions |
title_fullStr |
Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions |
title_full_unstemmed |
Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions |
title_sort |
Ten years of a systemic sclerosis clinic in a tertiary referral centre - insights and future directions |
author |
Martins, Patrícia |
author_facet |
Martins, Patrícia Dourado, Eduardo Fonseca, João Eurico Cordeiro, Inês Romão, Vasco C. Resende, Catarina |
author_role |
author |
author2 |
Dourado, Eduardo Fonseca, João Eurico Cordeiro, Inês Romão, Vasco C. Resende, Catarina |
author2_role |
author author author author author |
dc.contributor.none.fl_str_mv |
Repositório da Universidade de Lisboa |
dc.contributor.author.fl_str_mv |
Martins, Patrícia Dourado, Eduardo Fonseca, João Eurico Cordeiro, Inês Romão, Vasco C. Resende, Catarina |
dc.subject.por.fl_str_mv |
Systemic Sclerosis Scleroderma Patient Care Tertiary Care |
topic |
Systemic Sclerosis Scleroderma Patient Care Tertiary Care |
description |
© Sociedade Portuguesa de Reumatologia |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021 2021-01-01T00:00:00Z 2023-06-14T13:51:35Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10451/58205 |
url |
http://hdl.handle.net/10451/58205 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Acta Reumatol Port. 2021;46:257-265 2795-4552 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Sociedade Portuguesa de Reumatologia |
publisher.none.fl_str_mv |
Sociedade Portuguesa de Reumatologia |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799134639593357312 |