Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy

Detalhes bibliográficos
Autor(a) principal: Lo Bosco, Maria Concetta
Data de Publicação: 2021
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/47591
Resumo: From the refrigerator mother theory to more recent comparisons to ‘warrior-heroes’, mothers of children with autism spectrum disorders have been historically categorised as emotionally remarkable. Drawing on my ethnographic fieldwork in Portugal, I explore in this article how mothers politically mobilise emotions, characteristics, and acts usually associated with good mothering, such as maternal love, dedication, and sacrifice. While these socially expected phenomena have been addressed as instruments of the relegation of women to motherhood and care labour, I propose a novel look at the value of affectivity in discourses and practices of care and advocacy. I argue that mothers strategically embody and employ their affectivity as political capital to validate their role as expert caregivers and advocates, creating new opportunities to access leading positions within the autism advocacy movement.
id RCAP_5338336ed011e2a8caa2d21566e54db2
oai_identifier_str oai:repositorio.ul.pt:10451/47591
network_acronym_str RCAP
network_name_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository_id_str 7160
spelling Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism AdvocacyAdvocacyAffectivityAutism spectrum disorderSpecial motheringFrom the refrigerator mother theory to more recent comparisons to ‘warrior-heroes’, mothers of children with autism spectrum disorders have been historically categorised as emotionally remarkable. Drawing on my ethnographic fieldwork in Portugal, I explore in this article how mothers politically mobilise emotions, characteristics, and acts usually associated with good mothering, such as maternal love, dedication, and sacrifice. While these socially expected phenomena have been addressed as instruments of the relegation of women to motherhood and care labour, I propose a novel look at the value of affectivity in discourses and practices of care and advocacy. I argue that mothers strategically embody and employ their affectivity as political capital to validate their role as expert caregivers and advocates, creating new opportunities to access leading positions within the autism advocacy movement.Edinburgh Centre for Medical AnthropologyRepositório da Universidade de LisboaLo Bosco, Maria Concetta2021-04-28T11:10:10Z20212021-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/47591engLo Bosco, M. C. (2021). Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy. Medicine Anthropology Theory, 8(1), 1-252405-691X10.17157/mat.8.1.5092info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:50:36Zoai:repositorio.ul.pt:10451/47591Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:59:35.924776Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy
title Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy
spellingShingle Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy
Lo Bosco, Maria Concetta
Advocacy
Affectivity
Autism spectrum disorder
Special mothering
title_short Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy
title_full Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy
title_fullStr Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy
title_full_unstemmed Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy
title_sort Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy
author Lo Bosco, Maria Concetta
author_facet Lo Bosco, Maria Concetta
author_role author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Lo Bosco, Maria Concetta
dc.subject.por.fl_str_mv Advocacy
Affectivity
Autism spectrum disorder
Special mothering
topic Advocacy
Affectivity
Autism spectrum disorder
Special mothering
description From the refrigerator mother theory to more recent comparisons to ‘warrior-heroes’, mothers of children with autism spectrum disorders have been historically categorised as emotionally remarkable. Drawing on my ethnographic fieldwork in Portugal, I explore in this article how mothers politically mobilise emotions, characteristics, and acts usually associated with good mothering, such as maternal love, dedication, and sacrifice. While these socially expected phenomena have been addressed as instruments of the relegation of women to motherhood and care labour, I propose a novel look at the value of affectivity in discourses and practices of care and advocacy. I argue that mothers strategically embody and employ their affectivity as political capital to validate their role as expert caregivers and advocates, creating new opportunities to access leading positions within the autism advocacy movement.
publishDate 2021
dc.date.none.fl_str_mv 2021-04-28T11:10:10Z
2021
2021-01-01T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/47591
url http://hdl.handle.net/10451/47591
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Lo Bosco, M. C. (2021). Autism ‘Super Mums’: Affectivity as a Political Capital in Special Mothering and Autism Advocacy. Medicine Anthropology Theory, 8(1), 1-25
2405-691X
10.17157/mat.8.1.5092
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Edinburgh Centre for Medical Anthropology
publisher.none.fl_str_mv Edinburgh Centre for Medical Anthropology
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
_version_ 1799134542013923328