Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory study

Detalhes bibliográficos
Autor(a) principal: Matos, Maria Madalena Pinto Cardoso de
Data de Publicação: 2011
Tipo de documento: Artigo
Idioma: por
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: https://doi.org/10.34632/cadernosdesaude.2011.2811
Resumo: Hepatic cirrhosis strongly affects quality of life and wellbeing of patients. Hepatic transplantation is the best treatment in the final stages of the disease. This study was designed to evaluate the impact of the disease and hepatic transplantation on the quality of life of cirrhotic patients. A non-probable sample of 61 participants of the Transplant Unit of the Curry Cabral Hospital was elaborated, of which 28 in the active list of transplants,18 transplanted six months ago. Data was obtained through an enquiry interview without using the Liver Disease Quality of Life – LDQOL 1.0 questionnaire, with the respective data. The different dimensions of the quality of life dimensions will be presented: related symptoms illness/transplant; effects of illness/transplant in daily activities; concentration of the quality of the social interaction; wariness with the illness; corporal stigma/image; function and problems to be extracted as the main conclusion. – Hepatic cirrhosis is associated with bad quality of life. This aspect was pointed out in the active preparation for transplant. –- The improvement of the quality of life in the evaluated patients one year after the surgery is less expressive in the group of patients transplanted six months ago. This is more evident in respect of the physical symptoms related to the illness than in the psychosocial aspects – Cirrhosis and hepatic transplant have a strong impact in the quality of life of the patients, the family and the health professionals in their important roles of support and assistance.  
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spelling Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory studyImpacto da doença e do transplante hepático na qualidade de vida de doentes com Cirrose: estudo exploratórioHepatic cirrhosis strongly affects quality of life and wellbeing of patients. Hepatic transplantation is the best treatment in the final stages of the disease. This study was designed to evaluate the impact of the disease and hepatic transplantation on the quality of life of cirrhotic patients. A non-probable sample of 61 participants of the Transplant Unit of the Curry Cabral Hospital was elaborated, of which 28 in the active list of transplants,18 transplanted six months ago. Data was obtained through an enquiry interview without using the Liver Disease Quality of Life – LDQOL 1.0 questionnaire, with the respective data. The different dimensions of the quality of life dimensions will be presented: related symptoms illness/transplant; effects of illness/transplant in daily activities; concentration of the quality of the social interaction; wariness with the illness; corporal stigma/image; function and problems to be extracted as the main conclusion. – Hepatic cirrhosis is associated with bad quality of life. This aspect was pointed out in the active preparation for transplant. –- The improvement of the quality of life in the evaluated patients one year after the surgery is less expressive in the group of patients transplanted six months ago. This is more evident in respect of the physical symptoms related to the illness than in the psychosocial aspects – Cirrhosis and hepatic transplant have a strong impact in the quality of life of the patients, the family and the health professionals in their important roles of support and assistance.  A cirrose hepática é uma doença que afecta gravemente a qualidade de vida e o bem-estar dos doentes; a transplantação hepática constitui o tratamento de eleição na fase final da doença. O objectivo deste estudo foi avaliar qual o impacto da doença e do transplante hepático na qualidade de vida de doentes com cirrose. Foi constituída uma amostra não probabilística de 61 participantes da Unidade de Transplante do Hospital Curry Cabral, dos quais 28 se encontravam em lista activa para transplante, 18 com seis meses de transplante e 15 com um ano de transplante. A colheita de dados foi feita através de inquérito por entrevista semi-estruturada e por aplicação do questionário Liver Disease Quality of Life – LDQOL 1.0., com a respectiva triangulação de dados. Os resultados obtidos nas diferentes dimensões de qualidade de vida: sintomas relacionados com a doença/transplante; efeitos da doença/transplante nas actividades diárias; concentração e memória; qualidade da interacção social; preocupação com o futuro; problemas de sono; isolamento social; preocupação com a doença; estigma/imagem corporal; funcionamento e problemas sexuais permitiram retirar como principais conclusões:- A cirrose hepática está associada a má qualidade de vida, aspecto que se estacou com grande evidência nos doentes em lista activa para transplante. – A melhoria da qualidade de vida nos doentes avaliados após um ano de cirurgia é muito erceptível, sendo menos expressiva no grupo de doentes com 6 meses de transplantação. Essa melhoria foi mais evidente no que diz respeito aos sintomas físicos relacionados com a doença do que na dimensão psicossocial. – A cirrose e a transplantação hepática têm um forte impacto na qualidade de vida dos doentes, assumindo a família e os profissionais de saúde um importante papel de suporte e apoio.Universidade Católica Portuguesa2011-01-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.34632/cadernosdesaude.2011.2811https://doi.org/10.34632/cadernosdesaude.2011.2811Cadernos de Saúde; Vol 4 No 1 (2011); 7-36Cadernos de Saúde; v. 4 n. 1 (2011); 7-362795-43581647-055910.34632/cadernosdesaude.2011.4.1reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporhttps://revistas.ucp.pt/index.php/cadernosdesaude/article/view/2811https://revistas.ucp.pt/index.php/cadernosdesaude/article/view/2811/2715Direitos de Autor (c) 2011 Maria Madalena Pinto Cardoso de Matoshttp://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessMatos, Maria Madalena Pinto Cardoso de2023-10-03T15:47:34Zoai:ojs.revistas.ucp.pt:article/2811Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:32:53.942273Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory study
Impacto da doença e do transplante hepático na qualidade de vida de doentes com Cirrose: estudo exploratório
title Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory study
spellingShingle Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory study
Matos, Maria Madalena Pinto Cardoso de
title_short Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory study
title_full Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory study
title_fullStr Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory study
title_full_unstemmed Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory study
title_sort Impact of disease and liver transplantation on quality of life of patients with Cirrhosis: an exploratory study
author Matos, Maria Madalena Pinto Cardoso de
author_facet Matos, Maria Madalena Pinto Cardoso de
author_role author
dc.contributor.author.fl_str_mv Matos, Maria Madalena Pinto Cardoso de
description Hepatic cirrhosis strongly affects quality of life and wellbeing of patients. Hepatic transplantation is the best treatment in the final stages of the disease. This study was designed to evaluate the impact of the disease and hepatic transplantation on the quality of life of cirrhotic patients. A non-probable sample of 61 participants of the Transplant Unit of the Curry Cabral Hospital was elaborated, of which 28 in the active list of transplants,18 transplanted six months ago. Data was obtained through an enquiry interview without using the Liver Disease Quality of Life – LDQOL 1.0 questionnaire, with the respective data. The different dimensions of the quality of life dimensions will be presented: related symptoms illness/transplant; effects of illness/transplant in daily activities; concentration of the quality of the social interaction; wariness with the illness; corporal stigma/image; function and problems to be extracted as the main conclusion. – Hepatic cirrhosis is associated with bad quality of life. This aspect was pointed out in the active preparation for transplant. –- The improvement of the quality of life in the evaluated patients one year after the surgery is less expressive in the group of patients transplanted six months ago. This is more evident in respect of the physical symptoms related to the illness than in the psychosocial aspects – Cirrhosis and hepatic transplant have a strong impact in the quality of life of the patients, the family and the health professionals in their important roles of support and assistance.  
publishDate 2011
dc.date.none.fl_str_mv 2011-01-01
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dc.identifier.uri.fl_str_mv https://doi.org/10.34632/cadernosdesaude.2011.2811
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url https://doi.org/10.34632/cadernosdesaude.2011.2811
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dc.relation.none.fl_str_mv https://revistas.ucp.pt/index.php/cadernosdesaude/article/view/2811
https://revistas.ucp.pt/index.php/cadernosdesaude/article/view/2811/2715
dc.rights.driver.fl_str_mv Direitos de Autor (c) 2011 Maria Madalena Pinto Cardoso de Matos
http://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Direitos de Autor (c) 2011 Maria Madalena Pinto Cardoso de Matos
http://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade Católica Portuguesa
publisher.none.fl_str_mv Universidade Católica Portuguesa
dc.source.none.fl_str_mv Cadernos de Saúde; Vol 4 No 1 (2011); 7-36
Cadernos de Saúde; v. 4 n. 1 (2011); 7-36
2795-4358
1647-0559
10.34632/cadernosdesaude.2011.4.1
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