Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care

Detalhes bibliográficos
Autor(a) principal: Lemos Caldas, Mafalda
Data de Publicação: 2020
Outros Autores: Julião, Miguel, Santos, Ana João, Chochinov, Harvey Max
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.18/7359
Resumo: Introduction: The Patient Dignity Question (PDQ) is a clinical tool developed with the aim of reinforcing the sense of personhood and dignity, enabling health care providers (HCPs) to see patients as people and not solely based on their illness. Objective: To study the acceptability and feasibility of the Portuguese version of the PDQ (PDQ-PT) in a sample of palliative care patients cared for in primary care (PC). Method: A cross-sectional study using 20 palliative patients cared for in a PC unit. A post-PDQ satisfaction questionnaire was developed. Results: Twenty participants were included, 75% were male; average age was 70 years old. Patients found the summary accurate, precise, and complete; all said that they would recommend the PDQ to others and want a copy of the summary placed on their family physician's medical chart. They felt the summary heightened their sense of dignity, considered it important that HCPs have access to the summary and indicated that this information could affect the way HCPs see and care for them. The PDQ-PT's took 7 min on average to answer, and 10 min to complete the summary. Significance of results: The PDQ-PT is well accepted and feasible to use with palliative patients in the context of PC and seems to be a promising tool to be implemented. Future trials are now warranted.
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spelling Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary carePatient Dignity Question: a cross-sectional study in palliative care patients cared for in primary careDignityPalliative CarePatient Dignity QuestionPersonhoodPrimary CareDignidadeDeterminantes da Saúde e da DoençaCuidados PaliativosInvestigação em Serviços de SaúdePortugalIntroduction: The Patient Dignity Question (PDQ) is a clinical tool developed with the aim of reinforcing the sense of personhood and dignity, enabling health care providers (HCPs) to see patients as people and not solely based on their illness. Objective: To study the acceptability and feasibility of the Portuguese version of the PDQ (PDQ-PT) in a sample of palliative care patients cared for in primary care (PC). Method: A cross-sectional study using 20 palliative patients cared for in a PC unit. A post-PDQ satisfaction questionnaire was developed. Results: Twenty participants were included, 75% were male; average age was 70 years old. Patients found the summary accurate, precise, and complete; all said that they would recommend the PDQ to others and want a copy of the summary placed on their family physician's medical chart. They felt the summary heightened their sense of dignity, considered it important that HCPs have access to the summary and indicated that this information could affect the way HCPs see and care for them. The PDQ-PT's took 7 min on average to answer, and 10 min to complete the summary. Significance of results: The PDQ-PT is well accepted and feasible to use with palliative patients in the context of PC and seems to be a promising tool to be implemented. Future trials are now warranted.Cambridge University PressRepositório Científico do Instituto Nacional de SaúdeLemos Caldas, MafaldaJulião, MiguelSantos, Ana JoãoChochinov, Harvey Max2020-122020-12-01T00:00:00Z2025-12-20T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.18/7359engPalliat Support Care. 2020 Dec;18(6):658-661. doi: 10.1017/S1478951520000164. Epub 2020 Mar 101478-951510.1017/S14789515200001641478-9523info:eu-repo/semantics/embargoedAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-07-20T15:41:57Zoai:repositorio.insa.pt:10400.18/7359Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T18:41:59.103881Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care
Patient Dignity Question: a cross-sectional study in palliative care patients cared for in primary care
title Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care
spellingShingle Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care
Lemos Caldas, Mafalda
Dignity
Palliative Care
Patient Dignity Question
Personhood
Primary Care
Dignidade
Determinantes da Saúde e da Doença
Cuidados Paliativos
Investigação em Serviços de Saúde
Portugal
title_short Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care
title_full Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care
title_fullStr Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care
title_full_unstemmed Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care
title_sort Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care
author Lemos Caldas, Mafalda
author_facet Lemos Caldas, Mafalda
Julião, Miguel
Santos, Ana João
Chochinov, Harvey Max
author_role author
author2 Julião, Miguel
Santos, Ana João
Chochinov, Harvey Max
author2_role author
author
author
dc.contributor.none.fl_str_mv Repositório Científico do Instituto Nacional de Saúde
dc.contributor.author.fl_str_mv Lemos Caldas, Mafalda
Julião, Miguel
Santos, Ana João
Chochinov, Harvey Max
dc.subject.por.fl_str_mv Dignity
Palliative Care
Patient Dignity Question
Personhood
Primary Care
Dignidade
Determinantes da Saúde e da Doença
Cuidados Paliativos
Investigação em Serviços de Saúde
Portugal
topic Dignity
Palliative Care
Patient Dignity Question
Personhood
Primary Care
Dignidade
Determinantes da Saúde e da Doença
Cuidados Paliativos
Investigação em Serviços de Saúde
Portugal
description Introduction: The Patient Dignity Question (PDQ) is a clinical tool developed with the aim of reinforcing the sense of personhood and dignity, enabling health care providers (HCPs) to see patients as people and not solely based on their illness. Objective: To study the acceptability and feasibility of the Portuguese version of the PDQ (PDQ-PT) in a sample of palliative care patients cared for in primary care (PC). Method: A cross-sectional study using 20 palliative patients cared for in a PC unit. A post-PDQ satisfaction questionnaire was developed. Results: Twenty participants were included, 75% were male; average age was 70 years old. Patients found the summary accurate, precise, and complete; all said that they would recommend the PDQ to others and want a copy of the summary placed on their family physician's medical chart. They felt the summary heightened their sense of dignity, considered it important that HCPs have access to the summary and indicated that this information could affect the way HCPs see and care for them. The PDQ-PT's took 7 min on average to answer, and 10 min to complete the summary. Significance of results: The PDQ-PT is well accepted and feasible to use with palliative patients in the context of PC and seems to be a promising tool to be implemented. Future trials are now warranted.
publishDate 2020
dc.date.none.fl_str_mv 2020-12
2020-12-01T00:00:00Z
2025-12-20T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10400.18/7359
url http://hdl.handle.net/10400.18/7359
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Palliat Support Care. 2020 Dec;18(6):658-661. doi: 10.1017/S1478951520000164. Epub 2020 Mar 10
1478-9515
10.1017/S1478951520000164
1478-9523
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dc.publisher.none.fl_str_mv Cambridge University Press
publisher.none.fl_str_mv Cambridge University Press
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
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reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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