What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care

Detalhes bibliográficos
Autor(a) principal: Aparicio, María
Data de Publicação: 2017
Outros Autores: Centeno, Carlos, Carrasco, José Miguel, Barbosa, António, Arantzamendi, María
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/54376
Resumo: © The Author(s). 2017 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
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spelling What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of careFamiliesHome-based palliative careOutcomesPalliativeQualitativeQuality of careRelationship© The Author(s). 2017 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.Background: Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers undergoing bereavement of a palliative care home service in order to identify factors of quality of care. Methods: Qualitative exploratory study based on documentary analysis. Content analysis of 77 gratitude documents received over 8 years by a palliative home service in Odivelas, near Lisbon (Portugal) was undertaken, through an inductive approach and using investigator triangulation. Frequency of distinct categories was quantitatively defined. Results: Three different content categories emerged from the analysis: a) Recognition of the care received and the value of particular aspects of care within recognised difficult situations included aspects such as kindness, listening, attention to the family, empathy, closeness, affection and the therapeutic relationships established (63/77 documents); b) Family recognition of the achievements of the palliative care team (29/77) indicated as relief from suffering for the patient and family, opportunity of dying at home, help in facing difficult situations, improvement in quality of life and wellbeing, and feeling of serenity during bereavement; c) Messages of support (45/77) related to the need of resources provided. The relational component emerges as an underlying key aspect of family carers' experience with palliative care home service. Conclusion: Family carers show spontaneous gratitude for the professionalism and humanity found in palliative care. The relational component of care emerges as key to achieve a high quality care experience of palliative care homes service, and could be one indicator of quality of palliative care.Springer NatureRepositório da Universidade de LisboaAparicio, MaríaCenteno, CarlosCarrasco, José MiguelBarbosa, AntónioArantzamendi, María2022-09-08T13:08:43Z20172017-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/54376engBMC Palliat Care. 2017 Sep 6;16(1):4710.1186/s12904-017-0229-51472-684Xinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T17:00:12Zoai:repositorio.ul.pt:10451/54376Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T22:04:55.103359Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care
title What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care
spellingShingle What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care
Aparicio, María
Families
Home-based palliative care
Outcomes
Palliative
Qualitative
Quality of care
Relationship
title_short What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care
title_full What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care
title_fullStr What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care
title_full_unstemmed What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care
title_sort What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care
author Aparicio, María
author_facet Aparicio, María
Centeno, Carlos
Carrasco, José Miguel
Barbosa, António
Arantzamendi, María
author_role author
author2 Centeno, Carlos
Carrasco, José Miguel
Barbosa, António
Arantzamendi, María
author2_role author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Aparicio, María
Centeno, Carlos
Carrasco, José Miguel
Barbosa, António
Arantzamendi, María
dc.subject.por.fl_str_mv Families
Home-based palliative care
Outcomes
Palliative
Qualitative
Quality of care
Relationship
topic Families
Home-based palliative care
Outcomes
Palliative
Qualitative
Quality of care
Relationship
description © The Author(s). 2017 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
publishDate 2017
dc.date.none.fl_str_mv 2017
2017-01-01T00:00:00Z
2022-09-08T13:08:43Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/54376
url http://hdl.handle.net/10451/54376
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv BMC Palliat Care. 2017 Sep 6;16(1):47
10.1186/s12904-017-0229-5
1472-684X
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Springer Nature
publisher.none.fl_str_mv Springer Nature
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reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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