Patient experience in home respiratory therapies : where we are and where to go

Detalhes bibliográficos
Autor(a) principal: Caneiras, Catia
Data de Publicação: 2019
Outros Autores: Jácome, Cristina, Mayoralas-Alises, Sagrario, Calvo, José Ramon, Fonseca, João Almeida, Escarrabill, Joan, Winck, João Carlos
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/37962
Resumo: © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
id RCAP_c05d5325e8cb895ebe0c813fdf73ed71
oai_identifier_str oai:repositorio.ul.pt:10451/37962
network_acronym_str RCAP
network_name_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository_id_str 7160
spelling Patient experience in home respiratory therapies : where we are and where to goLong-term oxygen therapyHome mechanical ventilationPatient-reported experience measuresQuality of careHealthcareSustainability© 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).The increasing number of patients receiving home respiratory therapy (HRT) is imposing a major impact on routine clinical care and healthcare system sustainability. The current challenge is to continue to guarantee access to HRT while maintaining the quality of care. The patient experience is a cornerstone of high-quality healthcare and an emergent area of clinical research. This review approaches the assessment of the patient experience in the context of HRT while highlighting the European contribution to this body of knowledge. This review demonstrates that research in this area is still limited, with no example of a prescription model that incorporates the patient experience as an outcome and no specific patient-reported experience measures (PREMs) available. This work also shows that Europe is leading the research on HRT provision. The development of a specific PREM and the integration of PREMs into the assessment of prescription models should be clinical research priorities in the next several years.C.J. has a post-doctoral grant (SFRH/BPD/115169/2016) funded by Fundação para a Ciência e a Tecnologia (FCT), co-financed by the European Social Fund (POCH) and Portuguese national funds from MCTES (Ministério da Ciência, Tecnologia e Ensino Superior).MDPIRepositório da Universidade de LisboaCaneiras, CatiaJácome, CristinaMayoralas-Alises, SagrarioCalvo, José RamonFonseca, João AlmeidaEscarrabill, JoanWinck, João Carlos2019-04-24T14:03:01Z2019-042019-04-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/37962engJ. Clin. Med. 2019, 8, 5552077-038310.3390/jcm8040555info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:35:27Zoai:repositorio.ul.pt:10451/37962Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:51:55.395828Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Patient experience in home respiratory therapies : where we are and where to go
title Patient experience in home respiratory therapies : where we are and where to go
spellingShingle Patient experience in home respiratory therapies : where we are and where to go
Caneiras, Catia
Long-term oxygen therapy
Home mechanical ventilation
Patient-reported experience measures
Quality of care
Healthcare
Sustainability
title_short Patient experience in home respiratory therapies : where we are and where to go
title_full Patient experience in home respiratory therapies : where we are and where to go
title_fullStr Patient experience in home respiratory therapies : where we are and where to go
title_full_unstemmed Patient experience in home respiratory therapies : where we are and where to go
title_sort Patient experience in home respiratory therapies : where we are and where to go
author Caneiras, Catia
author_facet Caneiras, Catia
Jácome, Cristina
Mayoralas-Alises, Sagrario
Calvo, José Ramon
Fonseca, João Almeida
Escarrabill, Joan
Winck, João Carlos
author_role author
author2 Jácome, Cristina
Mayoralas-Alises, Sagrario
Calvo, José Ramon
Fonseca, João Almeida
Escarrabill, Joan
Winck, João Carlos
author2_role author
author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Caneiras, Catia
Jácome, Cristina
Mayoralas-Alises, Sagrario
Calvo, José Ramon
Fonseca, João Almeida
Escarrabill, Joan
Winck, João Carlos
dc.subject.por.fl_str_mv Long-term oxygen therapy
Home mechanical ventilation
Patient-reported experience measures
Quality of care
Healthcare
Sustainability
topic Long-term oxygen therapy
Home mechanical ventilation
Patient-reported experience measures
Quality of care
Healthcare
Sustainability
description © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
publishDate 2019
dc.date.none.fl_str_mv 2019-04-24T14:03:01Z
2019-04
2019-04-01T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/37962
url http://hdl.handle.net/10451/37962
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv J. Clin. Med. 2019, 8, 555
2077-0383
10.3390/jcm8040555
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv MDPI
publisher.none.fl_str_mv MDPI
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
_version_ 1799134455772741632

Registros relacionados