Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go

• Autor(a) principal: Caneiras, C
• Data de Publicação: 2019
• Outros Autores: Jácome, C, Mayoralas-Alises, S, Ramon Calvo, JA, Almeida Fonseca, J, Escarrabill, J, Winck, JC
• Tipo de documento: Artigo
• Idioma: eng
• Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
• Texto Completo: http://hdl.handle.net/10400.26/28428
• topic: Serviços Hospitalares de Assistência Domiciliar; Oxigenoterapia; Oxygen Inhalation Therapy; Home Care Services, Hospital-Based

The increasing number of patients receiving home respiratory therapy (HRT) is imposing a major impact on routine clinical care and healthcare system sustainability. The current challenge is to continue to guarantee access to HRT while maintaining the quality of care. The patient experience is a cornerstone of high-quality healthcare and an emergent area of clinical research. This review approaches the assessment of the patient experience in the context of HRT while highlighting the European contribution to this body of knowledge. This review demonstrates that research in this area is still limited, with no example of a prescription model that incorporates the patient experience as an outcome and no specific patient-reported experience measures (PREMs) available. This work also shows that Europe is leading the research on HRT provision. The development of a specific PREM and the integration of PREMs into the assessment of prescription models should be clinical research priorities in the next several years.