Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer Patients
Autor(a) principal: | |
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Data de Publicação: | 2019 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911 |
Resumo: | Palliative care in oncology is an interdisciplinary approach, centered on patients and their families, carried out along the course of neoplastic diseases, based on symptom control, assertive communication and shared decision-making. Although clinical guidelines recommend a holistic intervention, early integration of palliative care into traditional oncological treatment, research shows a great delay in referral of patients, restricting palliative care to end-of-life care. Why does there seem to be a rationing of the early referral, sometimes in violation of human dignity? To a large extent it has to do with lack of knowledge, training and education of health professionals about palliative care and the techniques to deal with the process of death and dying. Several studies have demonstrated the benefit of integrating palliative actions into the routine of active cancer treatments, not only in terms of effective control of physical and psychological symptoms, but also in terms of overall quality of life, patient and family satisfaction, health care costs and survival in some cases. It is necessary to take measures that encourage oncologists to obtain further training in palliative care, as a formal, compulsory internship, integrated in their specific training program. This way, a new generation of physicians will surely change the lives of cancer patients, and their families, integrating — without disproportionate rationing — oncology and palliative medicine. |
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Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer PatientsReferenciação Precoce para Cuidados Paliativos: O Racionamento dos Cuidados Eficientes de Saúde em Doentes OncológicosDelivery of Health CareIntegratedPalliative CarePatient Care TeamReferral and ConsultationTerminal CareCuidados PaliativosCuidados TerminaisEncaminhamento e ConsultaEquipa de Assistência ao DoentePrestação Integrada de Cuidados de SaúdePalliative care in oncology is an interdisciplinary approach, centered on patients and their families, carried out along the course of neoplastic diseases, based on symptom control, assertive communication and shared decision-making. Although clinical guidelines recommend a holistic intervention, early integration of palliative care into traditional oncological treatment, research shows a great delay in referral of patients, restricting palliative care to end-of-life care. Why does there seem to be a rationing of the early referral, sometimes in violation of human dignity? To a large extent it has to do with lack of knowledge, training and education of health professionals about palliative care and the techniques to deal with the process of death and dying. Several studies have demonstrated the benefit of integrating palliative actions into the routine of active cancer treatments, not only in terms of effective control of physical and psychological symptoms, but also in terms of overall quality of life, patient and family satisfaction, health care costs and survival in some cases. It is necessary to take measures that encourage oncologists to obtain further training in palliative care, as a formal, compulsory internship, integrated in their specific training program. This way, a new generation of physicians will surely change the lives of cancer patients, and their families, integrating — without disproportionate rationing — oncology and palliative medicine.Os cuidados paliativos oncológicos constituem uma abordagem interdisciplinar, centralizada no doente e nas suas famílias, realizada ao longo da trajetória das doenças neoplásicas, alicerçada no controlo de sintomas, na comunicação assertiva e na tomada de decisão compartilhada. Apesar de as normas de orientação clínica aconselharem uma intervenção holística, integrando precocemente os cuidados paliativos no tratamento oncológico tradicional, a investigação demonstra um grande atraso na referenciação dos doentes, restringindo os cuidados paliativos no fim de vida. Por que razão parece existir um racionamento da referenciação precoce, atentatório da dignidade humana? Em grande parte, é por falta de conhecimento, treino e educação dos profissionais de saúde sobre os cuidados paliativos e as técnicas para lidar com o processo de morrer e a morte. Vários estudos demonstram o benefício da integração de ações paliativas na rotina dos tratamentos oncológicos ativos, não só a nível do controlo eficaz de sintomas físicos e psicológicos, mas a nível da qualidade de vida global, da satisfação do doente e da família, dos custos dos cuidados de saúde e também da sobrevida, em alguns casos. É necessário tomar medidas que encorajem o oncologista a obter mais formação em cuidados paliativos, como um estágio formal, obrigatório, integrado no seu internato de formação específica. Deste modo, uma nova geração de médicos mudará seguramente a vida dos doentes com cancro, e suas famílias, integrando — sem racionamento desproporcionado — oncologia e medicina paliativa.Ordem dos Médicos2019-08-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfapplication/pdfapplication/vnd.openxmlformats-officedocument.wordprocessingml.documentapplication/pdfhttps://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911oai:ojs.www.actamedicaportuguesa.com:article/11911Acta Médica Portuguesa; Vol. 32 No. 7-8 (2019): July-August; 475-476Acta Médica Portuguesa; Vol. 32 N.º 7-8 (2019): Julho-Agosto; 475-4761646-07580870-399Xreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporhttps://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911/5726https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911/11179https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911/11284https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911/11307Direitos de Autor (c) 2019 Acta Médica Portuguesainfo:eu-repo/semantics/openAccessReis-Pina, Paulodos Santos, Rita Gameiro2022-12-20T11:06:26Zoai:ojs.www.actamedicaportuguesa.com:article/11911Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T16:20:06.231549Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer Patients Referenciação Precoce para Cuidados Paliativos: O Racionamento dos Cuidados Eficientes de Saúde em Doentes Oncológicos |
title |
Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer Patients |
spellingShingle |
Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer Patients Reis-Pina, Paulo Delivery of Health Care Integrated Palliative Care Patient Care Team Referral and Consultation Terminal Care Cuidados Paliativos Cuidados Terminais Encaminhamento e Consulta Equipa de Assistência ao Doente Prestação Integrada de Cuidados de Saúde |
title_short |
Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer Patients |
title_full |
Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer Patients |
title_fullStr |
Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer Patients |
title_full_unstemmed |
Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer Patients |
title_sort |
Early Referral to Palliative Care: The Rationing of Timely Health Care for Cancer Patients |
author |
Reis-Pina, Paulo |
author_facet |
Reis-Pina, Paulo dos Santos, Rita Gameiro |
author_role |
author |
author2 |
dos Santos, Rita Gameiro |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Reis-Pina, Paulo dos Santos, Rita Gameiro |
dc.subject.por.fl_str_mv |
Delivery of Health Care Integrated Palliative Care Patient Care Team Referral and Consultation Terminal Care Cuidados Paliativos Cuidados Terminais Encaminhamento e Consulta Equipa de Assistência ao Doente Prestação Integrada de Cuidados de Saúde |
topic |
Delivery of Health Care Integrated Palliative Care Patient Care Team Referral and Consultation Terminal Care Cuidados Paliativos Cuidados Terminais Encaminhamento e Consulta Equipa de Assistência ao Doente Prestação Integrada de Cuidados de Saúde |
description |
Palliative care in oncology is an interdisciplinary approach, centered on patients and their families, carried out along the course of neoplastic diseases, based on symptom control, assertive communication and shared decision-making. Although clinical guidelines recommend a holistic intervention, early integration of palliative care into traditional oncological treatment, research shows a great delay in referral of patients, restricting palliative care to end-of-life care. Why does there seem to be a rationing of the early referral, sometimes in violation of human dignity? To a large extent it has to do with lack of knowledge, training and education of health professionals about palliative care and the techniques to deal with the process of death and dying. Several studies have demonstrated the benefit of integrating palliative actions into the routine of active cancer treatments, not only in terms of effective control of physical and psychological symptoms, but also in terms of overall quality of life, patient and family satisfaction, health care costs and survival in some cases. It is necessary to take measures that encourage oncologists to obtain further training in palliative care, as a formal, compulsory internship, integrated in their specific training program. This way, a new generation of physicians will surely change the lives of cancer patients, and their families, integrating — without disproportionate rationing — oncology and palliative medicine. |
publishDate |
2019 |
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2019-08-01 |
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info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911 oai:ojs.www.actamedicaportuguesa.com:article/11911 |
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https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911 |
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oai:ojs.www.actamedicaportuguesa.com:article/11911 |
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por |
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https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911/5726 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911/11179 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911/11284 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/11911/11307 |
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Direitos de Autor (c) 2019 Acta Médica Portuguesa info:eu-repo/semantics/openAccess |
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Direitos de Autor (c) 2019 Acta Médica Portuguesa |
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Ordem dos Médicos |
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Ordem dos Médicos |
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Acta Médica Portuguesa; Vol. 32 No. 7-8 (2019): July-August; 475-476 Acta Médica Portuguesa; Vol. 32 N.º 7-8 (2019): Julho-Agosto; 475-476 1646-0758 0870-399X reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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