Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of life

Detalhes bibliográficos
Autor(a) principal: P. Areia, Neide
Data de Publicação: 2017
Outros Autores: Major, Sofia, Gaspar, Catarina, Relvas, Ana Paula
Tipo de documento: Artigo
Idioma: por
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: https://doi.org/10.14195/1647-8606_60-2_2
Resumo: Terminal cancer has a profound impact on family and its’ elements. Therefore, palliative care foresees a family support. However, there are not many studies that aim to determine the family needs within palliative care. The present study aims to determine family needs, psychological morbidity and anticipatory grief of terminal patients’ relatives, distinguishing two care contexts (hospice and home care), and examine the influence of unmet needs, anticipatory grief, psychological morbidity and care setting on the perceived family quality of life. For such, an exploratory study was conducted with a sample of 40 terminal cancer patients’ relatives in palliative care. It was found that psychosocial needs are lesser satisfied in home-based palliative care. Regardless the context of care, patients’ relatives report clinically significant levels of psychological morbidity and anticipatory grief with impact on family perceived quality of life. Unmet needs, psychological morbidity and anticipatory grief seem to influence on the perceived family quality of life. This study demonstrates the importance of attending patients’ relatives in palliative care, in a holistic and multidisciplinary approach.
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spelling Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of lifeCuidados paliativos oncológicos em contexto de internamento e domiciliário: Necessidades, morbilidade psicológica e luto antecipatório nos familiares do doente terminal e impacto na qualidade de vida familiarterminal cancerpalliative carefamilyneedspsychological morbidityanticipatory griefdoença oncológica terminalcuidados paliativosfamílianecessidadesmorbilidade psicológicaluto antecipatórioTerminal cancer has a profound impact on family and its’ elements. Therefore, palliative care foresees a family support. However, there are not many studies that aim to determine the family needs within palliative care. The present study aims to determine family needs, psychological morbidity and anticipatory grief of terminal patients’ relatives, distinguishing two care contexts (hospice and home care), and examine the influence of unmet needs, anticipatory grief, psychological morbidity and care setting on the perceived family quality of life. For such, an exploratory study was conducted with a sample of 40 terminal cancer patients’ relatives in palliative care. It was found that psychosocial needs are lesser satisfied in home-based palliative care. Regardless the context of care, patients’ relatives report clinically significant levels of psychological morbidity and anticipatory grief with impact on family perceived quality of life. Unmet needs, psychological morbidity and anticipatory grief seem to influence on the perceived family quality of life. This study demonstrates the importance of attending patients’ relatives in palliative care, in a holistic and multidisciplinary approach.A doença oncológica na fase terminal tem um importante impacto na família e seus elementos. Por este motivo, os cuidados paliativos pressupõem o suporte à família. No entanto, são escassos os estudos que visam determinar as necessidades das famílias em cuidados paliativos. O presente estudo teve como objetivos determinar quais as necessidades dos familiares dos doentes terminais, a presença de morbilidade psicológica e experiência de luto antecipatório, distinguindo dois contextos de prestação de cuidados (internamento e domicílio), e examinar a influência de uma satisfação inadequada das necessidades, luto antecipatório e contexto de prestação de cuidados na perceção de qualidade de vida familiar. Para tal, procedeu-se a um estudo exploratório junto de uma amostra de 40 familiares de doentes oncológicos terminais em cuidados paliativos. Verificou-se que as necessidades de suporte psicossocial são menos satisfeitas em contexto de cuidados domiciliários. Independentemente do contexto de prestação de cuidados, os familiares apresentam níveis clinicamente significativos de morbilidade psicológica e luto antecipatório com impacto na perceção da qualidade de vida familiar. A satisfação inadequada das necessidades, a presença de morbilidade psicológica e a experiência de luto antecipatório influenciam a perceção de qualidade de vida familiar. Este estudo vem demonstrar a importância de atender às necessidades dos familiares em cuidados paliativos, numa perspetiva holística e multidisciplinar.Imprensa da Universidade de Coimbra2017-12-13info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.14195/1647-8606_60-2_2https://doi.org/10.14195/1647-8606_60-2_2Psychologica; Vol. 60 No. 2 (2017); 27-44Psychologica; Vol. 60 N.º 2 (2017); 27-441647-86060871-465710.14195/1647-8606_60-2reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporhttps://impactum-journals.uc.pt/psychologica/article/view/1647-8606_60-2_2https://impactum-journals.uc.pt/psychologica/article/view/1647-8606_60-2_2/3903P. Areia, NeideMajor, SofiaGaspar, CatarinaRelvas, Ana Paulainfo:eu-repo/semantics/openAccess2023-05-31T13:59:37Zoai:impactum-journals.uc.pt:article/4843Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T17:58:16.961200Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of life
Cuidados paliativos oncológicos em contexto de internamento e domiciliário: Necessidades, morbilidade psicológica e luto antecipatório nos familiares do doente terminal e impacto na qualidade de vida familiar
title Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of life
spellingShingle Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of life
P. Areia, Neide
terminal cancer
palliative care
family
needs
psychological morbidity
anticipatory grief
doença oncológica terminal
cuidados paliativos
família
necessidades
morbilidade psicológica
luto antecipatório
title_short Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of life
title_full Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of life
title_fullStr Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of life
title_full_unstemmed Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of life
title_sort Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient’s relatives and impact on family quality of life
author P. Areia, Neide
author_facet P. Areia, Neide
Major, Sofia
Gaspar, Catarina
Relvas, Ana Paula
author_role author
author2 Major, Sofia
Gaspar, Catarina
Relvas, Ana Paula
author2_role author
author
author
dc.contributor.author.fl_str_mv P. Areia, Neide
Major, Sofia
Gaspar, Catarina
Relvas, Ana Paula
dc.subject.por.fl_str_mv terminal cancer
palliative care
family
needs
psychological morbidity
anticipatory grief
doença oncológica terminal
cuidados paliativos
família
necessidades
morbilidade psicológica
luto antecipatório
topic terminal cancer
palliative care
family
needs
psychological morbidity
anticipatory grief
doença oncológica terminal
cuidados paliativos
família
necessidades
morbilidade psicológica
luto antecipatório
description Terminal cancer has a profound impact on family and its’ elements. Therefore, palliative care foresees a family support. However, there are not many studies that aim to determine the family needs within palliative care. The present study aims to determine family needs, psychological morbidity and anticipatory grief of terminal patients’ relatives, distinguishing two care contexts (hospice and home care), and examine the influence of unmet needs, anticipatory grief, psychological morbidity and care setting on the perceived family quality of life. For such, an exploratory study was conducted with a sample of 40 terminal cancer patients’ relatives in palliative care. It was found that psychosocial needs are lesser satisfied in home-based palliative care. Regardless the context of care, patients’ relatives report clinically significant levels of psychological morbidity and anticipatory grief with impact on family perceived quality of life. Unmet needs, psychological morbidity and anticipatory grief seem to influence on the perceived family quality of life. This study demonstrates the importance of attending patients’ relatives in palliative care, in a holistic and multidisciplinary approach.
publishDate 2017
dc.date.none.fl_str_mv 2017-12-13
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://doi.org/10.14195/1647-8606_60-2_2
https://doi.org/10.14195/1647-8606_60-2_2
url https://doi.org/10.14195/1647-8606_60-2_2
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://impactum-journals.uc.pt/psychologica/article/view/1647-8606_60-2_2
https://impactum-journals.uc.pt/psychologica/article/view/1647-8606_60-2_2/3903
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Imprensa da Universidade de Coimbra
publisher.none.fl_str_mv Imprensa da Universidade de Coimbra
dc.source.none.fl_str_mv Psychologica; Vol. 60 No. 2 (2017); 27-44
Psychologica; Vol. 60 N.º 2 (2017); 27-44
1647-8606
0871-4657
10.14195/1647-8606_60-2
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
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