“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2022 |
| Outros Autores: | , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| Texto Completo: | http://hdl.handle.net/10400.8/8596 |
Resumo: | Funding: This work is funded by national funds through FCT—Fundação para a Ciência e a Tecnologia, I.P. (UIDB/05704/2020 and UIDP/05704/2020), CCISP-HES.SO Collaborative Research, and under the Scientific Employment Stimulus-Institutional Call—[CEECINST/00051/2018]. |
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“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family DyadsHopePalliative careEnd-of-lifeFamily dyadsPortugalFunding: This work is funded by national funds through FCT—Fundação para a Ciência e a Tecnologia, I.P. (UIDB/05704/2020 and UIDP/05704/2020), CCISP-HES.SO Collaborative Research, and under the Scientific Employment Stimulus-Institutional Call—[CEECINST/00051/2018].Abstract: Hope performs an important role in how patients and their families cope with suffering and stressful events. To better inform practice and theory on hope, palliative care research should include both patients and their family carers, given their strong interdependence. The aim of this study was to explore how hope is experienced in dyads formed by end-of-life patients and their family carers. In this qualitative study, data were collected by in-depth interviews with seven Portuguese family dyads. Analysis followed a thematic analysis approach. The analysis of the interviews shed light on the importance of hope for all participants, and the challenges involved. Family dyads noted several barriers and facilitators to perceptions of hope. Barriers to hope included limitations imposed by illness, feelings of anguish and helplessness, and poor communication with clinicians. Hope facilitators included supportive others, positive thinking and sense of humour, connection with nature, faith in religion and science, and a sense of compassion with others and altruism. Given the multidimensional scope of hope, the main challenge for family dyads is to look beyond the disease itself. Thus, palliative care teams should be encouraged to support and foster realistic hope, helping families prepare for death, in the context of advanced cancer.MDPIIC-OnlineLaranjeira, CarlosDixe, Maria dos AnjosSemeão, IsabelRijo, SaraFaria, CatarinaQuerido, Ana2023-06-14T16:05:49Z2022-01-292022-01-29T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.8/8596engLaranjeira, C.; Dixe, M.A.; Semeão, I.; Rijo, S.; Faria, C.; Querido, A. “Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads. Int. J. Environ. Res. Public Health 2022, 19, 1561. https://doi.org/10.3390/ ijerph190315611661-78271561https://doi.org/10.3390/ijerph190315611660-4601info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-01-17T15:57:41Zoai:iconline.ipleiria.pt:10400.8/8596Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T01:51:17.208864Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
| dc.title.none.fl_str_mv |
“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads |
| title |
“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads |
| spellingShingle |
“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads Laranjeira, Carlos Hope Palliative care End-of-life Family dyads Portugal |
| title_short |
“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads |
| title_full |
“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads |
| title_fullStr |
“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads |
| title_full_unstemmed |
“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads |
| title_sort |
“Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads |
| author |
Laranjeira, Carlos |
| author_facet |
Laranjeira, Carlos Dixe, Maria dos Anjos Semeão, Isabel Rijo, Sara Faria, Catarina Querido, Ana |
| author_role |
author |
| author2 |
Dixe, Maria dos Anjos Semeão, Isabel Rijo, Sara Faria, Catarina Querido, Ana |
| author2_role |
author author author author author |
| dc.contributor.none.fl_str_mv |
IC-Online |
| dc.contributor.author.fl_str_mv |
Laranjeira, Carlos Dixe, Maria dos Anjos Semeão, Isabel Rijo, Sara Faria, Catarina Querido, Ana |
| dc.subject.por.fl_str_mv |
Hope Palliative care End-of-life Family dyads Portugal |
| topic |
Hope Palliative care End-of-life Family dyads Portugal |
| description |
Funding: This work is funded by national funds through FCT—Fundação para a Ciência e a Tecnologia, I.P. (UIDB/05704/2020 and UIDP/05704/2020), CCISP-HES.SO Collaborative Research, and under the Scientific Employment Stimulus-Institutional Call—[CEECINST/00051/2018]. |
| publishDate |
2022 |
| dc.date.none.fl_str_mv |
2022-01-29 2022-01-29T00:00:00Z 2023-06-14T16:05:49Z |
| dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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article |
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publishedVersion |
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http://hdl.handle.net/10400.8/8596 |
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http://hdl.handle.net/10400.8/8596 |
| dc.language.iso.fl_str_mv |
eng |
| language |
eng |
| dc.relation.none.fl_str_mv |
Laranjeira, C.; Dixe, M.A.; Semeão, I.; Rijo, S.; Faria, C.; Querido, A. “Keeping the Light On”: A Qualitative Study on Hope Perceptions at the End of Life in Portuguese Family Dyads. Int. J. Environ. Res. Public Health 2022, 19, 1561. https://doi.org/10.3390/ ijerph19031561 1661-7827 1561 https://doi.org/10.3390/ijerph19031561 1660-4601 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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MDPI |
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MDPI |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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