What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10362/109430 |
Resumo: | Background: Governments are being challenged to integrate at least part of dementia care into primary care. However, little is known about the current role of general practitioners (GPs) regarding dementia care, especially in countries that do not have dementia strategies in place. The aim of this study was to explore the experiences of GPs, persons with dementia and their family carers in Portuguese primary care settings, to better understand GPs’ contribution to dementia care. Methods: A qualitative interview study of participants recruited from six practices in different social contexts within the Lisbon metropolitan area was carried out. Purposive sampling was used to recruit GPs, persons with dementia and carers. Interviews with GPs explored dementia care comprehensiveness, including satisfactory and challenging aspects. Interviews with patients and carers explored the experience of talking to GPs about cognitive impairments and related difficulties and the type of help received. Thematic analysis of interview transcripts was carried out using the framework approach. Results: Five major themes were identified: GPs have a limited contribution to dementia care, the case of advanced dementia, doctor–patient relationships, doctor–carer relationships and management of chronic conditions other than dementia. Conclusion: General practitioners seemed to contribute little to dementia care overall, particularly regarding symptom management. The exception was patients with advanced stages of dementia, given that specialists no longer followed them up. Remarkably, GPs seemed to be alone within primary care teams in providing dementia care. These findings strongly suggest that Portuguese primary care is not yet prepared to comply with policy expectations regarding the management of dementia. |
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What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugalcaregivercarerdementiafamily physiciangeneral practitionerhealth policyhealth servicesprimary carequalitative methodsthematic analysisSociology and Political ScienceSocial Sciences(all)SDG 3 - Good Health and Well-beingBackground: Governments are being challenged to integrate at least part of dementia care into primary care. However, little is known about the current role of general practitioners (GPs) regarding dementia care, especially in countries that do not have dementia strategies in place. The aim of this study was to explore the experiences of GPs, persons with dementia and their family carers in Portuguese primary care settings, to better understand GPs’ contribution to dementia care. Methods: A qualitative interview study of participants recruited from six practices in different social contexts within the Lisbon metropolitan area was carried out. Purposive sampling was used to recruit GPs, persons with dementia and carers. Interviews with GPs explored dementia care comprehensiveness, including satisfactory and challenging aspects. Interviews with patients and carers explored the experience of talking to GPs about cognitive impairments and related difficulties and the type of help received. Thematic analysis of interview transcripts was carried out using the framework approach. Results: Five major themes were identified: GPs have a limited contribution to dementia care, the case of advanced dementia, doctor–patient relationships, doctor–carer relationships and management of chronic conditions other than dementia. Conclusion: General practitioners seemed to contribute little to dementia care overall, particularly regarding symptom management. The exception was patients with advanced stages of dementia, given that specialists no longer followed them up. Remarkably, GPs seemed to be alone within primary care teams in providing dementia care. These findings strongly suggest that Portuguese primary care is not yet prepared to comply with policy expectations regarding the management of dementia.Comprehensive Health Research Centre (CHRC) - pólo NMSNOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)Escola Nacional de Saúde Pública (ENSP)Comprehensive Health Research Centre (CHRC) - Pólo ENSPCentro de Investigação em Saúde Pública (CISP/PHRC)RUNBalsinha, ConceiçãoIliffe, SteveDias, SóniaFreitas, AlexandreGrave, JoanaGonçalves-Pereira, Manuel2020-12-29T00:03:43Z2021-082021-08-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10362/109430eng1471-3012PURE: 27074269https://doi.org/10.1177/1471301220977710info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T04:53:47Zoai:run.unl.pt:10362/109430Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:41:27.106721Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal |
title |
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal |
spellingShingle |
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal Balsinha, Conceição caregiver carer dementia family physician general practitioner health policy health services primary care qualitative methods thematic analysis Sociology and Political Science Social Sciences(all) SDG 3 - Good Health and Well-being |
title_short |
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal |
title_full |
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal |
title_fullStr |
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal |
title_full_unstemmed |
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal |
title_sort |
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal |
author |
Balsinha, Conceição |
author_facet |
Balsinha, Conceição Iliffe, Steve Dias, Sónia Freitas, Alexandre Grave, Joana Gonçalves-Pereira, Manuel |
author_role |
author |
author2 |
Iliffe, Steve Dias, Sónia Freitas, Alexandre Grave, Joana Gonçalves-Pereira, Manuel |
author2_role |
author author author author author |
dc.contributor.none.fl_str_mv |
Comprehensive Health Research Centre (CHRC) - pólo NMS NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM) Escola Nacional de Saúde Pública (ENSP) Comprehensive Health Research Centre (CHRC) - Pólo ENSP Centro de Investigação em Saúde Pública (CISP/PHRC) RUN |
dc.contributor.author.fl_str_mv |
Balsinha, Conceição Iliffe, Steve Dias, Sónia Freitas, Alexandre Grave, Joana Gonçalves-Pereira, Manuel |
dc.subject.por.fl_str_mv |
caregiver carer dementia family physician general practitioner health policy health services primary care qualitative methods thematic analysis Sociology and Political Science Social Sciences(all) SDG 3 - Good Health and Well-being |
topic |
caregiver carer dementia family physician general practitioner health policy health services primary care qualitative methods thematic analysis Sociology and Political Science Social Sciences(all) SDG 3 - Good Health and Well-being |
description |
Background: Governments are being challenged to integrate at least part of dementia care into primary care. However, little is known about the current role of general practitioners (GPs) regarding dementia care, especially in countries that do not have dementia strategies in place. The aim of this study was to explore the experiences of GPs, persons with dementia and their family carers in Portuguese primary care settings, to better understand GPs’ contribution to dementia care. Methods: A qualitative interview study of participants recruited from six practices in different social contexts within the Lisbon metropolitan area was carried out. Purposive sampling was used to recruit GPs, persons with dementia and carers. Interviews with GPs explored dementia care comprehensiveness, including satisfactory and challenging aspects. Interviews with patients and carers explored the experience of talking to GPs about cognitive impairments and related difficulties and the type of help received. Thematic analysis of interview transcripts was carried out using the framework approach. Results: Five major themes were identified: GPs have a limited contribution to dementia care, the case of advanced dementia, doctor–patient relationships, doctor–carer relationships and management of chronic conditions other than dementia. Conclusion: General practitioners seemed to contribute little to dementia care overall, particularly regarding symptom management. The exception was patients with advanced stages of dementia, given that specialists no longer followed them up. Remarkably, GPs seemed to be alone within primary care teams in providing dementia care. These findings strongly suggest that Portuguese primary care is not yet prepared to comply with policy expectations regarding the management of dementia. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-12-29T00:03:43Z 2021-08 2021-08-01T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
format |
article |
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publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10362/109430 |
url |
http://hdl.handle.net/10362/109430 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
1471-3012 PURE: 27074269 https://doi.org/10.1177/1471301220977710 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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