Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study
Autor(a) principal: | |
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Data de Publicação: | 2016 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.26/23085 |
Resumo: | This study explores illness representations within Familial Amyloidotic Polyneuropathy Portuguese Association newspaper. A content analysis was performed of the issue data using provisional coding related to the conceptual framework of the study. All dimensions of illness representation in Leventhal’s Common Sense Model of illness cognitions and behaviors are present in the data and reflect the experience of living with this disease. Understanding how a person living with an hereditary, rare, neurodegenerative illness is important for developing community nursing interventions. In conclusion, we suggest an integration of common sense knowledge with other approaches for designing an intervention program centered on people living with an hereditary neurodegenerative illness, such as familial amyloidotic polyneuropathy. |
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7160 |
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Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental studydocumental studyfamilial amyloidotic polyneuropathyhereditary diseaseillness representationPortugalThis study explores illness representations within Familial Amyloidotic Polyneuropathy Portuguese Association newspaper. A content analysis was performed of the issue data using provisional coding related to the conceptual framework of the study. All dimensions of illness representation in Leventhal’s Common Sense Model of illness cognitions and behaviors are present in the data and reflect the experience of living with this disease. Understanding how a person living with an hereditary, rare, neurodegenerative illness is important for developing community nursing interventions. In conclusion, we suggest an integration of common sense knowledge with other approaches for designing an intervention program centered on people living with an hereditary neurodegenerative illness, such as familial amyloidotic polyneuropathy.Repositório ComumNovais, SóniaMendes, Felismina Rosa Parreira2018-06-12T09:36:50Z2016-01-01T00:00:00Z2016-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.26/23085engdoi: 10.1111/nhs.12240info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2022-09-21T12:22:59Zoai:comum.rcaap.pt:10400.26/23085Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T15:56:04.091460Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study |
title |
Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study |
spellingShingle |
Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study Novais, Sónia documental study familial amyloidotic polyneuropathy hereditary disease illness representation Portugal |
title_short |
Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study |
title_full |
Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study |
title_fullStr |
Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study |
title_full_unstemmed |
Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study |
title_sort |
Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study |
author |
Novais, Sónia |
author_facet |
Novais, Sónia Mendes, Felismina Rosa Parreira |
author_role |
author |
author2 |
Mendes, Felismina Rosa Parreira |
author2_role |
author |
dc.contributor.none.fl_str_mv |
Repositório Comum |
dc.contributor.author.fl_str_mv |
Novais, Sónia Mendes, Felismina Rosa Parreira |
dc.subject.por.fl_str_mv |
documental study familial amyloidotic polyneuropathy hereditary disease illness representation Portugal |
topic |
documental study familial amyloidotic polyneuropathy hereditary disease illness representation Portugal |
description |
This study explores illness representations within Familial Amyloidotic Polyneuropathy Portuguese Association newspaper. A content analysis was performed of the issue data using provisional coding related to the conceptual framework of the study. All dimensions of illness representation in Leventhal’s Common Sense Model of illness cognitions and behaviors are present in the data and reflect the experience of living with this disease. Understanding how a person living with an hereditary, rare, neurodegenerative illness is important for developing community nursing interventions. In conclusion, we suggest an integration of common sense knowledge with other approaches for designing an intervention program centered on people living with an hereditary neurodegenerative illness, such as familial amyloidotic polyneuropathy. |
publishDate |
2016 |
dc.date.none.fl_str_mv |
2016-01-01T00:00:00Z 2016-01-01T00:00:00Z 2018-06-12T09:36:50Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.26/23085 |
url |
http://hdl.handle.net/10400.26/23085 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
doi: 10.1111/nhs.12240 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
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1799130429638311936 |