Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study

Detalhes bibliográficos
Autor(a) principal: Novais, Sónia
Data de Publicação: 2016
Outros Autores: Mendes, Felismina Rosa Parreira
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.26/23085
Resumo: This study explores illness representations within Familial Amyloidotic Polyneuropathy Portuguese Association newspaper. A content analysis was performed of the issue data using provisional coding related to the conceptual framework of the study. All dimensions of illness representation in Leventhal’s Common Sense Model of illness cognitions and behaviors are present in the data and reflect the experience of living with this disease. Understanding how a person living with an hereditary, rare, neurodegenerative illness is important for developing community nursing interventions. In conclusion, we suggest an integration of common sense knowledge with other approaches for designing an intervention program centered on people living with an hereditary neurodegenerative illness, such as familial amyloidotic polyneuropathy.
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spelling Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental studydocumental studyfamilial amyloidotic polyneuropathyhereditary diseaseillness representationPortugalThis study explores illness representations within Familial Amyloidotic Polyneuropathy Portuguese Association newspaper. A content analysis was performed of the issue data using provisional coding related to the conceptual framework of the study. All dimensions of illness representation in Leventhal’s Common Sense Model of illness cognitions and behaviors are present in the data and reflect the experience of living with this disease. Understanding how a person living with an hereditary, rare, neurodegenerative illness is important for developing community nursing interventions. In conclusion, we suggest an integration of common sense knowledge with other approaches for designing an intervention program centered on people living with an hereditary neurodegenerative illness, such as familial amyloidotic polyneuropathy.Repositório ComumNovais, SóniaMendes, Felismina Rosa Parreira2018-06-12T09:36:50Z2016-01-01T00:00:00Z2016-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.26/23085engdoi: 10.1111/nhs.12240info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2022-09-21T12:22:59Zoai:comum.rcaap.pt:10400.26/23085Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T15:56:04.091460Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study
title Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study
spellingShingle Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study
Novais, Sónia
documental study
familial amyloidotic polyneuropathy
hereditary disease
illness representation
Portugal
title_short Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study
title_full Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study
title_fullStr Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study
title_full_unstemmed Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study
title_sort Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study
author Novais, Sónia
author_facet Novais, Sónia
Mendes, Felismina Rosa Parreira
author_role author
author2 Mendes, Felismina Rosa Parreira
author2_role author
dc.contributor.none.fl_str_mv Repositório Comum
dc.contributor.author.fl_str_mv Novais, Sónia
Mendes, Felismina Rosa Parreira
dc.subject.por.fl_str_mv documental study
familial amyloidotic polyneuropathy
hereditary disease
illness representation
Portugal
topic documental study
familial amyloidotic polyneuropathy
hereditary disease
illness representation
Portugal
description This study explores illness representations within Familial Amyloidotic Polyneuropathy Portuguese Association newspaper. A content analysis was performed of the issue data using provisional coding related to the conceptual framework of the study. All dimensions of illness representation in Leventhal’s Common Sense Model of illness cognitions and behaviors are present in the data and reflect the experience of living with this disease. Understanding how a person living with an hereditary, rare, neurodegenerative illness is important for developing community nursing interventions. In conclusion, we suggest an integration of common sense knowledge with other approaches for designing an intervention program centered on people living with an hereditary neurodegenerative illness, such as familial amyloidotic polyneuropathy.
publishDate 2016
dc.date.none.fl_str_mv 2016-01-01T00:00:00Z
2016-01-01T00:00:00Z
2018-06-12T09:36:50Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
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dc.identifier.uri.fl_str_mv http://hdl.handle.net/10400.26/23085
url http://hdl.handle.net/10400.26/23085
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv doi: 10.1111/nhs.12240
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eu_rights_str_mv openAccess
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dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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