Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy
Autor(a) principal: | |
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Data de Publicação: | 2019 |
Outros Autores: | , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Jornal de Pediatria (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572019000600614 |
Resumo: | Abstract Objective: To assess the level of agreement in health-related quality of life between children with Post-infectious Bronchiolitis Obliterans and their parent (so-called proxy). Methods: Participants aged between 8and 17 years who had been previously diagnosed with Post-infectious Bronchiolitis Obliterans were regularly followed up at a pediatric pulmonology outpatient clinic. Parents or legal guardians (caregivers) of these patients were also recruited for the study. A validated and age-appropriate version of the Pediatric Quality of Life Inventory 4.0 was used for the assessment of health-related quality of life. Caregivers completed the corresponding proxy versions of the questionnaire. The correlation between self and proxy reports of health-related quality of life was determined by intra-class correlation coefficient and dependent t-tests. Results: The majority of participants were males (79.4%), and the average age was 11.8 years. Intra-class correlations between each of the Pediatric Quality of Life Inventory 4.0 domains and the total score were all lower than 0.6, with a range between 0.267 (poor) and 0.530 (fair). When the means of each domain and the total score of the questionnaires were compared, caregivers were observed to have a significantly lower health-related quality of life score than children, with the exception of the social domain in which the difference was not significant. However, the differences in score exceeded the critical threshold difference of four points in all other domains. Conclusion: Proxies of children and adolescents with Post-infectious Bronchiolitis Obliterans appear to consistently perceive their children as having lower health-related quality of life than how the patients perceive themselves. |
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Jornal de Pediatria (Online) |
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Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxyHealth-related quality of lifeBronchiolitis obliteransChildrenAbstract Objective: To assess the level of agreement in health-related quality of life between children with Post-infectious Bronchiolitis Obliterans and their parent (so-called proxy). Methods: Participants aged between 8and 17 years who had been previously diagnosed with Post-infectious Bronchiolitis Obliterans were regularly followed up at a pediatric pulmonology outpatient clinic. Parents or legal guardians (caregivers) of these patients were also recruited for the study. A validated and age-appropriate version of the Pediatric Quality of Life Inventory 4.0 was used for the assessment of health-related quality of life. Caregivers completed the corresponding proxy versions of the questionnaire. The correlation between self and proxy reports of health-related quality of life was determined by intra-class correlation coefficient and dependent t-tests. Results: The majority of participants were males (79.4%), and the average age was 11.8 years. Intra-class correlations between each of the Pediatric Quality of Life Inventory 4.0 domains and the total score were all lower than 0.6, with a range between 0.267 (poor) and 0.530 (fair). When the means of each domain and the total score of the questionnaires were compared, caregivers were observed to have a significantly lower health-related quality of life score than children, with the exception of the social domain in which the difference was not significant. However, the differences in score exceeded the critical threshold difference of four points in all other domains. Conclusion: Proxies of children and adolescents with Post-infectious Bronchiolitis Obliterans appear to consistently perceive their children as having lower health-related quality of life than how the patients perceive themselves.Sociedade Brasileira de Pediatria2019-09-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572019000600614Jornal de Pediatria v.95 n.5 2019reponame:Jornal de Pediatria (Online)instname:Sociedade Brasileira de Pediatria (SBP)instacron:SBPE10.1016/j.jped.2018.05.014info:eu-repo/semantics/openAccessSarria,Edgar E.Mundstock,EduardoMocelin,Helena T.Fischer,Gilberto B.Torres,Renato R.Garbin,João G.M.Leal,Lisiane F.Arend,Marcia H.R. de F.Stein,RicardoBooij,LindaAraújo,Rafael M.F. deMattiello,Ritaeng2019-10-23T00:00:00Zoai:scielo:S0021-75572019000600614Revistahttp://www.jped.com.br/https://old.scielo.br/oai/scielo-oai.php||jped@jped.com.br1678-47820021-7557opendoar:2019-10-23T00:00Jornal de Pediatria (Online) - Sociedade Brasileira de Pediatria (SBP)false |
dc.title.none.fl_str_mv |
Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy |
title |
Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy |
spellingShingle |
Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy Sarria,Edgar E. Health-related quality of life Bronchiolitis obliterans Children |
title_short |
Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy |
title_full |
Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy |
title_fullStr |
Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy |
title_full_unstemmed |
Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy |
title_sort |
Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy |
author |
Sarria,Edgar E. |
author_facet |
Sarria,Edgar E. Mundstock,Eduardo Mocelin,Helena T. Fischer,Gilberto B. Torres,Renato R. Garbin,João G.M. Leal,Lisiane F. Arend,Marcia H.R. de F. Stein,Ricardo Booij,Linda Araújo,Rafael M.F. de Mattiello,Rita |
author_role |
author |
author2 |
Mundstock,Eduardo Mocelin,Helena T. Fischer,Gilberto B. Torres,Renato R. Garbin,João G.M. Leal,Lisiane F. Arend,Marcia H.R. de F. Stein,Ricardo Booij,Linda Araújo,Rafael M.F. de Mattiello,Rita |
author2_role |
author author author author author author author author author author author |
dc.contributor.author.fl_str_mv |
Sarria,Edgar E. Mundstock,Eduardo Mocelin,Helena T. Fischer,Gilberto B. Torres,Renato R. Garbin,João G.M. Leal,Lisiane F. Arend,Marcia H.R. de F. Stein,Ricardo Booij,Linda Araújo,Rafael M.F. de Mattiello,Rita |
dc.subject.por.fl_str_mv |
Health-related quality of life Bronchiolitis obliterans Children |
topic |
Health-related quality of life Bronchiolitis obliterans Children |
description |
Abstract Objective: To assess the level of agreement in health-related quality of life between children with Post-infectious Bronchiolitis Obliterans and their parent (so-called proxy). Methods: Participants aged between 8and 17 years who had been previously diagnosed with Post-infectious Bronchiolitis Obliterans were regularly followed up at a pediatric pulmonology outpatient clinic. Parents or legal guardians (caregivers) of these patients were also recruited for the study. A validated and age-appropriate version of the Pediatric Quality of Life Inventory 4.0 was used for the assessment of health-related quality of life. Caregivers completed the corresponding proxy versions of the questionnaire. The correlation between self and proxy reports of health-related quality of life was determined by intra-class correlation coefficient and dependent t-tests. Results: The majority of participants were males (79.4%), and the average age was 11.8 years. Intra-class correlations between each of the Pediatric Quality of Life Inventory 4.0 domains and the total score were all lower than 0.6, with a range between 0.267 (poor) and 0.530 (fair). When the means of each domain and the total score of the questionnaires were compared, caregivers were observed to have a significantly lower health-related quality of life score than children, with the exception of the social domain in which the difference was not significant. However, the differences in score exceeded the critical threshold difference of four points in all other domains. Conclusion: Proxies of children and adolescents with Post-infectious Bronchiolitis Obliterans appear to consistently perceive their children as having lower health-related quality of life than how the patients perceive themselves. |
publishDate |
2019 |
dc.date.none.fl_str_mv |
2019-09-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572019000600614 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572019000600614 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1016/j.jped.2018.05.014 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Sociedade Brasileira de Pediatria |
publisher.none.fl_str_mv |
Sociedade Brasileira de Pediatria |
dc.source.none.fl_str_mv |
Jornal de Pediatria v.95 n.5 2019 reponame:Jornal de Pediatria (Online) instname:Sociedade Brasileira de Pediatria (SBP) instacron:SBPE |
instname_str |
Sociedade Brasileira de Pediatria (SBP) |
instacron_str |
SBPE |
institution |
SBPE |
reponame_str |
Jornal de Pediatria (Online) |
collection |
Jornal de Pediatria (Online) |
repository.name.fl_str_mv |
Jornal de Pediatria (Online) - Sociedade Brasileira de Pediatria (SBP) |
repository.mail.fl_str_mv |
||jped@jped.com.br |
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1752122322180898816 |