Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy

Detalhes bibliográficos
Autor(a) principal: Sarria,Edgar E.
Data de Publicação: 2019
Outros Autores: Mundstock,Eduardo, Mocelin,Helena T., Fischer,Gilberto B., Torres,Renato R., Garbin,João G.M., Leal,Lisiane F., Arend,Marcia H.R. de F., Stein,Ricardo, Booij,Linda, Araújo,Rafael M.F. de, Mattiello,Rita
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Jornal de Pediatria (Online)
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572019000600614
Resumo: Abstract Objective: To assess the level of agreement in health-related quality of life between children with Post-infectious Bronchiolitis Obliterans and their parent (so-called proxy). Methods: Participants aged between 8and 17 years who had been previously diagnosed with Post-infectious Bronchiolitis Obliterans were regularly followed up at a pediatric pulmonology outpatient clinic. Parents or legal guardians (caregivers) of these patients were also recruited for the study. A validated and age-appropriate version of the Pediatric Quality of Life Inventory 4.0 was used for the assessment of health-related quality of life. Caregivers completed the corresponding proxy versions of the questionnaire. The correlation between self and proxy reports of health-related quality of life was determined by intra-class correlation coefficient and dependent t-tests. Results: The majority of participants were males (79.4%), and the average age was 11.8 years. Intra-class correlations between each of the Pediatric Quality of Life Inventory 4.0 domains and the total score were all lower than 0.6, with a range between 0.267 (poor) and 0.530 (fair). When the means of each domain and the total score of the questionnaires were compared, caregivers were observed to have a significantly lower health-related quality of life score than children, with the exception of the social domain in which the difference was not significant. However, the differences in score exceeded the critical threshold difference of four points in all other domains. Conclusion: Proxies of children and adolescents with Post-infectious Bronchiolitis Obliterans appear to consistently perceive their children as having lower health-related quality of life than how the patients perceive themselves.
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spelling Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxyHealth-related quality of lifeBronchiolitis obliteransChildrenAbstract Objective: To assess the level of agreement in health-related quality of life between children with Post-infectious Bronchiolitis Obliterans and their parent (so-called proxy). Methods: Participants aged between 8and 17 years who had been previously diagnosed with Post-infectious Bronchiolitis Obliterans were regularly followed up at a pediatric pulmonology outpatient clinic. Parents or legal guardians (caregivers) of these patients were also recruited for the study. A validated and age-appropriate version of the Pediatric Quality of Life Inventory 4.0 was used for the assessment of health-related quality of life. Caregivers completed the corresponding proxy versions of the questionnaire. The correlation between self and proxy reports of health-related quality of life was determined by intra-class correlation coefficient and dependent t-tests. Results: The majority of participants were males (79.4%), and the average age was 11.8 years. Intra-class correlations between each of the Pediatric Quality of Life Inventory 4.0 domains and the total score were all lower than 0.6, with a range between 0.267 (poor) and 0.530 (fair). When the means of each domain and the total score of the questionnaires were compared, caregivers were observed to have a significantly lower health-related quality of life score than children, with the exception of the social domain in which the difference was not significant. However, the differences in score exceeded the critical threshold difference of four points in all other domains. Conclusion: Proxies of children and adolescents with Post-infectious Bronchiolitis Obliterans appear to consistently perceive their children as having lower health-related quality of life than how the patients perceive themselves.Sociedade Brasileira de Pediatria2019-09-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572019000600614Jornal de Pediatria v.95 n.5 2019reponame:Jornal de Pediatria (Online)instname:Sociedade Brasileira de Pediatria (SBP)instacron:SBPE10.1016/j.jped.2018.05.014info:eu-repo/semantics/openAccessSarria,Edgar E.Mundstock,EduardoMocelin,Helena T.Fischer,Gilberto B.Torres,Renato R.Garbin,João G.M.Leal,Lisiane F.Arend,Marcia H.R. de F.Stein,RicardoBooij,LindaAraújo,Rafael M.F. deMattiello,Ritaeng2019-10-23T00:00:00Zoai:scielo:S0021-75572019000600614Revistahttp://www.jped.com.br/https://old.scielo.br/oai/scielo-oai.php||jped@jped.com.br1678-47820021-7557opendoar:2019-10-23T00:00Jornal de Pediatria (Online) - Sociedade Brasileira de Pediatria (SBP)false
dc.title.none.fl_str_mv Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy
title Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy
spellingShingle Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy
Sarria,Edgar E.
Health-related quality of life
Bronchiolitis obliterans
Children
title_short Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy
title_full Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy
title_fullStr Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy
title_full_unstemmed Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy
title_sort Health-related quality of life in post-infectious bronchiolitis obliterans: agreement between children and their proxy
author Sarria,Edgar E.
author_facet Sarria,Edgar E.
Mundstock,Eduardo
Mocelin,Helena T.
Fischer,Gilberto B.
Torres,Renato R.
Garbin,João G.M.
Leal,Lisiane F.
Arend,Marcia H.R. de F.
Stein,Ricardo
Booij,Linda
Araújo,Rafael M.F. de
Mattiello,Rita
author_role author
author2 Mundstock,Eduardo
Mocelin,Helena T.
Fischer,Gilberto B.
Torres,Renato R.
Garbin,João G.M.
Leal,Lisiane F.
Arend,Marcia H.R. de F.
Stein,Ricardo
Booij,Linda
Araújo,Rafael M.F. de
Mattiello,Rita
author2_role author
author
author
author
author
author
author
author
author
author
author
dc.contributor.author.fl_str_mv Sarria,Edgar E.
Mundstock,Eduardo
Mocelin,Helena T.
Fischer,Gilberto B.
Torres,Renato R.
Garbin,João G.M.
Leal,Lisiane F.
Arend,Marcia H.R. de F.
Stein,Ricardo
Booij,Linda
Araújo,Rafael M.F. de
Mattiello,Rita
dc.subject.por.fl_str_mv Health-related quality of life
Bronchiolitis obliterans
Children
topic Health-related quality of life
Bronchiolitis obliterans
Children
description Abstract Objective: To assess the level of agreement in health-related quality of life between children with Post-infectious Bronchiolitis Obliterans and their parent (so-called proxy). Methods: Participants aged between 8and 17 years who had been previously diagnosed with Post-infectious Bronchiolitis Obliterans were regularly followed up at a pediatric pulmonology outpatient clinic. Parents or legal guardians (caregivers) of these patients were also recruited for the study. A validated and age-appropriate version of the Pediatric Quality of Life Inventory 4.0 was used for the assessment of health-related quality of life. Caregivers completed the corresponding proxy versions of the questionnaire. The correlation between self and proxy reports of health-related quality of life was determined by intra-class correlation coefficient and dependent t-tests. Results: The majority of participants were males (79.4%), and the average age was 11.8 years. Intra-class correlations between each of the Pediatric Quality of Life Inventory 4.0 domains and the total score were all lower than 0.6, with a range between 0.267 (poor) and 0.530 (fair). When the means of each domain and the total score of the questionnaires were compared, caregivers were observed to have a significantly lower health-related quality of life score than children, with the exception of the social domain in which the difference was not significant. However, the differences in score exceeded the critical threshold difference of four points in all other domains. Conclusion: Proxies of children and adolescents with Post-infectious Bronchiolitis Obliterans appear to consistently perceive their children as having lower health-related quality of life than how the patients perceive themselves.
publishDate 2019
dc.date.none.fl_str_mv 2019-09-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
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dc.identifier.uri.fl_str_mv http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572019000600614
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dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 10.1016/j.jped.2018.05.014
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
dc.publisher.none.fl_str_mv Sociedade Brasileira de Pediatria
publisher.none.fl_str_mv Sociedade Brasileira de Pediatria
dc.source.none.fl_str_mv Jornal de Pediatria v.95 n.5 2019
reponame:Jornal de Pediatria (Online)
instname:Sociedade Brasileira de Pediatria (SBP)
instacron:SBPE
instname_str Sociedade Brasileira de Pediatria (SBP)
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reponame_str Jornal de Pediatria (Online)
collection Jornal de Pediatria (Online)
repository.name.fl_str_mv Jornal de Pediatria (Online) - Sociedade Brasileira de Pediatria (SBP)
repository.mail.fl_str_mv ||jped@jped.com.br
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