Family reactions before the child in the situation of disability

Detalhes bibliográficos
Autor(a) principal: Marques, Luciana Pacheco
Data de Publicação: 2019
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Educação & Formação (Fortaleza)
Texto Completo: https://revistas.uece.br/index.php/redufor/article/view/912
Resumo: The purpose of this study was to understand the complexity experienced by the family of children with disabilities from their own point of view. Non-directive and assistance interviews were conducted with six mothers of children with disabilities who described their life histories. From the reports, the discussion on different topics was constructed and in this text we will deal specifically with the family reactions to the birth of a child with a disability in the family. To deny, to reject, to find a culprit for the situation, to take refuge in their suffering are some perfectly possible reactions in the parents of children with disabilities. However, the search for balance and the referral of the issues of being deviant tend to arise over time and the child in a disability situation is almost always incorporated into the family dynamics.
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spelling Family reactions before the child in the situation of disabilityReacciones familiares diante del niño en situación de deficienciaReações familiares diante da criança em situação de deficiênciaFamília. Deficiência. História de Vida..Family. Deficiency. Life's historyFamilia. Discapacidad. Historia de vida.The purpose of this study was to understand the complexity experienced by the family of children with disabilities from their own point of view. Non-directive and assistance interviews were conducted with six mothers of children with disabilities who described their life histories. From the reports, the discussion on different topics was constructed and in this text we will deal specifically with the family reactions to the birth of a child with a disability in the family. To deny, to reject, to find a culprit for the situation, to take refuge in their suffering are some perfectly possible reactions in the parents of children with disabilities. However, the search for balance and the referral of the issues of being deviant tend to arise over time and the child in a disability situation is almost always incorporated into the family dynamics.Este estudio tuvo por finalidad aprehender la complejidad vivida por la familia del niño en situación de discapacidad desde su propio punto de vista. Se realizaron entrevistas en la línea no directiva y de ayuda, con seis madres de niños en situación de discapacidad, que describieron sus historias de vida. A partir de los relatos, se construyó la discusión sobre diferentes tópicos y en este texto trataremos específicamente de las reacciones familiares ante el nacimiento de un niño en situación de deficiencia en la familia. Negar, rechazar, buscar a un culpable para la situación, refugiarse en su sufrimiento son algunas reacciones perfectamente posibles en los padres de niños en situación de discapacidad. Sin embargo, la búsqueda del equilibrio y el encaminamiento de las cuestiones afines al ser desviante tienden a surgir con el tiempo y el hijo en situación de discapacidad es casi siempre incorporado a la dinámica familiar.Este estudo teve por finalidade apreender a complexidade vivida pela família da criança em situação de deficiência a partir do seu próprio ponto de vista. Foram realizadas entrevistas na linha não-diretiva e de ajuda, com seis mães de crianças em situação de deficiência, que descreveram suas histórias de vida. A partir dos relatos, construiu-se a discussão sobre diferentes tópicos e neste texto trataremos especificamente das reações familiares diante do nascimento de uma criança em situação de deficiência na família. Negar, rejeitar, buscar um culpado para a situação, refugiar-se no seu sofrimento são algumas reações perfeitamente possíveis nos pais de crianças em situação de deficiência. Todavia, a busca do equilíbrio e o encaminhamento das questões afetas ao ser desviante tendem a surgir com o tempo e o filho em situação de deficiência é quase sempre incorporado à dinâmica familiar.EdUECE2019-09-02info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfapplication/xmlhttps://revistas.uece.br/index.php/redufor/article/view/91210.25053/redufor.v4i12.912Educ. Form.; Vol. 4 No. 12 (2019): Educação & Formação; 67-81Educ. Form.; Vol. 4 Núm. 12 (2019): Educação & Formação; 67-81Éducation et formation; Vol. 4 No 12 (2019): Educação & Formação; 67-81Educ. Form.; v. 4 n. 12 (2019): Educação & Formação; 67-812448-3583reponame:Educação & Formação (Fortaleza)instname:Universidade Estadual do Ceará (UECE)instacron:UECEporenghttps://revistas.uece.br/index.php/redufor/article/view/912/1303https://revistas.uece.br/index.php/redufor/article/view/912/1304https://revistas.uece.br/index.php/redufor/article/view/912/1943Copyright (c) 2019 Luciana Pacheco Marqueshttp://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessMarques, Luciana Pacheco2023-06-29T12:43:36Zoai:ojs.revistas.uece.br:article/912Revistahttps://revistas.uece.br/index.php/reduforPUBhttps://revistas.uece.br/index.php/redufor/oairedufor@gmail.com||lia.fialho@uece.br2448-35832448-3583opendoar:2023-06-29T12:43:36Educação & Formação (Fortaleza) - Universidade Estadual do Ceará (UECE)false
dc.title.none.fl_str_mv Family reactions before the child in the situation of disability
Reacciones familiares diante del niño en situación de deficiencia
Reações familiares diante da criança em situação de deficiência
title Family reactions before the child in the situation of disability
spellingShingle Family reactions before the child in the situation of disability
Marques, Luciana Pacheco
Família. Deficiência. História de Vida.
.
Family. Deficiency. Life's history
Familia. Discapacidad. Historia de vida.
title_short Family reactions before the child in the situation of disability
title_full Family reactions before the child in the situation of disability
title_fullStr Family reactions before the child in the situation of disability
title_full_unstemmed Family reactions before the child in the situation of disability
title_sort Family reactions before the child in the situation of disability
author Marques, Luciana Pacheco
author_facet Marques, Luciana Pacheco
author_role author
dc.contributor.author.fl_str_mv Marques, Luciana Pacheco
dc.subject.por.fl_str_mv Família. Deficiência. História de Vida.
.
Family. Deficiency. Life's history
Familia. Discapacidad. Historia de vida.
topic Família. Deficiência. História de Vida.
.
Family. Deficiency. Life's history
Familia. Discapacidad. Historia de vida.
description The purpose of this study was to understand the complexity experienced by the family of children with disabilities from their own point of view. Non-directive and assistance interviews were conducted with six mothers of children with disabilities who described their life histories. From the reports, the discussion on different topics was constructed and in this text we will deal specifically with the family reactions to the birth of a child with a disability in the family. To deny, to reject, to find a culprit for the situation, to take refuge in their suffering are some perfectly possible reactions in the parents of children with disabilities. However, the search for balance and the referral of the issues of being deviant tend to arise over time and the child in a disability situation is almost always incorporated into the family dynamics.
publishDate 2019
dc.date.none.fl_str_mv 2019-09-02
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://revistas.uece.br/index.php/redufor/article/view/912
10.25053/redufor.v4i12.912
url https://revistas.uece.br/index.php/redufor/article/view/912
identifier_str_mv 10.25053/redufor.v4i12.912
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://revistas.uece.br/index.php/redufor/article/view/912/1303
https://revistas.uece.br/index.php/redufor/article/view/912/1304
https://revistas.uece.br/index.php/redufor/article/view/912/1943
dc.rights.driver.fl_str_mv Copyright (c) 2019 Luciana Pacheco Marques
http://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2019 Luciana Pacheco Marques
http://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
application/xml
dc.publisher.none.fl_str_mv EdUECE
publisher.none.fl_str_mv EdUECE
dc.source.none.fl_str_mv Educ. Form.; Vol. 4 No. 12 (2019): Educação & Formação; 67-81
Educ. Form.; Vol. 4 Núm. 12 (2019): Educação & Formação; 67-81
Éducation et formation; Vol. 4 No 12 (2019): Educação & Formação; 67-81
Educ. Form.; v. 4 n. 12 (2019): Educação & Formação; 67-81
2448-3583
reponame:Educação & Formação (Fortaleza)
instname:Universidade Estadual do Ceará (UECE)
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reponame_str Educação & Formação (Fortaleza)
collection Educação & Formação (Fortaleza)
repository.name.fl_str_mv Educação & Formação (Fortaleza) - Universidade Estadual do Ceará (UECE)
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