Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida

Detalhes bibliográficos
Autor(a) principal: Terra, Barbara dos Santos
Data de Publicação: 2019
Tipo de documento: Dissertação
Idioma: por
Título da fonte: Biblioteca Digital de Teses e Dissertações da UERJ
Texto Completo: http://www.bdtd.uerj.br/handle/1/11197
Resumo: Chronic Kidney Disease is characterized by a progressive, irreversible loss of the glomerular, tubular and endocrine functions of the kidneys. It is regarded as one of the most serious of all chronic diseases due to the aggravated injuries, as well as the physical and psychological damage and the consequences for the persons daily routine influencing self- care. There is no cure, nor specific medications for treatment, thus requiring self-care to promote health, reduce harm and slow down the evolution of the disease. The general aim is to analyze how self-care is related to health promotion in the life histories of persons with chronic kidney disease. And the specific aims are as follows: To identify, in the life histories of persons with chronic kidney disease, how they understand and develop self-care; To describe the associations of self-care when promoting health in the means to cope with chronic kidney disease. This is a qualitative an descriptive study, oriented by the life history approach, developed in a university hospital in Rio de Janeiro from August to October 2019, with 14 subjects undergoing conservative therapy for chronic kidney disease. The inclusion criteria were the following: Subjects must be over 18 years old, regardless of gender, religious belief or ethnicity, at stage-3 and stage-4 of chronic kidney disease undergoing conservative therapy. And the exclusion criteria were: subjects with chronic kidney disease in other stages of the disease, those with altered level of consciousness, people with mental illness and difficulty to answer the questions. The project was approved by the Plataforma Brasil Ethics Committee under Registry No. 03769518.8.0000.5282. The data production technique was the interview, recorded using a smartphone application and fully transcribed. After transcription of the interviews and data organization, the analytical process used was the thematic analysis based on Bertaux. Two categories emerged from the data organization, namely: The discovery of the disease and the need for self-care; The coping of persons with chronic kidney disease for self-care. The characterization of respondents showed that most of them are female, 6 self-described as being pardos (brown) and 6 white, aged between 21 and 73 years; eight of them were considered young adults, most of them with superior education level complete, displaying changes in body weight. and hypertension and diabetes as underlying pathology. The study showed that the diagnosis of chronic kidney disease was confirmed differently for each respondent, in routine medical appointments, on a random basis, or from other pathology undergoing treatment, all of which evolving to the aggravation of the disease with several self-care requirements, due to the respondents being unaware of the health process, illness, loss of energy when searching for treatment, delay, lack of access to health care and aggravation of the clinical conditions. Concerning coping mechanisms, the family had the key role to cope with the diseases and the necessary support to carry out self- care activities related to changes in eating habits and physical activity. Thus, we conclude that the life history approach was able to highlight the relationship of self-care when promoting health by presenting experiences and situations experienced by respondents when coping with the illness. The nurse has a key role in the development of creative practices for self-care and Nola Pender's Health Promotion Model is a possibility to influence the self-care mechanisms.
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spelling Berardinelli, Lina Márcia Miguéishttp://lattes.cnpq.br/8533122014011090Santos, Mauro Leonardo Salvador Caldeira doshttp://lattes.cnpq.br/8526777752396550Santos, Rosângela da Silvahttp://lattes.cnpq.br/3464230746894433http://lattes.cnpq.br/0207301244172593Terra, Barbara dos Santos2021-01-06T14:30:58Z2020-03-192019-12-19TERRA, Barbara dos Santos. Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida. 2019. 113 f. Dissertação (Mestrado em Enfermagem) - Universidade do Estado do Rio de Janeiro, Rio de Janeiro, 2019.http://www.bdtd.uerj.br/handle/1/11197Chronic Kidney Disease is characterized by a progressive, irreversible loss of the glomerular, tubular and endocrine functions of the kidneys. It is regarded as one of the most serious of all chronic diseases due to the aggravated injuries, as well as the physical and psychological damage and the consequences for the persons daily routine influencing self- care. There is no cure, nor specific medications for treatment, thus requiring self-care to promote health, reduce harm and slow down the evolution of the disease. The general aim is to analyze how self-care is related to health promotion in the life histories of persons with chronic kidney disease. And the specific aims are as follows: To identify, in the life histories of persons with chronic kidney disease, how they understand and develop self-care; To describe the associations of self-care when promoting health in the means to cope with chronic kidney disease. This is a qualitative an descriptive study, oriented by the life history approach, developed in a university hospital in Rio de Janeiro from August to October 2019, with 14 subjects undergoing conservative therapy for chronic kidney disease. The inclusion criteria were the following: Subjects must be over 18 years old, regardless of gender, religious belief or ethnicity, at stage-3 and stage-4 of chronic kidney disease undergoing conservative therapy. And the exclusion criteria were: subjects with chronic kidney disease in other stages of the disease, those with altered level of consciousness, people with mental illness and difficulty to answer the questions. The project was approved by the Plataforma Brasil Ethics Committee under Registry No. 03769518.8.0000.5282. The data production technique was the interview, recorded using a smartphone application and fully transcribed. After transcription of the interviews and data organization, the analytical process used was the thematic analysis based on Bertaux. Two categories emerged from the data organization, namely: The discovery of the disease and the need for self-care; The coping of persons with chronic kidney disease for self-care. The characterization of respondents showed that most of them are female, 6 self-described as being pardos (brown) and 6 white, aged between 21 and 73 years; eight of them were considered young adults, most of them with superior education level complete, displaying changes in body weight. and hypertension and diabetes as underlying pathology. The study showed that the diagnosis of chronic kidney disease was confirmed differently for each respondent, in routine medical appointments, on a random basis, or from other pathology undergoing treatment, all of which evolving to the aggravation of the disease with several self-care requirements, due to the respondents being unaware of the health process, illness, loss of energy when searching for treatment, delay, lack of access to health care and aggravation of the clinical conditions. Concerning coping mechanisms, the family had the key role to cope with the diseases and the necessary support to carry out self- care activities related to changes in eating habits and physical activity. Thus, we conclude that the life history approach was able to highlight the relationship of self-care when promoting health by presenting experiences and situations experienced by respondents when coping with the illness. The nurse has a key role in the development of creative practices for self-care and Nola Pender's Health Promotion Model is a possibility to influence the self-care mechanisms.A Doença Renal Crônica é caracterizada por uma perda progressiva, e irreversível, da função glomerular, tubular e endócrina dos rins. Considerada uma das mais graves de todas as doenças crônicas em função dos agravos, danos físicos, psicológicos e consequências para a vida cotidiana das pessoas influenciando no seu autocuidado. É incurável, não apresenta medicamentos específicos para o tratamento, exigindo autocuidado para promoção da saúde, redução dos danos e retardar a progressão da doença. Objetivo geral: analisar a relação do autocuidado na promoção da saúde nas narrativas de vida de pessoas com doença renal crônica. Objetivos específicos: Identificar nas narrativas de vida das pessoas com doença renal crônica como entendem e desenvolvem o autocuidado; Descrever as associações do autocuidado na promoção da saúde nos modos de enfrentamento da doença renal crônica. Trata-se de um estudo qualitativo, descritivo, guiado pelo método de narrativa de vida, desenvolvido em um hospital universitário do Rio de Janeiro no período de agosto a outubro de 2019, com quatorze pessoas em tratamento conservador por doença renal crônica. Os critérios de inclusão foram: Maiores de 18 anos, sem distinção de sexo, crença religiosa e etnia, no estágio 3 e 4 da doença renal crônica, em tratamento conservador. E os critérios de exclusão foram: pessoas com doença renal crônica em outros estágios da doença, os que apresentavam alteração do nível de consciência, pessoas com adoecimento psíquico e dificuldade de responder as questões. O projeto foi aprovado pelo Comitê de Ética da Plataforma Brasil sob o Protocolo n° 03769518.8.0000.5282. A técnica de produção de dados foi a entrevista, gravada em um aplicativo para smartphone e transcrita na íntegra. O processo analítico empregado foi a análise temática, orientada por Bertaux. Da organização dos dados emergiram duas categorias intituladas: A descoberta da doença e a necessidade de autocuidado; Os enfrentamentos das pessoas com doença renal crônica para o autocuidado. A caracterização dos participantes demonstrou que a maioria dos participantes são do sexo feminino, seis se autodeclaram pardos e seis brancos, com idade entre 21 e 73 anos, sendo oito deles considerados adultos jovens, a maioria com nivel superior completo, apresentam alteração no peso corpóreo e possuem como patologia de base a hipertensão e diabetes. O estudo evidenciou que o diagnóstico da doença renal crônica foi confirmado para cada participante de maneira distinta, em consultas de rotina, aleatoriamente, ou de outra patologia em tratamento, todos com evolução para o agravamento da doença com muitas demandas de autocuidado, por conta do desconhecimento do processo-saúde, adoecimento, perda de energia na busca de tratamento, demora, acesso para assistencia a saúde e agravos à condição clínica. Sobre os mecanismos de enfrentamento a família, apareceu com papel primordial para o enfrentamento da doenças e como o apoio necessário para realizar atividades de autocuidado referentes a mudança de habitos alimentares e atividade física. Desse modo conclui-se que o método foi capaz de evidenciar a relação do autocuidado na promoção da saúde, apresentando experiências e situações vivenciadas pelos participantes no enfrentamento do adoecimento. O enfermeiro tem papel primordial na elaboração de práticas criativas para o autocuidado e o Modelo de Promoção da Saúde de Nola Pender é uma possibilidade para influenciar os mecanismos para o autocuidado.Submitted by Boris Flegr (boris@uerj.br) on 2021-01-06T14:30:58Z No. of bitstreams: 1 DISSERTACAO FINAL_BARBARA dos Santos Terra.pdf: 1200163 bytes, checksum: 940984a1061be80dd9058bf48c4d9207 (MD5)Made available in DSpace on 2021-01-06T14:30:58Z (GMT). No. of bitstreams: 1 DISSERTACAO FINAL_BARBARA dos Santos Terra.pdf: 1200163 bytes, checksum: 940984a1061be80dd9058bf48c4d9207 (MD5) Previous issue date: 2019-12-19Conselho Nacional de Desenvolvimento Científico e Tecnológicoapplication/pdfporUniversidade do Estado do Rio de JaneiroPrograma de Pós-Graduação em EnfermagemUERJBRCentro Biomédico::Faculdade de EnfermagemNursingChronic Kidney DiseaseSelf-careHealth PromotionEnfermagemInsuficiência renal crônicaAutocuidadoPromoção da saúdeCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMAutocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vidaSelf-Care when Promoting Health of Persons with Chronic Kidney Disease: Life Historiesinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisinfo:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UERJinstname:Universidade do Estado do Rio de Janeiro (UERJ)instacron:UERJORIGINALDISSERTACAO FINAL_BARBARA dos Santos Terra.pdfapplication/pdf1200163http://www.bdtd.uerj.br/bitstream/1/11197/1/DISSERTACAO+FINAL_BARBARA+dos+Santos+Terra.pdf940984a1061be80dd9058bf48c4d9207MD511/111972024-02-26 16:23:28.496oai:www.bdtd.uerj.br:1/11197Biblioteca Digital de Teses e Dissertaçõeshttp://www.bdtd.uerj.br/PUBhttps://www.bdtd.uerj.br:8443/oai/requestbdtd.suporte@uerj.bropendoar:29032024-02-26T19:23:28Biblioteca Digital de Teses e Dissertações da UERJ - Universidade do Estado do Rio de Janeiro (UERJ)false
dc.title.por.fl_str_mv Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida
dc.title.alternative.eng.fl_str_mv Self-Care when Promoting Health of Persons with Chronic Kidney Disease: Life Histories
title Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida
spellingShingle Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida
Terra, Barbara dos Santos
Nursing
Chronic Kidney Disease
Self-care
Health Promotion
Enfermagem
Insuficiência renal crônica
Autocuidado
Promoção da saúde
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
title_short Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida
title_full Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida
title_fullStr Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida
title_full_unstemmed Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida
title_sort Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida
author Terra, Barbara dos Santos
author_facet Terra, Barbara dos Santos
author_role author
dc.contributor.advisor1.fl_str_mv Berardinelli, Lina Márcia Miguéis
dc.contributor.advisor1Lattes.fl_str_mv http://lattes.cnpq.br/8533122014011090
dc.contributor.referee1.fl_str_mv Santos, Mauro Leonardo Salvador Caldeira dos
dc.contributor.referee1Lattes.fl_str_mv http://lattes.cnpq.br/8526777752396550
dc.contributor.referee2.fl_str_mv Santos, Rosângela da Silva
dc.contributor.referee2Lattes.fl_str_mv http://lattes.cnpq.br/3464230746894433
dc.contributor.authorLattes.fl_str_mv http://lattes.cnpq.br/0207301244172593
dc.contributor.author.fl_str_mv Terra, Barbara dos Santos
contributor_str_mv Berardinelli, Lina Márcia Miguéis
Santos, Mauro Leonardo Salvador Caldeira dos
Santos, Rosângela da Silva
dc.subject.eng.fl_str_mv Nursing
Chronic Kidney Disease
Self-care
Health Promotion
topic Nursing
Chronic Kidney Disease
Self-care
Health Promotion
Enfermagem
Insuficiência renal crônica
Autocuidado
Promoção da saúde
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
dc.subject.por.fl_str_mv Enfermagem
Insuficiência renal crônica
Autocuidado
Promoção da saúde
dc.subject.cnpq.fl_str_mv CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
description Chronic Kidney Disease is characterized by a progressive, irreversible loss of the glomerular, tubular and endocrine functions of the kidneys. It is regarded as one of the most serious of all chronic diseases due to the aggravated injuries, as well as the physical and psychological damage and the consequences for the persons daily routine influencing self- care. There is no cure, nor specific medications for treatment, thus requiring self-care to promote health, reduce harm and slow down the evolution of the disease. The general aim is to analyze how self-care is related to health promotion in the life histories of persons with chronic kidney disease. And the specific aims are as follows: To identify, in the life histories of persons with chronic kidney disease, how they understand and develop self-care; To describe the associations of self-care when promoting health in the means to cope with chronic kidney disease. This is a qualitative an descriptive study, oriented by the life history approach, developed in a university hospital in Rio de Janeiro from August to October 2019, with 14 subjects undergoing conservative therapy for chronic kidney disease. The inclusion criteria were the following: Subjects must be over 18 years old, regardless of gender, religious belief or ethnicity, at stage-3 and stage-4 of chronic kidney disease undergoing conservative therapy. And the exclusion criteria were: subjects with chronic kidney disease in other stages of the disease, those with altered level of consciousness, people with mental illness and difficulty to answer the questions. The project was approved by the Plataforma Brasil Ethics Committee under Registry No. 03769518.8.0000.5282. The data production technique was the interview, recorded using a smartphone application and fully transcribed. After transcription of the interviews and data organization, the analytical process used was the thematic analysis based on Bertaux. Two categories emerged from the data organization, namely: The discovery of the disease and the need for self-care; The coping of persons with chronic kidney disease for self-care. The characterization of respondents showed that most of them are female, 6 self-described as being pardos (brown) and 6 white, aged between 21 and 73 years; eight of them were considered young adults, most of them with superior education level complete, displaying changes in body weight. and hypertension and diabetes as underlying pathology. The study showed that the diagnosis of chronic kidney disease was confirmed differently for each respondent, in routine medical appointments, on a random basis, or from other pathology undergoing treatment, all of which evolving to the aggravation of the disease with several self-care requirements, due to the respondents being unaware of the health process, illness, loss of energy when searching for treatment, delay, lack of access to health care and aggravation of the clinical conditions. Concerning coping mechanisms, the family had the key role to cope with the diseases and the necessary support to carry out self- care activities related to changes in eating habits and physical activity. Thus, we conclude that the life history approach was able to highlight the relationship of self-care when promoting health by presenting experiences and situations experienced by respondents when coping with the illness. The nurse has a key role in the development of creative practices for self-care and Nola Pender's Health Promotion Model is a possibility to influence the self-care mechanisms.
publishDate 2019
dc.date.issued.fl_str_mv 2019-12-19
dc.date.available.fl_str_mv 2020-03-19
dc.date.accessioned.fl_str_mv 2021-01-06T14:30:58Z
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dc.identifier.citation.fl_str_mv TERRA, Barbara dos Santos. Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida. 2019. 113 f. Dissertação (Mestrado em Enfermagem) - Universidade do Estado do Rio de Janeiro, Rio de Janeiro, 2019.
dc.identifier.uri.fl_str_mv http://www.bdtd.uerj.br/handle/1/11197
identifier_str_mv TERRA, Barbara dos Santos. Autocuidado na promoção da saúde de pessoas com doença renal crônica: Narrativas de vida. 2019. 113 f. Dissertação (Mestrado em Enfermagem) - Universidade do Estado do Rio de Janeiro, Rio de Janeiro, 2019.
url http://www.bdtd.uerj.br/handle/1/11197
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