Quality of life of patients with Amyotrophic Lateral Sclerosis

Detalhes bibliográficos
Autor(a) principal: Siqueira, Sue Christine
Data de Publicação: 2017
Outros Autores: Vitorino, Priscila Valverde de Oliveira, Prudente, Cejane Oliveira Martins, Santana, Tainara Sardeiro de, Melo, Gleydson Ferreira de
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Rev Rene (Online)
Texto Completo: http://periodicos.ufc.br/rene/article/view/19231
Resumo: Objective: to analyze the scientific evidence that evaluated the quality of life of patients with Amyotrophic Lateral Sclerosis through ALSAQ-40/ALSAQ-5. Methods: this is an integrative review carried out with eight articles in the database, using controlled keywords. Results: the most impaired domains of quality of life were physical mobility and activities of daily living. Patients with bulbar Amyotrophic Lateral Sclerosis, communication and feeding were more impaired. Problems with health care and lack of social support to the caregiver negatively impacted the patient´s quality of life. Emotional stress was correlated with communication, physical mobility and disease progression in patients with breathing and artificial feeding, but it is not directly related to the advances of physical deterioration, but rather how the patient processes the experiences. Conclusion: patients with Amyotrophic Lateral Sclerosis have a poorer quality of life regarding the motor aspect, and lack of caregiver support worsens the patient´s quality of life.
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spelling Quality of life of patients with Amyotrophic Lateral SclerosisQuality of LifeAmyotrophic Lateral SclerosisNursing.Objective: to analyze the scientific evidence that evaluated the quality of life of patients with Amyotrophic Lateral Sclerosis through ALSAQ-40/ALSAQ-5. Methods: this is an integrative review carried out with eight articles in the database, using controlled keywords. Results: the most impaired domains of quality of life were physical mobility and activities of daily living. Patients with bulbar Amyotrophic Lateral Sclerosis, communication and feeding were more impaired. Problems with health care and lack of social support to the caregiver negatively impacted the patient´s quality of life. Emotional stress was correlated with communication, physical mobility and disease progression in patients with breathing and artificial feeding, but it is not directly related to the advances of physical deterioration, but rather how the patient processes the experiences. Conclusion: patients with Amyotrophic Lateral Sclerosis have a poorer quality of life regarding the motor aspect, and lack of caregiver support worsens the patient´s quality of life.Universidade Federal do Ceará2017-06-12info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttp://periodicos.ufc.br/rene/article/view/1923110.15253/2175-6783.2017000100019Rev Rene; Vol 18 No 1 (2017); 139-146Rev Rene; v. 18 n. 1 (2017); 139-1462175-67831517-3852reponame:Rev Rene (Online)instname:Universidade Federal do Ceará (UFC)instacron:UFCenghttp://periodicos.ufc.br/rene/article/view/19231/29948Copyright (c) 2017 Northeast Network Nursing Journalinfo:eu-repo/semantics/openAccessSiqueira, Sue ChristineVitorino, Priscila Valverde de OliveiraPrudente, Cejane Oliveira MartinsSantana, Tainara Sardeiro deMelo, Gleydson Ferreira de2018-10-09T18:03:51Zoai:periodicos.ufc:article/19231Revistahttp://periodicos.ufc.br/renePUBhttp://periodicos.ufc.br/rene/oairene@ufc.br||2175-67831517-3852opendoar:2018-10-09T18:03:51Rev Rene (Online) - Universidade Federal do Ceará (UFC)false
dc.title.none.fl_str_mv Quality of life of patients with Amyotrophic Lateral Sclerosis
title Quality of life of patients with Amyotrophic Lateral Sclerosis
spellingShingle Quality of life of patients with Amyotrophic Lateral Sclerosis
Siqueira, Sue Christine
Quality of Life
Amyotrophic Lateral Sclerosis
Nursing.
title_short Quality of life of patients with Amyotrophic Lateral Sclerosis
title_full Quality of life of patients with Amyotrophic Lateral Sclerosis
title_fullStr Quality of life of patients with Amyotrophic Lateral Sclerosis
title_full_unstemmed Quality of life of patients with Amyotrophic Lateral Sclerosis
title_sort Quality of life of patients with Amyotrophic Lateral Sclerosis
author Siqueira, Sue Christine
author_facet Siqueira, Sue Christine
Vitorino, Priscila Valverde de Oliveira
Prudente, Cejane Oliveira Martins
Santana, Tainara Sardeiro de
Melo, Gleydson Ferreira de
author_role author
author2 Vitorino, Priscila Valverde de Oliveira
Prudente, Cejane Oliveira Martins
Santana, Tainara Sardeiro de
Melo, Gleydson Ferreira de
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Siqueira, Sue Christine
Vitorino, Priscila Valverde de Oliveira
Prudente, Cejane Oliveira Martins
Santana, Tainara Sardeiro de
Melo, Gleydson Ferreira de
dc.subject.por.fl_str_mv Quality of Life
Amyotrophic Lateral Sclerosis
Nursing.
topic Quality of Life
Amyotrophic Lateral Sclerosis
Nursing.
description Objective: to analyze the scientific evidence that evaluated the quality of life of patients with Amyotrophic Lateral Sclerosis through ALSAQ-40/ALSAQ-5. Methods: this is an integrative review carried out with eight articles in the database, using controlled keywords. Results: the most impaired domains of quality of life were physical mobility and activities of daily living. Patients with bulbar Amyotrophic Lateral Sclerosis, communication and feeding were more impaired. Problems with health care and lack of social support to the caregiver negatively impacted the patient´s quality of life. Emotional stress was correlated with communication, physical mobility and disease progression in patients with breathing and artificial feeding, but it is not directly related to the advances of physical deterioration, but rather how the patient processes the experiences. Conclusion: patients with Amyotrophic Lateral Sclerosis have a poorer quality of life regarding the motor aspect, and lack of caregiver support worsens the patient´s quality of life.
publishDate 2017
dc.date.none.fl_str_mv 2017-06-12
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://periodicos.ufc.br/rene/article/view/19231
10.15253/2175-6783.2017000100019
url http://periodicos.ufc.br/rene/article/view/19231
identifier_str_mv 10.15253/2175-6783.2017000100019
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv http://periodicos.ufc.br/rene/article/view/19231/29948
dc.rights.driver.fl_str_mv Copyright (c) 2017 Northeast Network Nursing Journal
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2017 Northeast Network Nursing Journal
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade Federal do Ceará
publisher.none.fl_str_mv Universidade Federal do Ceará
dc.source.none.fl_str_mv Rev Rene; Vol 18 No 1 (2017); 139-146
Rev Rene; v. 18 n. 1 (2017); 139-146
2175-6783
1517-3852
reponame:Rev Rene (Online)
instname:Universidade Federal do Ceará (UFC)
instacron:UFC
instname_str Universidade Federal do Ceará (UFC)
instacron_str UFC
institution UFC
reponame_str Rev Rene (Online)
collection Rev Rene (Online)
repository.name.fl_str_mv Rev Rene (Online) - Universidade Federal do Ceará (UFC)
repository.mail.fl_str_mv rene@ufc.br||
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