Entre o temor e a insignificância: representações sociais da hanseníase para adolescentes com a doença e seus familiares

• Autor(a) principal: Marinho, Fabiana Drumond
• Data de Publicação: 2016
• Tipo de documento: Tese
• Idioma: por
• Título da fonte: Repositório Institucional da Universidade Federal do Espírito Santo (riUfes)
• Texto Completo: http://repositorio.ufes.br/handle/10/9108
• topic: Social representation; Leprosy; Adolescents; Siblings; Daily life; Représentation sociale; Lèpre; Adolescence; Parents; De tous les jours; Parentes; Cotidiano; Psicologia; Hanseníase; Adolescentes; Representações sociais - Doenças; Representações sociais - Família; 159.9

Based on the Theory of Social Representations, this study aimed to investigate and analyze the social representations of leprosy and living / living with the disease for adolescents with the disease and their families, as well as analyzed the effects of leprosy in the daily lives of these individuals. Data were collected through semi-structured interviews conducted with 19 adolescents in drug treatment for leprosy aged 12 to 18 and 18 families who lived in the same house as the patient. The verbal material was analyzed by ALCESTE software and Content Analysis. The results indicated that the representations of leprosy for teens, now appeared as frightening / threatening disease and sometimes as banal disease like any other that has no cure, whose image for each is connected to a patient with stained body, disfigured and mutilated and the other from a patient with a cured body without sequel e and without marks, so that the representations have been characterized by positive and negative affects on the disease. For the family the leprosy object overlaid it valued elements negatively loaded with meanings related to "old leprosy", associating the disease with a terrible disease, severe and disabling who by it is involved, drawing a patient in suffering, disfigured and mutilated . The content on the representations of living / living with leprosy revealed an altered daily life, permeated by fear, prejudice, social isolation, suffering and difficulties in the course of treatment. The data showed also gaps between scientific knowledge and common sense about leprosy, which contributed to a symbolic construction of grounded disease beliefs, unrealistic ideas and personal assumptions. Such conceptions feed back how relations were established. In conclusion, compared to the permanence of an archaic view of the disease and impacts the daily lives of adolescents with leprosy and their family members, it is necessary to broaden the various scenarios of information about the disease, rethink health practices and establish dialogic meetings, to enable reflection and the construction of new meanings related to the disease, providing improvements in the quality of life of these subjects.