Vivendo com hanseníase: representações sociais e impactos no cotidiano
Autor(a) principal: | |
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Data de Publicação: | 2010 |
Tipo de documento: | Dissertação |
Idioma: | por |
Título da fonte: | Repositório Institucional da Universidade Federal do Espírito Santo (riUfes) |
Texto Completo: | http://repositorio.ufes.br/handle/10/3018 |
Resumo: | This study aimed to verify the social representations of leprosy and the disease impacts on patient’s daily lives who had been affected and were discharged. Ten women and eight men were individually interviewed. A semi-structured interview script was used, which included social demographic aspects, Free Words Association Test (TALP), mental images, in addition to guiding questions based on the participant’s experience with the disease, addressing family and social aspects, feelings and perceptions that came from their experience. The data obtained were subjected to content analysis technique proposed by Bardin, categorized and analyzed based on the Theory of Social Representations. As a result of TALP, categories were obtained, such as Disease, Information about the illness, Prejudice, Reactions and deformities / disabilities of the illness, Feeling and Treatment. As for the mental images, we found that the image built by the participants referred to the leper, represented by the spotted body, a sad person and an ugly and wounded body. During the process of analyzing the interviews, we identified units of meaning divided in feelings, family, friends, work, reactions and deformities / disabilities of the disease. We found that the predominant element of the social representation of this research is anchored in leprosy, as evidenced by the elements exposed by the interviewed such as prejudice, fear, secrecy and confidentiality, present in all interviews. The fear of being discovered as a carrier of the disease meant losing their identity and assuming the identity of the "leper". We conclude that, under a general view, virtually all participants symbolized the negative social construction around "leprosy. We observed that the demands for mental health were revealed in almost all evocations carried out about leprosy. We realized that this has gone unnoticed by professionals. The reference to negative feelings of sadness, grief, fear, depression, in addition to the presence of pain, deformities in the body and prejudice was evident in all stages of the research and indicates the need for research and monitoring the condition of the individual beyond the specific aspects of remission. |
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Nascimento, Célia Regina RangelTrindade, Zeide AraujoVieira, Michelle Christini AraújoSantos, Maria de Fátima de SouzaAvellar, Luziane Zacché2016-08-29T14:10:11Z2016-07-112016-08-29T14:10:11Z2010-10-26This study aimed to verify the social representations of leprosy and the disease impacts on patient’s daily lives who had been affected and were discharged. Ten women and eight men were individually interviewed. A semi-structured interview script was used, which included social demographic aspects, Free Words Association Test (TALP), mental images, in addition to guiding questions based on the participant’s experience with the disease, addressing family and social aspects, feelings and perceptions that came from their experience. The data obtained were subjected to content analysis technique proposed by Bardin, categorized and analyzed based on the Theory of Social Representations. As a result of TALP, categories were obtained, such as Disease, Information about the illness, Prejudice, Reactions and deformities / disabilities of the illness, Feeling and Treatment. As for the mental images, we found that the image built by the participants referred to the leper, represented by the spotted body, a sad person and an ugly and wounded body. During the process of analyzing the interviews, we identified units of meaning divided in feelings, family, friends, work, reactions and deformities / disabilities of the disease. We found that the predominant element of the social representation of this research is anchored in leprosy, as evidenced by the elements exposed by the interviewed such as prejudice, fear, secrecy and confidentiality, present in all interviews. The fear of being discovered as a carrier of the disease meant losing their identity and assuming the identity of the "leper". We conclude that, under a general view, virtually all participants symbolized the negative social construction around "leprosy. We observed that the demands for mental health were revealed in almost all evocations carried out about leprosy. We realized that this has gone unnoticed by professionals. The reference to negative feelings of sadness, grief, fear, depression, in addition to the presence of pain, deformities in the body and prejudice was evident in all stages of the research and indicates the need for research and monitoring the condition of the individual beyond the specific aspects of remission.Este trabajo tuvo por objetivo investigar las representaciones sociales de la lepra y el impacto de la enfermedad en la vida diaria de los pacientes acometidos y qué tuvieron alta de la enfermedad. Se entrevistó individualmente diez mujeres y ocho hombres. Se utilizó un guión de entrevista semiestructurada, que incluyó: aspectos sociodemográficos; Test de Asociación Libre de Palabras (TALP); imágenes mentales, además de cuestiones orientadoras que se fundamentaban en la vivencia de los participantes con la patología, qué abordó aspectos familiares, sociales, sentimientos y percepciones provenientes de la experiencia. Los datos obtenidos fueron sometidos a la Técnica de Análisis de Contenido propuesta por Bardin, clasificados y analizados con base en la Teoría de Representaciones Sociales. Como resultado del TALP fueron obtenidas categorías como Enfermedad, Informaciones sobre la Enfermedad, Preconcepto, Reacciones y Deformidades/Incapacidades de la enfermedad, Sentimiento y Tratamiento. Con relación a las imágenes mentales se verificó qué la imagen construida por los participantes hace referencia al leproso, representado por el cuerpo manchado, persona triste y cuerpo feo y herido. Durante el proceso de análisis de las entrevistas, fueron identificados unidades de significados divididas en sentimientos, familia, amigos, trabajo y reacciones y deformidades/incapacidades de la enfermedad. Se verificó qué el elemento predominante de la representación social de esta investigación se basa en la Lepra, evidenciada por los elementos expuestos por los encuestados como preconcepto, miedo, sigilo y secreto, presiente en todas las encuestas. El miedo de ser descubierto portador de la patología significaba perder su identidad y asumir la identidad del “leproso”. Se concluyó qué bajo un punto de vista general, prácticamente todos los participantes simbolizaron la construcción social negativa en torno de la “lepra”. Hemos observado que las demandas de salud mental fueron reveladas en prácticamente todas las invocaciones realizadas en torno de la lepra. Percibimos qué tales pasan desapercibidos por los profesionales. La referencia a los sentimientos negativos de tristeza, sufrimiento, miedo, depresión, además de la presencia de dolores, deformidades en el cuerpo y el preconcepto fue evidente en todos los momentos de la investigación y denota la necesidad de investigar y acompañar la condición del individuo más allá de los aspectos específicos de remisión de la enfermedad.Este trabalho teve por objetivo verificar as representações sociais da hanseníase e os impactos da doença no cotidiano dos pacientes que foram acometidos e estavam em alta da patologia. Foram entrevistados individualmente dez mulheres e oito homens. Utilizou-se roteiro de entrevista semi-estruturado, que abrangeu: aspecto sócio demográficos; Teste de Associação Livre de Palavras (TALP); imagens mentais; além de questões norteadoras que se fundamentavam na vivência do participante com a patologia, abordando aspectos familiares, sociais, sentimentos e percepções advindas da experiência. Os dados obtidos foram submetidos à Técnica de Análise de Conteúdo proposta por Bardin, categorizados e analisados a partir da Teoria das Representações Sociais. Como resultado do TALP, foram obtidas categorias como Doença, Informação sobre a doença, Preconceito, Reações e Deformidades/incapacidades da doença, Sentimento e Tratamento. Relativo às imagens mentais, verificou-se que a imagem construída pelos participantes faz referência ao leproso, representado pelo corpo manchado, pessoa triste e corpo feio e ferido Durante o processo de analise das entrevistas, identificou-se unidades de significados divididas em sentimentos; família; amigos; trabalho e reações e deformidades/incapacidades da doença. Verificamos que o elemento predominante da representação social desta pesquisa ancora-se na Lepra, evidenciada pelos elementos expostos pelos entrevistados como preconceito, medo, sigilo e segredo, presentes em todas as entrevistas. O medo de ser descoberto portador da patologia significava perder sua identidade e assumir a identidade do leproso. Concluímos que, sob uma visão geral, praticamente todos os participantes simbolizaram a construção social negativa em torno da lepra. Observamos que as demandas de saúde mental foram reveladas em praticamente todas as evocações realizadas em torno da Hanseníase. Percebemos que tais necessidades passam despercebidas pelos profissionais. A referência a sentimentos negativos de tristeza, sofrimento, medo, depressão, além da presença de dores, deformidades no corpo e o preconceito foi marcante em todos os momentos da pesquisa e denota a necessidade de investigação e acompanhamento da condição do indivíduo para além dos aspectos específicos de remissão da doença.TextVIEIRA, Michelle Christini Araújo. Vivendo com hanseníase: representações sociais e impactos no cotidiano. 2010. 126 f. Dissertação (Mestrado em Psicologia) - Universidade Federal do Espirito Santo, Centro de Ciências Humanas e Naturais, Vitória, 2010.http://repositorio.ufes.br/handle/10/3018porUniversidade Federal do Espírito SantoMestrado em PsicologiaPrograma de Pós-Graduação em PsicologiaUFESBRSocial representationHansen’s DiseaseLeprosyImpact of the diseaseNursingLepraImpacto da doençaRepresentación socialImpacto de la enfermedadEnfermeríaRepresentações sociaisEnfermagemHanseníasePsicologia159.9Vivendo com hanseníase: representações sociais e impactos no cotidianoLiving with Leprosy: social representations and impacts on everyday lifeVivir con lepra: representaciones sociales e impactos en la vida diariainfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da Universidade Federal do Espírito Santo (riUfes)instname:Universidade Federal do Espírito Santo (UFES)instacron:UFESORIGINALDISSERTAÇÃO - MICHELLE CHRISTINI ARAÚJO VIEIRA.pdfapplication/pdf4886844http://repositorio.ufes.br/bitstreams/d81bf170-d504-4222-a049-5b071a1a4b11/downloada29fb8f59a8be0439f9e294f8a838013MD5110/30182024-07-02 15:22:19.318oai:repositorio.ufes.br:10/3018http://repositorio.ufes.brRepositório InstitucionalPUBhttp://repositorio.ufes.br/oai/requestopendoar:21082024-07-02T15:22:19Repositório Institucional da Universidade Federal do Espírito Santo (riUfes) - Universidade Federal do Espírito Santo (UFES)false |
dc.title.none.fl_str_mv |
Vivendo com hanseníase: representações sociais e impactos no cotidiano |
dc.title.alternative.none.fl_str_mv |
Living with Leprosy: social representations and impacts on everyday life Vivir con lepra: representaciones sociales e impactos en la vida diaria |
title |
Vivendo com hanseníase: representações sociais e impactos no cotidiano |
spellingShingle |
Vivendo com hanseníase: representações sociais e impactos no cotidiano Vieira, Michelle Christini Araújo Social representation Hansen’s Disease Leprosy Impact of the disease Nursing Lepra Impacto da doença Representación social Impacto de la enfermedad Enfermería Psicologia Representações sociais Enfermagem Hanseníase 159.9 |
title_short |
Vivendo com hanseníase: representações sociais e impactos no cotidiano |
title_full |
Vivendo com hanseníase: representações sociais e impactos no cotidiano |
title_fullStr |
Vivendo com hanseníase: representações sociais e impactos no cotidiano |
title_full_unstemmed |
Vivendo com hanseníase: representações sociais e impactos no cotidiano |
title_sort |
Vivendo com hanseníase: representações sociais e impactos no cotidiano |
author |
Vieira, Michelle Christini Araújo |
author_facet |
Vieira, Michelle Christini Araújo |
author_role |
author |
dc.contributor.advisor-co1.fl_str_mv |
Nascimento, Célia Regina Rangel |
dc.contributor.advisor1.fl_str_mv |
Trindade, Zeide Araujo |
dc.contributor.author.fl_str_mv |
Vieira, Michelle Christini Araújo |
dc.contributor.referee1.fl_str_mv |
Santos, Maria de Fátima de Souza |
dc.contributor.referee2.fl_str_mv |
Avellar, Luziane Zacché |
contributor_str_mv |
Nascimento, Célia Regina Rangel Trindade, Zeide Araujo Santos, Maria de Fátima de Souza Avellar, Luziane Zacché |
dc.subject.eng.fl_str_mv |
Social representation Hansen’s Disease Leprosy Impact of the disease Nursing |
topic |
Social representation Hansen’s Disease Leprosy Impact of the disease Nursing Lepra Impacto da doença Representación social Impacto de la enfermedad Enfermería Psicologia Representações sociais Enfermagem Hanseníase 159.9 |
dc.subject.por.fl_str_mv |
Lepra Impacto da doença |
dc.subject.spa.fl_str_mv |
Representación social Impacto de la enfermedad Enfermería |
dc.subject.cnpq.fl_str_mv |
Psicologia |
dc.subject.br-rjbn.none.fl_str_mv |
Representações sociais Enfermagem Hanseníase |
dc.subject.udc.none.fl_str_mv |
159.9 |
description |
This study aimed to verify the social representations of leprosy and the disease impacts on patient’s daily lives who had been affected and were discharged. Ten women and eight men were individually interviewed. A semi-structured interview script was used, which included social demographic aspects, Free Words Association Test (TALP), mental images, in addition to guiding questions based on the participant’s experience with the disease, addressing family and social aspects, feelings and perceptions that came from their experience. The data obtained were subjected to content analysis technique proposed by Bardin, categorized and analyzed based on the Theory of Social Representations. As a result of TALP, categories were obtained, such as Disease, Information about the illness, Prejudice, Reactions and deformities / disabilities of the illness, Feeling and Treatment. As for the mental images, we found that the image built by the participants referred to the leper, represented by the spotted body, a sad person and an ugly and wounded body. During the process of analyzing the interviews, we identified units of meaning divided in feelings, family, friends, work, reactions and deformities / disabilities of the disease. We found that the predominant element of the social representation of this research is anchored in leprosy, as evidenced by the elements exposed by the interviewed such as prejudice, fear, secrecy and confidentiality, present in all interviews. The fear of being discovered as a carrier of the disease meant losing their identity and assuming the identity of the "leper". We conclude that, under a general view, virtually all participants symbolized the negative social construction around "leprosy. We observed that the demands for mental health were revealed in almost all evocations carried out about leprosy. We realized that this has gone unnoticed by professionals. The reference to negative feelings of sadness, grief, fear, depression, in addition to the presence of pain, deformities in the body and prejudice was evident in all stages of the research and indicates the need for research and monitoring the condition of the individual beyond the specific aspects of remission. |
publishDate |
2010 |
dc.date.issued.fl_str_mv |
2010-10-26 |
dc.date.accessioned.fl_str_mv |
2016-08-29T14:10:11Z |
dc.date.available.fl_str_mv |
2016-07-11 2016-08-29T14:10:11Z |
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info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/masterThesis |
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masterThesis |
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publishedVersion |
dc.identifier.citation.fl_str_mv |
VIEIRA, Michelle Christini Araújo. Vivendo com hanseníase: representações sociais e impactos no cotidiano. 2010. 126 f. Dissertação (Mestrado em Psicologia) - Universidade Federal do Espirito Santo, Centro de Ciências Humanas e Naturais, Vitória, 2010. |
dc.identifier.uri.fl_str_mv |
http://repositorio.ufes.br/handle/10/3018 |
identifier_str_mv |
VIEIRA, Michelle Christini Araújo. Vivendo com hanseníase: representações sociais e impactos no cotidiano. 2010. 126 f. Dissertação (Mestrado em Psicologia) - Universidade Federal do Espirito Santo, Centro de Ciências Humanas e Naturais, Vitória, 2010. |
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Universidade Federal do Espírito Santo Mestrado em Psicologia |
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Universidade Federal do Espírito Santo Mestrado em Psicologia |
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