Representações sociais de conjugalidade e de fibromialgia: desdobramentos na dinâmica conjugal do "provedor" e da "rainha" do lar

• Autor(a) principal: Macedo, Danielle Constância Felício
• Data de Publicação: 2014
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Repositório Institucional da Universidade Federal do Espírito Santo (riUfes)
• Texto Completo: http://repositorio.ufes.br/handle/10/3097
• topic: Fibromyalgia; Social representation; Conjugality; Gender relations; Conjugalidade; Relações de gênero; Psicologia; Fibromialgia; Representações sociais; Relações de gênero; 159.9

Fibromyalgia (FM) is characterized by widespread pain, fatigue, non-restorative sleep, among other symptoms. It is a disease of undetermined origin and uncertain response to treatment, which can cause feelings of vulnerability and helplessness as well as potential impacts on family and social routine of receiving this diagnosis. Therefore, this study aimed, generally, to describe and analyze the social representations (SR) of FM on couples where one spouse has been diagnosed, taking into account the perspective of social psychology and gender category of analysis. The specific objectives were to investigate the extent of participants' understanding of the FM and the degree of knowledge that their spouses think they have about the disease and its impacts on marital dynamics; investigate the SR of FM and conjugality; verify how relationships between SR and FM marital are built, as well as maintenance practices or change of marital dynamics after the diagnosis of a spouse; analyze the aspects identified considering the gender category of analysis. The study included 08 couples in which one spouse has been diagnosed with FM for at least 12 months before the interview, with a history of stable relationship that began at least 01 years before the diagnosis. The 16 participants answered a questionnaire on sociodemographic characteristics and brief information about their medical history, then they were interviewed individually, based on an unstructured (narrative) and semistructured script. The interview transcripts were subjected to Content Analysis and problematized in light of the social representation theory, having also been used the Analyse d' Lexicale software Contexte one pair Ensemble Segments of Texte (Alceste). The results showed aspects of existing relational dimensions between the RS and FM conjugal and marital practices established by couples. Using two methods, in gathering and in the analysis of the data, unveiled a broad network of meanings - love, gender roles, what it means to become ill and to care, fibromyalgia and its consequences in the routine of the patient and his family - accessed by the participants in the processes of anchoring and objectification of representations of FM and conjugality. Finally, it was found the existence of a field of fragility of patients with fibromyalgia and those around him in the process of coping. Furthermore, this data point to the need for health services to act early in information about the disease and identifying conflicts in family and marital context, which can be triggered both in the diagnostic investigation and in the course of treatment and particular characteristics of daily living with the disease.