Social support demands of families with children with cerebral palsy
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2014 |
| Outros Autores: | , , |
| Tipo de documento: | Artigo |
| Idioma: | por |
| Título da fonte: | Revista Eletrônica de Enfermagem |
| Texto Completo: | https://revistas.ufg.br/fen/article/view/21112 |
Resumo: | Cerebral Palsy (CP) has significant repercussions in the family. The goal of the present study is to investigate the demands for social support of families with children with CP, as well as the repercussions of such demands in the child’s care. It is a descriptive-exploratory qualitative study, conducted with seven families whose children are attended to in a children’s outpatient clinic. The following categories emerged from the interview analysis: “demands for family support;” disbelief in the support network;” “impaired interaction with professionals” and “carrying on despite everything.” The demand for social support is evident, and it is essential that public policies and institutional and professional ties be implemented so that the family of a child with CP can receive integral and humanized assistance.doi: 10.5216/ree.v16i2.21112. |
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Social support demands of families with children with cerebral palsyDemanda de apoyo social por la familia del niño con parálisis cerebralDemanda de apoio social pela família da criança com paralisia cerebralFamilyCerebral PalsyNursingChildSocial SupportFamilyCerebral PalsyNursingChildSocial SupportFamiliaParálisis CerebralEnfermeríaNiñoApoyo SocialFamiliaParálisis CerebralEnfermeríaNiñoApoyo SocialFamíliaParalisia CerebralEnfermagemCriançaApoio Social.FamíliaParalisia CerebralEnfermagemCriançaApoio Social.Cerebral Palsy (CP) has significant repercussions in the family. The goal of the present study is to investigate the demands for social support of families with children with CP, as well as the repercussions of such demands in the child’s care. It is a descriptive-exploratory qualitative study, conducted with seven families whose children are attended to in a children’s outpatient clinic. The following categories emerged from the interview analysis: “demands for family support;” disbelief in the support network;” “impaired interaction with professionals” and “carrying on despite everything.” The demand for social support is evident, and it is essential that public policies and institutional and professional ties be implemented so that the family of a child with CP can receive integral and humanized assistance.doi: 10.5216/ree.v16i2.21112.La Parálisis Cerebral (PC) tiene significativa repercusión en la familia. El objeto del trabajo fue conocer las demandas de apoyo social que presenta la familia del niño con PC y cómo ellas repercuten en el cuidado brindado al niño. Se trata de una investigación descriptivo-exploratoria, con abordaje cualitativo, desarrollada con 7 familias de niños atendidos en un ambulatorio infantil. Del análisis de las entrevistas, surgieron las categorías: “demandas de apoyo de la familia”; “no credibilidad en la red de soporte”; “interacción deteriorada con los profesionales” y “enfrentamiento a pesar de todo”. La demanda de apoyo social es evidente, y resulta imprescindible que las políticas públicas, la vinculación institucional y profesional concurran para que exista una atención integral y humanizada a la familia como contexto de cuidado al niño con PC.doi: 10.5216/ree.v16i2.21112.A Paralisia Cerebral (PC) tem repercussão significativa na família. O objetivo deste trabalho foi conhecer as demandas de apoio social que a família da criança com PC tem e como elas repercutem no cuidado que presta à criança. Trata-se de pesquisa descritiva-exploratória, com abordagem qualitativa, desenvolvida com sete famílias de crianças assistidas em um ambulatório infantil. Da análise das entrevistas, emergiram as categorias: “demandas de apoio da família”; “descrença na rede de suporte”, “interação com os profissionais prejudicada” e “enfrentando apesar de tudo”. A demanda de apoio social é evidente, sendo imprescindível que políticas públicas e vinculação institucional e profissional ocorram para que haja assistência integral e humanizada à família com o contexto de cuidado à criança com PC. doi: 10.5216/ree.v16i2.21112.Faculdade de Enfermagem da UFG2014-06-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://revistas.ufg.br/fen/article/view/2111210.5216/ree.v16i2.21112Revista Eletrônica de Enfermagem; Vol. 16 No. 2 (2014); 417-25Revista Eletrônica de Enfermagem; v. 16 n. 2 (2014); 417-251518-1944reponame:Revista Eletrônica de Enfermageminstname:Universidade Federal de Goiás (UFG)instacron:UFGporhttps://revistas.ufg.br/fen/article/view/21112/17258Sandor, Elizane Regina SantosMarcon, Sonia SilvaFerreira, Noeli Marchioro Liston AndradeDupas, Giselleinfo:eu-repo/semantics/openAccess2019-09-24T21:22:44Zoai:ojs.revistas.ufg.br:article/21112Revistahttps://revistas.ufg.br/fenPUBhttps://revistas.ufg.br/fen/oairee.fen@ufg.br1518-19441518-1944opendoar:2019-09-24T21:22:44Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)false |
| dc.title.none.fl_str_mv |
Social support demands of families with children with cerebral palsy Demanda de apoyo social por la familia del niño con parálisis cerebral Demanda de apoio social pela família da criança com paralisia cerebral |
| title |
Social support demands of families with children with cerebral palsy |
| spellingShingle |
Social support demands of families with children with cerebral palsy Sandor, Elizane Regina Santos Family Cerebral Palsy Nursing Child Social Support Family Cerebral Palsy Nursing Child Social Support Familia Parálisis Cerebral Enfermería Niño Apoyo Social Familia Parálisis Cerebral Enfermería Niño Apoyo Social Família Paralisia Cerebral Enfermagem Criança Apoio Social. Família Paralisia Cerebral Enfermagem Criança Apoio Social. |
| title_short |
Social support demands of families with children with cerebral palsy |
| title_full |
Social support demands of families with children with cerebral palsy |
| title_fullStr |
Social support demands of families with children with cerebral palsy |
| title_full_unstemmed |
Social support demands of families with children with cerebral palsy |
| title_sort |
Social support demands of families with children with cerebral palsy |
| author |
Sandor, Elizane Regina Santos |
| author_facet |
Sandor, Elizane Regina Santos Marcon, Sonia Silva Ferreira, Noeli Marchioro Liston Andrade Dupas, Giselle |
| author_role |
author |
| author2 |
Marcon, Sonia Silva Ferreira, Noeli Marchioro Liston Andrade Dupas, Giselle |
| author2_role |
author author author |
| dc.contributor.author.fl_str_mv |
Sandor, Elizane Regina Santos Marcon, Sonia Silva Ferreira, Noeli Marchioro Liston Andrade Dupas, Giselle |
| dc.subject.por.fl_str_mv |
Family Cerebral Palsy Nursing Child Social Support Family Cerebral Palsy Nursing Child Social Support Familia Parálisis Cerebral Enfermería Niño Apoyo Social Familia Parálisis Cerebral Enfermería Niño Apoyo Social Família Paralisia Cerebral Enfermagem Criança Apoio Social. Família Paralisia Cerebral Enfermagem Criança Apoio Social. |
| topic |
Family Cerebral Palsy Nursing Child Social Support Family Cerebral Palsy Nursing Child Social Support Familia Parálisis Cerebral Enfermería Niño Apoyo Social Familia Parálisis Cerebral Enfermería Niño Apoyo Social Família Paralisia Cerebral Enfermagem Criança Apoio Social. Família Paralisia Cerebral Enfermagem Criança Apoio Social. |
| description |
Cerebral Palsy (CP) has significant repercussions in the family. The goal of the present study is to investigate the demands for social support of families with children with CP, as well as the repercussions of such demands in the child’s care. It is a descriptive-exploratory qualitative study, conducted with seven families whose children are attended to in a children’s outpatient clinic. The following categories emerged from the interview analysis: “demands for family support;” disbelief in the support network;” “impaired interaction with professionals” and “carrying on despite everything.” The demand for social support is evident, and it is essential that public policies and institutional and professional ties be implemented so that the family of a child with CP can receive integral and humanized assistance.doi: 10.5216/ree.v16i2.21112. |
| publishDate |
2014 |
| dc.date.none.fl_str_mv |
2014-06-30 |
| dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
| format |
article |
| status_str |
publishedVersion |
| dc.identifier.uri.fl_str_mv |
https://revistas.ufg.br/fen/article/view/21112 10.5216/ree.v16i2.21112 |
| url |
https://revistas.ufg.br/fen/article/view/21112 |
| identifier_str_mv |
10.5216/ree.v16i2.21112 |
| dc.language.iso.fl_str_mv |
por |
| language |
por |
| dc.relation.none.fl_str_mv |
https://revistas.ufg.br/fen/article/view/21112/17258 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
| dc.publisher.none.fl_str_mv |
Faculdade de Enfermagem da UFG |
| publisher.none.fl_str_mv |
Faculdade de Enfermagem da UFG |
| dc.source.none.fl_str_mv |
Revista Eletrônica de Enfermagem; Vol. 16 No. 2 (2014); 417-25 Revista Eletrônica de Enfermagem; v. 16 n. 2 (2014); 417-25 1518-1944 reponame:Revista Eletrônica de Enfermagem instname:Universidade Federal de Goiás (UFG) instacron:UFG |
| instname_str |
Universidade Federal de Goiás (UFG) |
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UFG |
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UFG |
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Revista Eletrônica de Enfermagem |
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Revista Eletrônica de Enfermagem |
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Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG) |
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ree.fen@ufg.br |
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1797049168641916928 |