Being-child with asthma: assuming its particularities and dealing with restrictions
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2017 |
| Outros Autores: | , , , , |
| Tipo de documento: | Artigo |
| Idioma: | por eng |
| Título da fonte: | Revista Eletrônica de Enfermagem |
| DOI: | 10.5216/ree.v19.45572 |
| Texto Completo: | https://revistas.ufg.br/fen/article/view/45572 |
Resumo: | The study aimed to comprehend how children with asthma and their families perceive themselves in their experience with the chronic disease and, how they develop their coping ways and care. We conducted a phenomenological study, with five families of children with moderate or severe asthma. Data collection occurred through interviews with the children and their families, during home visits, between September of 2013 and January of 2014. From the child’s perspective, the difficulty of dealing with fears, frustrations, and constraints related to the disease and treatment was apparent, especially at school. Family members emphasized the restrictions imposed in the child’s life and family environment, besides mentioning care attitudes demonstrating overprotection. Professionals involved in attention to childhood asthma need to value the child’s potentialities and the family autonomy in care actions, favoring the experience with the chronic disease and the empowerment for care. |
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Revista Eletrônica de Enfermagem |
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Being-child with asthma: assuming its particularities and dealing with restrictionsSer-criança com asma: assumindo suas particularidades e lidando com restriçõesPediatric NursingChildAsthmaFamilySchool HealthPediatric NursingChildAsthmaFamilySchool HealthEnfermagem PediátricaCriançaAsmaFamíliaSaúde EscolarEnfermagem PediátricaCriançaAsmaFamíliaSaúde EscolarThe study aimed to comprehend how children with asthma and their families perceive themselves in their experience with the chronic disease and, how they develop their coping ways and care. We conducted a phenomenological study, with five families of children with moderate or severe asthma. Data collection occurred through interviews with the children and their families, during home visits, between September of 2013 and January of 2014. From the child’s perspective, the difficulty of dealing with fears, frustrations, and constraints related to the disease and treatment was apparent, especially at school. Family members emphasized the restrictions imposed in the child’s life and family environment, besides mentioning care attitudes demonstrating overprotection. Professionals involved in attention to childhood asthma need to value the child’s potentialities and the family autonomy in care actions, favoring the experience with the chronic disease and the empowerment for care.Estudo objetivou compreender como crianças com asma e suas famílias se percebem no convívio com a doença crônica e desenvolvem seus modos de enfrentamento e cuidado. Trata-se de pesquisa fenomenológica, realizada com cinco famílias de crianças com asma moderada ou grave. A coleta de dados ocorreu por meio de entrevistas, realizadas junto às crianças e seus familiares, durante visitas domiciliares, entre setembro de 2013 e janeiro de 2014. Sob a ótica da criança, ficou clara a dificuldade em lidar com medos, frustrações e constrangimentos relacionados à doença e ao tratamento, especialmente na escola. Os familiares enfatizaram restrições impostas na vida da criança e no ambiente familiar, além de referirem atitudes de cuidado que demonstram superproteção. Profissionais envolvidos na atenção a asma infantil precisam valorizar potencialidades da criança e autonomia da família nas ações de cuidado, favorecendo o convívio com a doença crônica e o empoderamento para o cuidar.Faculdade de Enfermagem da UFG2017-12-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://revistas.ufg.br/fen/article/view/4557210.5216/ree.v19.45572Revista Eletrônica de Enfermagem; Vol. 19 (2017); a55Revista Eletrônica de Enfermagem; v. 19 (2017); a551518-1944reponame:Revista Eletrônica de Enfermageminstname:Universidade Federal de Goiás (UFG)instacron:UFGporenghttps://revistas.ufg.br/fen/article/view/45572/24986https://revistas.ufg.br/fen/article/view/45572/24987Copyright (c) 2018 Revista Eletrônica de Enfermagemhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSiqueira, Karina MachadoFernandes, Isabela Cristine FerreiraAraújo, Juliana ChavesSalge, Ana Karina MarquesCastral, Thaíla CorrêaBarbosa, Maria Alves2022-05-18T18:35:03Zoai:ojs.revistas.ufg.br:article/45572Revistahttps://revistas.ufg.br/fenPUBhttps://revistas.ufg.br/fen/oairee.fen@ufg.br1518-19441518-1944opendoar:2022-05-18T18:35:03Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)false |
| dc.title.none.fl_str_mv |
Being-child with asthma: assuming its particularities and dealing with restrictions Ser-criança com asma: assumindo suas particularidades e lidando com restrições |
| title |
Being-child with asthma: assuming its particularities and dealing with restrictions |
| spellingShingle |
Being-child with asthma: assuming its particularities and dealing with restrictions Being-child with asthma: assuming its particularities and dealing with restrictions Siqueira, Karina Machado Pediatric Nursing Child Asthma Family School Health Pediatric Nursing Child Asthma Family School Health Enfermagem Pediátrica Criança Asma Família Saúde Escolar Enfermagem Pediátrica Criança Asma Família Saúde Escolar Siqueira, Karina Machado Pediatric Nursing Child Asthma Family School Health Pediatric Nursing Child Asthma Family School Health Enfermagem Pediátrica Criança Asma Família Saúde Escolar Enfermagem Pediátrica Criança Asma Família Saúde Escolar |
| title_short |
Being-child with asthma: assuming its particularities and dealing with restrictions |
| title_full |
Being-child with asthma: assuming its particularities and dealing with restrictions |
| title_fullStr |
Being-child with asthma: assuming its particularities and dealing with restrictions Being-child with asthma: assuming its particularities and dealing with restrictions |
| title_full_unstemmed |
Being-child with asthma: assuming its particularities and dealing with restrictions Being-child with asthma: assuming its particularities and dealing with restrictions |
| title_sort |
Being-child with asthma: assuming its particularities and dealing with restrictions |
| author |
Siqueira, Karina Machado |
| author_facet |
Siqueira, Karina Machado Siqueira, Karina Machado Fernandes, Isabela Cristine Ferreira Araújo, Juliana Chaves Salge, Ana Karina Marques Castral, Thaíla Corrêa Barbosa, Maria Alves Fernandes, Isabela Cristine Ferreira Araújo, Juliana Chaves Salge, Ana Karina Marques Castral, Thaíla Corrêa Barbosa, Maria Alves |
| author_role |
author |
| author2 |
Fernandes, Isabela Cristine Ferreira Araújo, Juliana Chaves Salge, Ana Karina Marques Castral, Thaíla Corrêa Barbosa, Maria Alves |
| author2_role |
author author author author author |
| dc.contributor.author.fl_str_mv |
Siqueira, Karina Machado Fernandes, Isabela Cristine Ferreira Araújo, Juliana Chaves Salge, Ana Karina Marques Castral, Thaíla Corrêa Barbosa, Maria Alves |
| dc.subject.por.fl_str_mv |
Pediatric Nursing Child Asthma Family School Health Pediatric Nursing Child Asthma Family School Health Enfermagem Pediátrica Criança Asma Família Saúde Escolar Enfermagem Pediátrica Criança Asma Família Saúde Escolar |
| topic |
Pediatric Nursing Child Asthma Family School Health Pediatric Nursing Child Asthma Family School Health Enfermagem Pediátrica Criança Asma Família Saúde Escolar Enfermagem Pediátrica Criança Asma Família Saúde Escolar |
| description |
The study aimed to comprehend how children with asthma and their families perceive themselves in their experience with the chronic disease and, how they develop their coping ways and care. We conducted a phenomenological study, with five families of children with moderate or severe asthma. Data collection occurred through interviews with the children and their families, during home visits, between September of 2013 and January of 2014. From the child’s perspective, the difficulty of dealing with fears, frustrations, and constraints related to the disease and treatment was apparent, especially at school. Family members emphasized the restrictions imposed in the child’s life and family environment, besides mentioning care attitudes demonstrating overprotection. Professionals involved in attention to childhood asthma need to value the child’s potentialities and the family autonomy in care actions, favoring the experience with the chronic disease and the empowerment for care. |
| publishDate |
2017 |
| dc.date.none.fl_str_mv |
2017-12-31 |
| dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
| format |
article |
| status_str |
publishedVersion |
| dc.identifier.uri.fl_str_mv |
https://revistas.ufg.br/fen/article/view/45572 10.5216/ree.v19.45572 |
| url |
https://revistas.ufg.br/fen/article/view/45572 |
| identifier_str_mv |
10.5216/ree.v19.45572 |
| dc.language.iso.fl_str_mv |
por eng |
| language |
por eng |
| dc.relation.none.fl_str_mv |
https://revistas.ufg.br/fen/article/view/45572/24986 https://revistas.ufg.br/fen/article/view/45572/24987 |
| dc.rights.driver.fl_str_mv |
Copyright (c) 2018 Revista Eletrônica de Enfermagem https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
| rights_invalid_str_mv |
Copyright (c) 2018 Revista Eletrônica de Enfermagem https://creativecommons.org/licenses/by/4.0 |
| eu_rights_str_mv |
openAccess |
| dc.format.none.fl_str_mv |
application/pdf application/pdf |
| dc.publisher.none.fl_str_mv |
Faculdade de Enfermagem da UFG |
| publisher.none.fl_str_mv |
Faculdade de Enfermagem da UFG |
| dc.source.none.fl_str_mv |
Revista Eletrônica de Enfermagem; Vol. 19 (2017); a55 Revista Eletrônica de Enfermagem; v. 19 (2017); a55 1518-1944 reponame:Revista Eletrônica de Enfermagem instname:Universidade Federal de Goiás (UFG) instacron:UFG |
| instname_str |
Universidade Federal de Goiás (UFG) |
| instacron_str |
UFG |
| institution |
UFG |
| reponame_str |
Revista Eletrônica de Enfermagem |
| collection |
Revista Eletrônica de Enfermagem |
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Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG) |
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ree.fen@ufg.br |
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1822182185242722304 |
| dc.identifier.doi.none.fl_str_mv |
10.5216/ree.v19.45572 |