Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte social
Autor(a) principal: | |
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Data de Publicação: | 2024 |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | HU Revista (Online) |
Texto Completo: | https://periodicos.ufjf.br/index.php/hurevista/article/view/42105 |
Resumo: | Introduction: Chronic kidney disease consists of a context of losses for the patient, such as the loss of health and life that is shortened with the evolution of the disease, autonomy, social relationships, among others. Losses are also experienced by family members who suffer from the overload and limitations imposed by the care provided. This reality corresponds to processes of elaboration of losses and mourning that are experienced, by patients and family members, in an overlapping and constant way. Objective: to assess perspectives on death and correlate it with aspects of mental health and social support. Materials and Methods: Cross-sectional study with patients with chronic kidney disease undergoing dialysis and their families at the University Hospital of the Federal University of Juiz de Fora (HU/UFJF) in the city of Juiz de Fora, Minas Gerais. The instruments used were: Sociodemographic and health questionnaire, the Quality of Life Questionnaire (SF-36); Hospital Anxiety and Depression Scale (HADS), Perceived Social Support Scale (SPSS), Fatigue Pictogram (PF), Lipp Stress Symptom Inventory (ISSL) and Brief Perspectives on Death Scales (EBPM). For the statistical analysis, the variables were described as mean, standard deviation, median or frequency according to their characteristic. Pearson or Spearman correlation was performed, considering p<0.05. SPSS 17.0 statistical software. Results: There was a correlation between perspectives on death and aspects of quality of life, social support and stress. Discussion: Perspectives on death may be related to aspects of mental health and general quality of life of patients with chronic kidney disease and their families. Conclusion: it is essential to address perceptions about death, as well as to outline specific and interdisciplinary care strategies to improve the mental health and quality of life of patients and family caregivers in nephrology. |
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Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte socialChronic Kidney DiseaseDeathGriefMental healthSocial SupportInsuficiência Renal CrônicaMorteLutoSaúde MentalApoio SocialIntroduction: Chronic kidney disease consists of a context of losses for the patient, such as the loss of health and life that is shortened with the evolution of the disease, autonomy, social relationships, among others. Losses are also experienced by family members who suffer from the overload and limitations imposed by the care provided. This reality corresponds to processes of elaboration of losses and mourning that are experienced, by patients and family members, in an overlapping and constant way. Objective: to assess perspectives on death and correlate it with aspects of mental health and social support. Materials and Methods: Cross-sectional study with patients with chronic kidney disease undergoing dialysis and their families at the University Hospital of the Federal University of Juiz de Fora (HU/UFJF) in the city of Juiz de Fora, Minas Gerais. The instruments used were: Sociodemographic and health questionnaire, the Quality of Life Questionnaire (SF-36); Hospital Anxiety and Depression Scale (HADS), Perceived Social Support Scale (SPSS), Fatigue Pictogram (PF), Lipp Stress Symptom Inventory (ISSL) and Brief Perspectives on Death Scales (EBPM). For the statistical analysis, the variables were described as mean, standard deviation, median or frequency according to their characteristic. Pearson or Spearman correlation was performed, considering p<0.05. SPSS 17.0 statistical software. Results: There was a correlation between perspectives on death and aspects of quality of life, social support and stress. Discussion: Perspectives on death may be related to aspects of mental health and general quality of life of patients with chronic kidney disease and their families. Conclusion: it is essential to address perceptions about death, as well as to outline specific and interdisciplinary care strategies to improve the mental health and quality of life of patients and family caregivers in nephrology.Introdução: A doença renal crônica (DRC) consiste em um contexto de diversas perdas para pacientes e cuidadores. Essa realidade corresponde a processos de elaboração de perdas e lutos com impactos sobre saúde mental de ambos. Objetivo: Avaliar as perspectivas sobre morte e correlacionar com aspectos de saúde mental e suporte social. Materiais e Métodos: Estudo transversal com 31 participantes, sendo 14 pacientes com doença renal crônica em diálise em um Hospital Universitário no interior de Minas Gerais, Brasil, e 17 familiares. Os instrumentos utilizados foram: questionário sociodemográfico e de saúde, o Questionário de Qualidade de Vida (SF-36); Escala Hospitalar de Ansiedade e Depressão (HADS), Escala de Percepção do Suporte Social (SPSS), Pictograma de Fadiga, Inventário de Sintomas de Estresse de Lipp (ISSL) e Escalas Breves de Perspectivas Sobre Morte. Para a análise estatística as variáveis foram descritas como média, desvio padrão, mediana ou frequência conforme sua característica. Foi realizada a correlação de Pearson ou Spearman, considerando p<0,05. O software estatístico SPSS 17.0. Resultados: Os pacientes eram 50% do sexo feminino com idade média de 54,71 (±15,96) anos e os cuidadores eram 70,58% do sexo feminino, com idade média de 50,82 (±14,88) anos. Na avaliação geral, houve uma associação negativa do domínio físico do SF-36 com a perspectiva de “morte como coragem” (r= -0,37, p= 0,04), uma associação positiva dos sintomas de ansiedade (r= 0,36, p= 0,04) e de depressão (r= 0,46, p= 0,01) com a perspectiva de morte como “sofrimento e solidão”. Nos pacientes, houve uma associação negativa entre o suporte social prático e a EBPM-1 (r= -0,719, p= ,006). Nos cuidadores, houve uma associação positiva entre as fases do estresse e a EBPM-1 (r= 0,48, p= 0,05). Conclusão: As perspectivas sobre a morte se relacionam com aspectos de saúde mental e suporte social em pacientes com DRC e cuidadores.Editora UFJF2024-03-13info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtOrapplication/pdfhttps://periodicos.ufjf.br/index.php/hurevista/article/view/4210510.34019/1982-8047.2023.v49.42105HU Revista; v. 49 (2023); 1-101982-80470103-3123reponame:HU Revista (Online)instname:Universidade Federal de Juiz de Fora (UFJF)instacron:UFJFporhttps://periodicos.ufjf.br/index.php/hurevista/article/view/42105/27280Copyright (c) 2024 Beatriz dos Santos Pereirahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessPereira, Beatriz dos Santos2024-01-27T14:05:18Zoai:periodicos.ufjf.br:article/42105Revistahttps://periodicos.ufjf.br/index.php/hurevistaPUBhttps://periodicos.ufjf.br/index.php/hurevista/oairevista.hurevista@ufjf.edu.br1982-80470103-3123opendoar:2024-01-27T14:05:18HU Revista (Online) - Universidade Federal de Juiz de Fora (UFJF)false |
dc.title.none.fl_str_mv |
Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte social |
title |
Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte social |
spellingShingle |
Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte social Pereira, Beatriz dos Santos Chronic Kidney Disease Death Grief Mental health Social Support Insuficiência Renal Crônica Morte Luto Saúde Mental Apoio Social |
title_short |
Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte social |
title_full |
Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte social |
title_fullStr |
Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte social |
title_full_unstemmed |
Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte social |
title_sort |
Perspectivas sobre a morte em pacientes com doença renal crônica e seus cuidadores familiares: um olhar sobre a relação com a saúde mental e o suporte social |
author |
Pereira, Beatriz dos Santos |
author_facet |
Pereira, Beatriz dos Santos |
author_role |
author |
dc.contributor.author.fl_str_mv |
Pereira, Beatriz dos Santos |
dc.subject.por.fl_str_mv |
Chronic Kidney Disease Death Grief Mental health Social Support Insuficiência Renal Crônica Morte Luto Saúde Mental Apoio Social |
topic |
Chronic Kidney Disease Death Grief Mental health Social Support Insuficiência Renal Crônica Morte Luto Saúde Mental Apoio Social |
description |
Introduction: Chronic kidney disease consists of a context of losses for the patient, such as the loss of health and life that is shortened with the evolution of the disease, autonomy, social relationships, among others. Losses are also experienced by family members who suffer from the overload and limitations imposed by the care provided. This reality corresponds to processes of elaboration of losses and mourning that are experienced, by patients and family members, in an overlapping and constant way. Objective: to assess perspectives on death and correlate it with aspects of mental health and social support. Materials and Methods: Cross-sectional study with patients with chronic kidney disease undergoing dialysis and their families at the University Hospital of the Federal University of Juiz de Fora (HU/UFJF) in the city of Juiz de Fora, Minas Gerais. The instruments used were: Sociodemographic and health questionnaire, the Quality of Life Questionnaire (SF-36); Hospital Anxiety and Depression Scale (HADS), Perceived Social Support Scale (SPSS), Fatigue Pictogram (PF), Lipp Stress Symptom Inventory (ISSL) and Brief Perspectives on Death Scales (EBPM). For the statistical analysis, the variables were described as mean, standard deviation, median or frequency according to their characteristic. Pearson or Spearman correlation was performed, considering p<0.05. SPSS 17.0 statistical software. Results: There was a correlation between perspectives on death and aspects of quality of life, social support and stress. Discussion: Perspectives on death may be related to aspects of mental health and general quality of life of patients with chronic kidney disease and their families. Conclusion: it is essential to address perceptions about death, as well as to outline specific and interdisciplinary care strategies to improve the mental health and quality of life of patients and family caregivers in nephrology. |
publishDate |
2024 |
dc.date.none.fl_str_mv |
2024-03-13 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion ArtOr |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.ufjf.br/index.php/hurevista/article/view/42105 10.34019/1982-8047.2023.v49.42105 |
url |
https://periodicos.ufjf.br/index.php/hurevista/article/view/42105 |
identifier_str_mv |
10.34019/1982-8047.2023.v49.42105 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.ufjf.br/index.php/hurevista/article/view/42105/27280 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2024 Beatriz dos Santos Pereira https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2024 Beatriz dos Santos Pereira https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Editora UFJF |
publisher.none.fl_str_mv |
Editora UFJF |
dc.source.none.fl_str_mv |
HU Revista; v. 49 (2023); 1-10 1982-8047 0103-3123 reponame:HU Revista (Online) instname:Universidade Federal de Juiz de Fora (UFJF) instacron:UFJF |
instname_str |
Universidade Federal de Juiz de Fora (UFJF) |
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UFJF |
institution |
UFJF |
reponame_str |
HU Revista (Online) |
collection |
HU Revista (Online) |
repository.name.fl_str_mv |
HU Revista (Online) - Universidade Federal de Juiz de Fora (UFJF) |
repository.mail.fl_str_mv |
revista.hurevista@ufjf.edu.br |
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1796798239209422848 |