Experience report: multidisciplinary approach in aplastic anemia – developing an outpatient model of care

• Autor(a) principal: Ferreira, Adriana Aparecida
• Data de Publicação: 2021
• Outros Autores: Vieira, Camila Mariana de Araújo Silva, Wagner, Débora, Reis, Flávio Rodrigues
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: HU Revista (Online)
• Texto Completo: https://periodicos.ufjf.br/index.php/hurevista/article/view/32984
• topic: Anemia Aplástica;; Ambulatório Hospitalar; Assistência Integral à Saúde; Equipe de Assistência ao Paciente; Anemia, Aplastic; Outpatient Clinics, Hospital; Comprehensive Health Care; Patient Care Team

Introduction: Aplastic anemia is a rare hematological disease, which is associated with high morbidity and mortality. Treatment is defined by the patient's age, severity, comorbidities, and availability of a compatible donor for hematopoietic stem-cell transplantation. Care for patients with aplastic anemia is complex, due to the rarity of the condition and to the seriousness of the manifestations, and can be improved by the work of a multidisciplinary team, aiming at integrated health care. Objective: To describe the work of a multidisciplinary team in outpatient care for patients with aplastic anemia at a University Hospital. Experience Report: As of March 2016, the Hematology Service of a University Hospital reorganized the Aplasia Outpatient Clinic, proposing to carry out medical consultations, collection and assessment of laboratory tests, and transfusions, all on the institution's premises and on the same day of the week, decreasing the need for patient visits to multiple health services. Since then, 32 patients from the Zona da Mata Mineira and Campo das Vertentes mesoregions have been included in this clinical follow-up model, with a low rate of absenteeism in the scheduled consultations. According to the needs presented by patients or perceived by doctors, the Aplasias Outpatient Clinic offers, in addition to the routine care provided by the Nursing teams and the Transfusion Agency, assessment from the services for Psychology, Dentistry, Nutrition, Physiotherapy, Social Service, and referrals to other medical specialties. Conclusion: The multidisciplinary approach employed seeks to improve the quality of life of the patients, strengthening their relationship with professionals, adherence to treatment, and understanding of the disease not only as a medical-biological factor, but as a process linked to the patient's life history and social environment. We believe that this model can be reproduced in other services, aiming to increase the quality of care for people with aplastic anemia.