Cerebral palsy: a study on family coping

• Autor(a) principal: Andrade, Mariana Beserra de
• Data de Publicação: 2011
• Outros Autores: Vieira, Sheila de Souza, Dupas, Giselle
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Reme (Online)
• Texto Completo: https://periodicos.ufmg.br/index.php/reme/article/view/50416
• topic: Chronic Disease; Family; Cerebral Palsy; Nursing; Enfermedad Crónica; Familia; Parálisis Cerebral; Enfermería; Doença Crônica; Família; Paralisia Cerebral; Enfermagem

Cerebral Palsy refers to conditions caused by damage to specific areas of the brain. It is a chronic condition that defies the family and the child to live with adaptations and challenges. This study aims to understand the family's experience in living with a child with cerebral palsy, to identify the changes in family life and the coping mechanisms used. Seven families were interviewed. We adopted the Symbolic Interactionism as a theoretical perspective and the Narrative as a methodological reference. The narrative analysis identified seven categories that demonstrate the family's experience in coping with a child who has cerebral palsy: experiencing an impact, facing the new situation, facing difficulties and prejudice, changes in life priorities, overcoming challenges, recognizing that is a good thing, expectations for the future. The results indicate how complex these families' experience is and emphasize their desire that their child has a life as close to normal as possible, with no prejudice and a better access to health, education and social life. The results also highlight how the presence of the professional nurse can support them in the process.