Quality of life and burden in caregivers of children with cerebral palsy
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Data de Publicação: | 2018 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Revista Brasileira em Promoção da Saúde |
Texto Completo: | https://ojs.unifor.br/RBPS/article/view/7748 |
Resumo: | Objective: To analyze the association of Quality of Life (QoL) and caregiving burden with the degree of neuromotor impairment in children with cerebral palsy (CP). Methods: Cross-sectional study carried out in 2014 with 38 caregivers of children with cerebral palsy attending the Physiatry and Rehabilitation Clinic of the Hospital de Clínicas of Porto Alegre, Rio Grande do Sul, Brazil. The World Health Organization Quality of Life Questionnaire (WHOQOL - BREF), the Beck Depression Inventory (BDI), the Beck Anxiety Inventory (BAI), the State-Trait Anxiety Inventory (STAI), and the Zarit Burden Interview (ZBI) were used. The degree of children’s motor development was assessed using the Gross Motor Function Classification System (GMFCS). We checked for associations (Pearson’s coefficient) between variables and they were described as mean and standard deviation, or median, and interquartile range. Results: There were 20 caregivers (52.6%) with a moderate burden. The domain Social Relationships, of the WHOQOL – BREF, was associated with children’s motor development (rs=0.355; p=0.029), and there was a positive association between ZBI and STAI scores (rs=0.540; p |
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Quality of life and burden in caregivers of children with cerebral palsyCalidad de vida y sobrecarga de cuidadores de niños con parálisis cerebralQualidade de vida e sobrecarga de cuidadores de crianças com paralisia cerebralCerebral PalsyQuality of LifeDepressionAnxietyCaregivers.Parálisis CerebralCalidad de VidaTrastornos de AdaptaciónAnsiedadCuidadores.Paralisia CerebralQualidade de VidaDepressãoAnsiedadeCuidadores.Objective: To analyze the association of Quality of Life (QoL) and caregiving burden with the degree of neuromotor impairment in children with cerebral palsy (CP). Methods: Cross-sectional study carried out in 2014 with 38 caregivers of children with cerebral palsy attending the Physiatry and Rehabilitation Clinic of the Hospital de Clínicas of Porto Alegre, Rio Grande do Sul, Brazil. The World Health Organization Quality of Life Questionnaire (WHOQOL - BREF), the Beck Depression Inventory (BDI), the Beck Anxiety Inventory (BAI), the State-Trait Anxiety Inventory (STAI), and the Zarit Burden Interview (ZBI) were used. The degree of children’s motor development was assessed using the Gross Motor Function Classification System (GMFCS). We checked for associations (Pearson’s coefficient) between variables and they were described as mean and standard deviation, or median, and interquartile range. Results: There were 20 caregivers (52.6%) with a moderate burden. The domain Social Relationships, of the WHOQOL – BREF, was associated with children’s motor development (rs=0.355; p=0.029), and there was a positive association between ZBI and STAI scores (rs=0.540; pObjetivo: Analizar la relación entre la calidad de vida (CV) y la sobrecarga de los cuidadores relacionados al grado de comprometimiento neuromotor de niños con parálisis cerebral (PC). Métodos: Estudio transversal realizado en 2014 con 38 cuidadores de niños con parálisis cerebral asistidos por el servicio de Fisiatría y Rehabilitación del Hospital de las Clínicas de Porto Alegre, Rio Grande do Sul, Brasil. Se utilizaron los instrumentos World Health Organization Quality of Life Questionaire (WHOQOL – BREF), el Beck Depression Inventory (BDI), el Beck Anxiety Inventory (BAI), el Inventario de Ansiedad Trazo-Estado (IDATE) y el Zarit Caregiver Burden Interview (ZCBI). Se evaluó el grado de desarrollo motor de los niños con el Gross Motor Function Classification System (GMFCS). Se evaluaron las asociaciones (coeficiente de Pearson) entre las variables descritas por la media y la desviación típica o la mediana, y la amplitud interquartílica. Resultados: Se han encontrado 20 cuidadores (52,6%) con sobrecarga moderada. Se han encontrado asociaciones en el dominio social del WHOQOL-BREF respecto el desarrollo motor de los niños (rs=0,355; p=0,029) y asociación positiva entre la ZCBI y las puntuaciones del IDATE (rs=0,540; pObjetivo: Analisar a relação entre qualidade de vida (QV) e sobrecarga dos cuidadores relacionados ao grau de comprometimento neuromotor de crianças com paralisia cerebral (PC). Métodos: Estudo transversal realizado em 2014, com 38 cuidadores de crianças com paralisia cerebral atendidas pelo serviço de Fisiatria e Reabilitação do Hospital de Clínicas de Porto Alegre, Rio Grande do Sul, Brasil. Utilizaram-se os instrumentos World Health Organization Quality of Life Questionaire (WHOQOL – BREF), Beck Depression Inventory (BDI), Beck Anxiety Inventory (BAI), Inventário de Ansiedade Traço-Estado (IDATE) e Zarit Caregiver Burden Interview (ZCBI). Avaliou-se o grau de desenvolvimento motor das crianças pelo Gross Motor Function Classification System (GMFCS). Avaliaram-se as associações (coeficiente de Pearson) entre as variáveis descritas por média e desvio padrão, ou mediana, e amplitude interquartílica. Resultados: Encontraram-se 20 cuidadores (52,6%) com sobrecarga moderada. Encontraram-se associações no domínio social da WHOQOL-BREF em relação ao desenvolvimento motor das crianças (rs=0,355; p=0,029) e associação positiva entre a ZCBI e os escores do IDATE (rs=0,540; pUniversidade de Fortaleza2018-10-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion"Peer-reviewed Article""Avaliado pelos pares""Avaliado pelos pares"application/pdfapplication/pdfhttps://ojs.unifor.br/RBPS/article/view/774810.5020/18061230.2018.7748Brazilian Journal in Health Promotion; Vol. 31 No. 3 (2018)Revista Brasileña en Promoción de la Salud; Vol. 31 Núm. 3 (2018)Revista Brasileira em Promoção da Saúde; v. 31 n. 3 (2018)1806-1230reponame:Revista Brasileira em Promoção da Saúdeinstname:Universidade de Fortaleza (Unifor)instacron:UFORporenghttps://ojs.unifor.br/RBPS/article/view/7748/pdfhttps://ojs.unifor.br/RBPS/article/view/7748/pdf_1Copyright (c) 2018 Revista Brasileira em Promoção da Saúdeinfo:eu-repo/semantics/openAccessSouza, Jandara de MouraMachado, Fabiana Rita CamaraAntunes, Priscilla PereiraSantos, Antônio Cardoso dosLevandowski, Daniela CentenaroOliveira Jr, Alcyr Alves de2022-02-16T12:40:21Zoai:ojs.ojs.unifor.br:article/7748Revistahttps://periodicos.unifor.br/RBPS/oai1806-12301806-1222opendoar:2022-02-16T12:40:21Revista Brasileira em Promoção da Saúde - Universidade de Fortaleza (Unifor)false |
dc.title.none.fl_str_mv |
Quality of life and burden in caregivers of children with cerebral palsy Calidad de vida y sobrecarga de cuidadores de niños con parálisis cerebral Qualidade de vida e sobrecarga de cuidadores de crianças com paralisia cerebral |
title |
Quality of life and burden in caregivers of children with cerebral palsy |
spellingShingle |
Quality of life and burden in caregivers of children with cerebral palsy Souza, Jandara de Moura Cerebral Palsy Quality of Life Depression Anxiety Caregivers. Parálisis Cerebral Calidad de Vida Trastornos de Adaptación Ansiedad Cuidadores. Paralisia Cerebral Qualidade de Vida Depressão Ansiedade Cuidadores. |
title_short |
Quality of life and burden in caregivers of children with cerebral palsy |
title_full |
Quality of life and burden in caregivers of children with cerebral palsy |
title_fullStr |
Quality of life and burden in caregivers of children with cerebral palsy |
title_full_unstemmed |
Quality of life and burden in caregivers of children with cerebral palsy |
title_sort |
Quality of life and burden in caregivers of children with cerebral palsy |
author |
Souza, Jandara de Moura |
author_facet |
Souza, Jandara de Moura Machado, Fabiana Rita Camara Antunes, Priscilla Pereira Santos, Antônio Cardoso dos Levandowski, Daniela Centenaro Oliveira Jr, Alcyr Alves de |
author_role |
author |
author2 |
Machado, Fabiana Rita Camara Antunes, Priscilla Pereira Santos, Antônio Cardoso dos Levandowski, Daniela Centenaro Oliveira Jr, Alcyr Alves de |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Souza, Jandara de Moura Machado, Fabiana Rita Camara Antunes, Priscilla Pereira Santos, Antônio Cardoso dos Levandowski, Daniela Centenaro Oliveira Jr, Alcyr Alves de |
dc.subject.por.fl_str_mv |
Cerebral Palsy Quality of Life Depression Anxiety Caregivers. Parálisis Cerebral Calidad de Vida Trastornos de Adaptación Ansiedad Cuidadores. Paralisia Cerebral Qualidade de Vida Depressão Ansiedade Cuidadores. |
topic |
Cerebral Palsy Quality of Life Depression Anxiety Caregivers. Parálisis Cerebral Calidad de Vida Trastornos de Adaptación Ansiedad Cuidadores. Paralisia Cerebral Qualidade de Vida Depressão Ansiedade Cuidadores. |
description |
Objective: To analyze the association of Quality of Life (QoL) and caregiving burden with the degree of neuromotor impairment in children with cerebral palsy (CP). Methods: Cross-sectional study carried out in 2014 with 38 caregivers of children with cerebral palsy attending the Physiatry and Rehabilitation Clinic of the Hospital de Clínicas of Porto Alegre, Rio Grande do Sul, Brazil. The World Health Organization Quality of Life Questionnaire (WHOQOL - BREF), the Beck Depression Inventory (BDI), the Beck Anxiety Inventory (BAI), the State-Trait Anxiety Inventory (STAI), and the Zarit Burden Interview (ZBI) were used. The degree of children’s motor development was assessed using the Gross Motor Function Classification System (GMFCS). We checked for associations (Pearson’s coefficient) between variables and they were described as mean and standard deviation, or median, and interquartile range. Results: There were 20 caregivers (52.6%) with a moderate burden. The domain Social Relationships, of the WHOQOL – BREF, was associated with children’s motor development (rs=0.355; p=0.029), and there was a positive association between ZBI and STAI scores (rs=0.540; p |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-10-31 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion "Peer-reviewed Article" "Avaliado pelos pares" "Avaliado pelos pares" |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://ojs.unifor.br/RBPS/article/view/7748 10.5020/18061230.2018.7748 |
url |
https://ojs.unifor.br/RBPS/article/view/7748 |
identifier_str_mv |
10.5020/18061230.2018.7748 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://ojs.unifor.br/RBPS/article/view/7748/pdf https://ojs.unifor.br/RBPS/article/view/7748/pdf_1 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2018 Revista Brasileira em Promoção da Saúde info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2018 Revista Brasileira em Promoção da Saúde |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Universidade de Fortaleza |
publisher.none.fl_str_mv |
Universidade de Fortaleza |
dc.source.none.fl_str_mv |
Brazilian Journal in Health Promotion; Vol. 31 No. 3 (2018) Revista Brasileña en Promoción de la Salud; Vol. 31 Núm. 3 (2018) Revista Brasileira em Promoção da Saúde; v. 31 n. 3 (2018) 1806-1230 reponame:Revista Brasileira em Promoção da Saúde instname:Universidade de Fortaleza (Unifor) instacron:UFOR |
instname_str |
Universidade de Fortaleza (Unifor) |
instacron_str |
UFOR |
institution |
UFOR |
reponame_str |
Revista Brasileira em Promoção da Saúde |
collection |
Revista Brasileira em Promoção da Saúde |
repository.name.fl_str_mv |
Revista Brasileira em Promoção da Saúde - Universidade de Fortaleza (Unifor) |
repository.mail.fl_str_mv |
|
_version_ |
1808844184693506048 |