Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãos
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Tipo de documento: | Tese |
Idioma: | por |
Título da fonte: | Biblioteca Digital de Teses e Dissertações da UFPB |
Texto Completo: | https://repositorio.ufpb.br/jspui/handle/123456789/21394 |
Resumo: | Autistic Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by a continuum of losses, with different intensities and early manifestation in the socio-communicative domain and through restrictive and repetitive behaviors. Considering these characteristics, the experiences related to them and their influence on development, the role of family contexts and, more specifically, the interactions established between siblings in this process stands out. Substantiating on the bioecological model, it is based on the understanding that multiple factors are related to these contexts, and the coexistence with a family member with ASD can be influenced by a variety of aspects related to the characteristics of people, processes, contexts and time (PPCT). In this direction, this thesis aims to analyze the conceptions about family experiences and the interactions between siblings of families of individuals with ASD. Therefore, five studies were performed. The first presents theoretical and methodological aspects of the bioecological model, articulating them with ASD and fraternal experiences. The results demonstrate the relevance of the model's applicability to the studied phenomenon, as it elucidates positive aspects of development, which can act in these experiences and assist families and professionals. The second study aimed to analyze the conceptions of young people with ASD, their mothers and siblings concerning their family experiences. Interviews were conducted with 12 mothers, 17 siblings of individuals with ASD and two teenagers with ASD, which were transcribed and analyzed using the content analysis technique. According to the results, the respondents used protective factors through their activities, conceptions and support networks, despite the presence of risk factors. The third study aimed to analyze interactions between siblings with typical development and those with ASD, in situations of free play, based on three case studies. The proximal processes were analyzed in terms of interactional episodes and the data triangulation technique was used, due to the different instruments in the research design. The study showed the importance of daily activities for the siblings' development. The inter-influences between the PPCT dimensions were elucidative of the interactions and their duration time was influenced by previous knowledge of activities and objects and by the characteristics of interactions between peers. It stands out that the maternal mediation played a prominent role in this process. The fourth study brings an experience of research feedback through the focus group technique and analyzes the contents that emerged from the speeches of five mothers of young people with ASD. The meeting was recorded and registered in field diaries. The recordings were transcribed, analyzed, discussed and presented in eight categories. The mothers highlighted themes related to ecological transitions such as: the moment of diagnosis, fear of their finitude and preparation of children to this stage, in addition to the need for support, guidance and strategies related to the coexistence with their children. The fifth study deals with the experience of four teenagers, siblings of individuals with ASD, facing research's return from a conversation circle. Data were registered in recordings and field diaries. The recordings were transcribed, analyzed and discussed based on the literature. The teenagers showed interest on the responses of the peers, as it indicates the importance of exchanging experiences. The statements were characterized by empathy, maturity and naturalness in sharing reports. They also reported feeling represented by the survey results and made suggestions to other families. It was found that the strategies used by families and their support networks can favor emotional support and that interactions in these contexts can promote development. It is expected to contribute to the development of new research and interventions in the area. |
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Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãosTranstorno do Espectro AutistaFamíliaIrmãosModelo bioecológicoAutistic Spectrum DisorderFamilySiblingsBioecological modelCNPQ::CIENCIAS HUMANAS::PSICOLOGIA::PSICOLOGIA SOCIALAutistic Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by a continuum of losses, with different intensities and early manifestation in the socio-communicative domain and through restrictive and repetitive behaviors. Considering these characteristics, the experiences related to them and their influence on development, the role of family contexts and, more specifically, the interactions established between siblings in this process stands out. Substantiating on the bioecological model, it is based on the understanding that multiple factors are related to these contexts, and the coexistence with a family member with ASD can be influenced by a variety of aspects related to the characteristics of people, processes, contexts and time (PPCT). In this direction, this thesis aims to analyze the conceptions about family experiences and the interactions between siblings of families of individuals with ASD. Therefore, five studies were performed. The first presents theoretical and methodological aspects of the bioecological model, articulating them with ASD and fraternal experiences. The results demonstrate the relevance of the model's applicability to the studied phenomenon, as it elucidates positive aspects of development, which can act in these experiences and assist families and professionals. The second study aimed to analyze the conceptions of young people with ASD, their mothers and siblings concerning their family experiences. Interviews were conducted with 12 mothers, 17 siblings of individuals with ASD and two teenagers with ASD, which were transcribed and analyzed using the content analysis technique. According to the results, the respondents used protective factors through their activities, conceptions and support networks, despite the presence of risk factors. The third study aimed to analyze interactions between siblings with typical development and those with ASD, in situations of free play, based on three case studies. The proximal processes were analyzed in terms of interactional episodes and the data triangulation technique was used, due to the different instruments in the research design. The study showed the importance of daily activities for the siblings' development. The inter-influences between the PPCT dimensions were elucidative of the interactions and their duration time was influenced by previous knowledge of activities and objects and by the characteristics of interactions between peers. It stands out that the maternal mediation played a prominent role in this process. The fourth study brings an experience of research feedback through the focus group technique and analyzes the contents that emerged from the speeches of five mothers of young people with ASD. The meeting was recorded and registered in field diaries. The recordings were transcribed, analyzed, discussed and presented in eight categories. The mothers highlighted themes related to ecological transitions such as: the moment of diagnosis, fear of their finitude and preparation of children to this stage, in addition to the need for support, guidance and strategies related to the coexistence with their children. The fifth study deals with the experience of four teenagers, siblings of individuals with ASD, facing research's return from a conversation circle. Data were registered in recordings and field diaries. The recordings were transcribed, analyzed and discussed based on the literature. The teenagers showed interest on the responses of the peers, as it indicates the importance of exchanging experiences. The statements were characterized by empathy, maturity and naturalness in sharing reports. They also reported feeling represented by the survey results and made suggestions to other families. It was found that the strategies used by families and their support networks can favor emotional support and that interactions in these contexts can promote development. It is expected to contribute to the development of new research and interventions in the area.Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPESO Transtorno do Espectro Autista (TEA) é um transtorno do neurodesenvolvimento caracterizado por um continuum de prejuízos, com intensidades diferentes e manifestação precoce no domínio sociocomunicativo, por meio de comportamentos restritivos e repetitivos. Considerando estas características, as vivências a elas relacionadas e sua influência no desenvolvimento, destaca-se o papel dos contextos familiares e, mais especificamente, das interações estabelecidas entre os irmãos nesse processo. Fundamentada no modelo bioecológico, parte-se da compreensão de que múltiplos fatores se relacionam com estes contextos, e a convivência com um membro na família com TEA pode ser influenciada por uma variedade de aspectos relacionados às características das pessoas, dos processos, dos contextos e do tempo (PPCT). Nessa direção, esta tese objetiva analisar as concepções sobre vivências familiares e as interações entre irmãos em famílias de indivíduos com TEA. Para tanto, foram realizados cinco estudos. O primeiro apresenta aspectos teórico-metodológicos do modelo bioecológico articulando-os ao TEA e às vivências fraternas. Os resultados demonstram a relevância da aplicabilidade do modelo ao fenômeno estudado, por elucidar aspectos positivos do desenvolvimento, que podem atuar nessas vivências e auxiliar famílias e profissionais. O segundo estudo objetivou analisar as concepções de adolescentes com TEA, suas mães e irmãos acerca de suas vivências familiares. Foram realizadas entrevistas com 12 mães, 17 irmãos de indivíduos com TEA e dois adolescentes com TEA, as quais foram transcritas e analisadas por meio da técnica de análise de conteúdo. De acordo com os resultados, os entrevistados utilizam fatores de proteção através de suas atividades, concepções e redes de apoio, apesar da presença de fatores de risco. O terceiro estudo objetivou analisar interações entre irmãos com desenvolvimento típico e aqueles com TEA, em situações de brincadeira livre, a partir de três estudos de caso. Os processos proximais foram analisados em termos de episódios interacionais e foi utilizada a técnica de triangulação dos dados, devido aos diferentes instrumentos no delineamento da pesquisa. O estudo mostrou a importância das atividades cotidianas para o desenvolvimento dos irmãos. As interinfluências entre as dimensões PPCT foram elucidativas das interações e seu tempo de duração foi influenciado pelo conhecimento prévio das atividades e dos objetos e pelas características das interações entre pares. Ressalta-se que a mediação materna teve um papel proeminente nesse processo. O quarto estudo traz uma experiência de devolutiva de pesquisa por meio da técnica de grupo focal e analisa os conteúdos que emergiram dos discursos de cinco mães de jovens com TEA. O encontro foi gravado e registrado em diários de campo. As gravações foram transcritas, analisadas, discutidas e apresentadas em oito categorias. As mães destacaram temas relacionados às transições ecológicas como: momento do diagnóstico, receio em relação à sua finitude e preparação dos filhos para essa etapa, além da necessidade de apoio, orientações e estratégias relacionadas à convivência com os filhos. O quinto estudo versa sobre a experiência com quatro adolescentes, irmãos de indivíduos com TEA, diante da devolutiva da pesquisa a partir de uma roda de conversa. Os dados foram registrados em gravações e diários de campo. As gravações foram transcritas, analisadas e discutidas com base na literatura. Os adolescentes demonstraram interesse em conhecer as respostas dos pares, dado que indica a importância da troca de experiências. As falas foram caracterizadas por empatia, maturidade e naturalidade no compartilhamento de relatos. Eles também relataram se sentirem representados com os resultados da pesquisa e elaboraram sugestões para outras famílias. Verificou-se que as estratégias utilizadas pelas famílias e suas redes de apoio podem favorecer suporte emocional e que as interações nestes contextos podem ser promotoras de desenvolvimento. Espera-se contribuir para o desenvolvimento de novas pesquisas e intervenções na área.Universidade Federal da ParaíbaBrasilPsicologia SocialPrograma de Pós-Graduação em Psicologia SocialUFPBSalomão, Nádia Maria Ribeirohttp://lattes.cnpq.br/3902826468687122Lemos, Emellyne Lima de Medeiros Dias2021-11-11T19:00:18Z2021-04-152021-11-11T19:00:18Z2020-12-16info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesishttps://repositorio.ufpb.br/jspui/handle/123456789/21394porAttribution-NoDerivs 3.0 Brazilhttp://creativecommons.org/licenses/by-nd/3.0/br/info:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UFPBinstname:Universidade Federal da Paraíba (UFPB)instacron:UFPB2022-08-09T17:07:00Zoai:repositorio.ufpb.br:123456789/21394Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufpb.br/PUBhttp://tede.biblioteca.ufpb.br:8080/oai/requestdiretoria@ufpb.br|| diretoria@ufpb.bropendoar:2022-08-09T17:07Biblioteca Digital de Teses e Dissertações da UFPB - Universidade Federal da Paraíba (UFPB)false |
dc.title.none.fl_str_mv |
Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãos |
title |
Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãos |
spellingShingle |
Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãos Lemos, Emellyne Lima de Medeiros Dias Transtorno do Espectro Autista Família Irmãos Modelo bioecológico Autistic Spectrum Disorder Family Siblings Bioecological model CNPQ::CIENCIAS HUMANAS::PSICOLOGIA::PSICOLOGIA SOCIAL |
title_short |
Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãos |
title_full |
Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãos |
title_fullStr |
Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãos |
title_full_unstemmed |
Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãos |
title_sort |
Transtorno do Espectro Autista: um estudo sobre concepções familiares e interações entre irmãos |
author |
Lemos, Emellyne Lima de Medeiros Dias |
author_facet |
Lemos, Emellyne Lima de Medeiros Dias |
author_role |
author |
dc.contributor.none.fl_str_mv |
Salomão, Nádia Maria Ribeiro http://lattes.cnpq.br/3902826468687122 |
dc.contributor.author.fl_str_mv |
Lemos, Emellyne Lima de Medeiros Dias |
dc.subject.por.fl_str_mv |
Transtorno do Espectro Autista Família Irmãos Modelo bioecológico Autistic Spectrum Disorder Family Siblings Bioecological model CNPQ::CIENCIAS HUMANAS::PSICOLOGIA::PSICOLOGIA SOCIAL |
topic |
Transtorno do Espectro Autista Família Irmãos Modelo bioecológico Autistic Spectrum Disorder Family Siblings Bioecological model CNPQ::CIENCIAS HUMANAS::PSICOLOGIA::PSICOLOGIA SOCIAL |
description |
Autistic Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by a continuum of losses, with different intensities and early manifestation in the socio-communicative domain and through restrictive and repetitive behaviors. Considering these characteristics, the experiences related to them and their influence on development, the role of family contexts and, more specifically, the interactions established between siblings in this process stands out. Substantiating on the bioecological model, it is based on the understanding that multiple factors are related to these contexts, and the coexistence with a family member with ASD can be influenced by a variety of aspects related to the characteristics of people, processes, contexts and time (PPCT). In this direction, this thesis aims to analyze the conceptions about family experiences and the interactions between siblings of families of individuals with ASD. Therefore, five studies were performed. The first presents theoretical and methodological aspects of the bioecological model, articulating them with ASD and fraternal experiences. The results demonstrate the relevance of the model's applicability to the studied phenomenon, as it elucidates positive aspects of development, which can act in these experiences and assist families and professionals. The second study aimed to analyze the conceptions of young people with ASD, their mothers and siblings concerning their family experiences. Interviews were conducted with 12 mothers, 17 siblings of individuals with ASD and two teenagers with ASD, which were transcribed and analyzed using the content analysis technique. According to the results, the respondents used protective factors through their activities, conceptions and support networks, despite the presence of risk factors. The third study aimed to analyze interactions between siblings with typical development and those with ASD, in situations of free play, based on three case studies. The proximal processes were analyzed in terms of interactional episodes and the data triangulation technique was used, due to the different instruments in the research design. The study showed the importance of daily activities for the siblings' development. The inter-influences between the PPCT dimensions were elucidative of the interactions and their duration time was influenced by previous knowledge of activities and objects and by the characteristics of interactions between peers. It stands out that the maternal mediation played a prominent role in this process. The fourth study brings an experience of research feedback through the focus group technique and analyzes the contents that emerged from the speeches of five mothers of young people with ASD. The meeting was recorded and registered in field diaries. The recordings were transcribed, analyzed, discussed and presented in eight categories. The mothers highlighted themes related to ecological transitions such as: the moment of diagnosis, fear of their finitude and preparation of children to this stage, in addition to the need for support, guidance and strategies related to the coexistence with their children. The fifth study deals with the experience of four teenagers, siblings of individuals with ASD, facing research's return from a conversation circle. Data were registered in recordings and field diaries. The recordings were transcribed, analyzed and discussed based on the literature. The teenagers showed interest on the responses of the peers, as it indicates the importance of exchanging experiences. The statements were characterized by empathy, maturity and naturalness in sharing reports. They also reported feeling represented by the survey results and made suggestions to other families. It was found that the strategies used by families and their support networks can favor emotional support and that interactions in these contexts can promote development. It is expected to contribute to the development of new research and interventions in the area. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-12-16 2021-11-11T19:00:18Z 2021-04-15 2021-11-11T19:00:18Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/doctoralThesis |
format |
doctoralThesis |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://repositorio.ufpb.br/jspui/handle/123456789/21394 |
url |
https://repositorio.ufpb.br/jspui/handle/123456789/21394 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.rights.driver.fl_str_mv |
Attribution-NoDerivs 3.0 Brazil http://creativecommons.org/licenses/by-nd/3.0/br/ info:eu-repo/semantics/openAccess |
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Attribution-NoDerivs 3.0 Brazil http://creativecommons.org/licenses/by-nd/3.0/br/ |
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openAccess |
dc.publisher.none.fl_str_mv |
Universidade Federal da Paraíba Brasil Psicologia Social Programa de Pós-Graduação em Psicologia Social UFPB |
publisher.none.fl_str_mv |
Universidade Federal da Paraíba Brasil Psicologia Social Programa de Pós-Graduação em Psicologia Social UFPB |
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reponame:Biblioteca Digital de Teses e Dissertações da UFPB instname:Universidade Federal da Paraíba (UFPB) instacron:UFPB |
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Universidade Federal da Paraíba (UFPB) |
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UFPB |
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UFPB |
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Biblioteca Digital de Teses e Dissertações da UFPB |
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Biblioteca Digital de Teses e Dissertações da UFPB |
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Biblioteca Digital de Teses e Dissertações da UFPB - Universidade Federal da Paraíba (UFPB) |
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diretoria@ufpb.br|| diretoria@ufpb.br |
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1801842984495349760 |