The clinical and social vulnerability of children with special healthcare needs.

Detalhes bibliográficos
Autor(a) principal: Tatsch Neves, Eliane
Data de Publicação: 2008
Outros Autores: Evangelista Cabral, Ivone
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Gaúcha de Enfermagem
Texto Completo: https://seer.ufrgs.br/index.php/rgenf/article/view/5533
Resumo: Children with special healthcare needs (CSHCN) require increasing care by relatives and health services. Due to the ‘invisibility’ of this group, a qualitative studied was carried out to analyze and to discuss the dimension of physical care provided to CSHCN. The studied included the analyses of the patients’ records, interviews of family caretakers in a university hospital in southern Brazil, and the application of a sensitive creative method. Findings showed that these children are clinically and socially vulnerable. Consequently, during home care, their caretakers face challenges related to care complexity and to the fact of being women. The presence of the State is scarce, and follow-up nursing after discharge is absent. It is recommended that these caretakers are taught some nursing knowledge, and that actions are taken to improve prenatal care services as a preventive measure.
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spelling The clinical and social vulnerability of children with special healthcare needs.La fragilidad clínica y la vulnerabilidad social de los niños con necesidades especiales de salud.A fragilidade clínica e a vulnerabilidade social das crianças com necessidades especiais de saúdeEnfermagem pediátricaSaúde da criançaCuidadores.Children with special healthcare needs (CSHCN) require increasing care by relatives and health services. Due to the ‘invisibility’ of this group, a qualitative studied was carried out to analyze and to discuss the dimension of physical care provided to CSHCN. The studied included the analyses of the patients’ records, interviews of family caretakers in a university hospital in southern Brazil, and the application of a sensitive creative method. Findings showed that these children are clinically and socially vulnerable. Consequently, during home care, their caretakers face challenges related to care complexity and to the fact of being women. The presence of the State is scarce, and follow-up nursing after discharge is absent. It is recommended that these caretakers are taught some nursing knowledge, and that actions are taken to improve prenatal care services as a preventive measure.Los niños con necesidades especiales de salud (CSHCN, sigla en inglés) presentan exigencias de cuidados crecientes para las familias y los servicios de salud. La invisibilidad del grupo exigió un estudio con el objetivo de analizar y discutir la dimensión del cuidado físico de los CSHCN. El estudio cualitativo consistió en el análisis de prontuarios, entrevista con cuidadoras familiares de CSHCN en un hospital universitario del sur de Brasil y la aplicación del método creativo sensible, indicando que ellas son clínicamente frágiles y socialmente vulnerables. Por consiguiente, las cuidadoras de estos niños enfrentan en el cuidado domiciliario, desafíos relacionados con la complejidad del cuidar y con la condición femenina. Hay poca presencia del Estado y ausencia de la enfermería en el seguimiento post alta. Se recomienda la incorporación de los conocimientos de enfermería al cuidado prestado por estas cuidadoras, así como acciones que califiquen los servicios de atención prenatal como forma de prevención.As crianças com necessidades especiais de saúde (CRIANES) apresentam demandas de cuidados crescentes para as famílias e serviços de saúde. A invisibilidade do grupo requereu um estudo com o objetivo de analisar e discutir a dimensão do cuidado físico às CRIANES. O estudo qualitativo consistiu de análise de prontuários, entrevista com cuidadoras familiares de CRIANES em um hospital universitário do sul do Brasil e aplicação do método criativo sensível. Os achados indicaram que elas são clinicamente frágeis e socialmente vulneráveis. Conseqüentemente, suas cuidadoras familiares enfrentam, no cuidado domiciliar, desafios relacionados à complexidade do cuidar e à condição feminina. Há pouca presença do Estado e ausência da enfermagem no seguimento pós-alta. Recomenda-se a incorporação dos conhecimentos de enfermagem ao cuidado prestado por essas cuidadoras e ações que qualifique os serviços de atendimento pré-natal como forma de prevenção.Escola de Enfermagem da UFRGS2008-08-26info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://seer.ufrgs.br/index.php/rgenf/article/view/5533Revista Gaúcha de Enfermagem; Vol. 29 No. 2 (2008); 182Revista Gaúcha de Enfermagem; v. 29 n. 2 (2008); 1821983-14470102-6933reponame:Revista Gaúcha de Enfermageminstname:Universidade Federal do Rio Grande do Sul (UFRGS)instacron:UFRGSporhttps://seer.ufrgs.br/index.php/rgenf/article/view/5533/3150Tatsch Neves, ElianeEvangelista Cabral, Ivoneinfo:eu-repo/semantics/openAccess2019-11-26T19:50:18Zoai:seer.ufrgs.br:article/5533Revistahttp://www.seer.ufrgs.br/index.php/RevistaGauchadeEnfermagemPUBhttps://old.scielo.br/oai/scielo-oai.php||revistappgdir@ufrgs.br1983-14470102-6933opendoar:2019-11-26T19:50:18Revista Gaúcha de Enfermagem - Universidade Federal do Rio Grande do Sul (UFRGS)false
dc.title.none.fl_str_mv The clinical and social vulnerability of children with special healthcare needs.
La fragilidad clínica y la vulnerabilidad social de los niños con necesidades especiales de salud.
A fragilidade clínica e a vulnerabilidade social das crianças com necessidades especiais de saúde
title The clinical and social vulnerability of children with special healthcare needs.
spellingShingle The clinical and social vulnerability of children with special healthcare needs.
Tatsch Neves, Eliane
Enfermagem pediátrica
Saúde da criança
Cuidadores.
title_short The clinical and social vulnerability of children with special healthcare needs.
title_full The clinical and social vulnerability of children with special healthcare needs.
title_fullStr The clinical and social vulnerability of children with special healthcare needs.
title_full_unstemmed The clinical and social vulnerability of children with special healthcare needs.
title_sort The clinical and social vulnerability of children with special healthcare needs.
author Tatsch Neves, Eliane
author_facet Tatsch Neves, Eliane
Evangelista Cabral, Ivone
author_role author
author2 Evangelista Cabral, Ivone
author2_role author
dc.contributor.author.fl_str_mv Tatsch Neves, Eliane
Evangelista Cabral, Ivone
dc.subject.por.fl_str_mv Enfermagem pediátrica
Saúde da criança
Cuidadores.
topic Enfermagem pediátrica
Saúde da criança
Cuidadores.
description Children with special healthcare needs (CSHCN) require increasing care by relatives and health services. Due to the ‘invisibility’ of this group, a qualitative studied was carried out to analyze and to discuss the dimension of physical care provided to CSHCN. The studied included the analyses of the patients’ records, interviews of family caretakers in a university hospital in southern Brazil, and the application of a sensitive creative method. Findings showed that these children are clinically and socially vulnerable. Consequently, during home care, their caretakers face challenges related to care complexity and to the fact of being women. The presence of the State is scarce, and follow-up nursing after discharge is absent. It is recommended that these caretakers are taught some nursing knowledge, and that actions are taken to improve prenatal care services as a preventive measure.
publishDate 2008
dc.date.none.fl_str_mv 2008-08-26
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://seer.ufrgs.br/index.php/rgenf/article/view/5533
url https://seer.ufrgs.br/index.php/rgenf/article/view/5533
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://seer.ufrgs.br/index.php/rgenf/article/view/5533/3150
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Escola de Enfermagem da UFRGS
publisher.none.fl_str_mv Escola de Enfermagem da UFRGS
dc.source.none.fl_str_mv Revista Gaúcha de Enfermagem; Vol. 29 No. 2 (2008); 182
Revista Gaúcha de Enfermagem; v. 29 n. 2 (2008); 182
1983-1447
0102-6933
reponame:Revista Gaúcha de Enfermagem
instname:Universidade Federal do Rio Grande do Sul (UFRGS)
instacron:UFRGS
instname_str Universidade Federal do Rio Grande do Sul (UFRGS)
instacron_str UFRGS
institution UFRGS
reponame_str Revista Gaúcha de Enfermagem
collection Revista Gaúcha de Enfermagem
repository.name.fl_str_mv Revista Gaúcha de Enfermagem - Universidade Federal do Rio Grande do Sul (UFRGS)
repository.mail.fl_str_mv ||revistappgdir@ufrgs.br
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