Paths of Citizen Science in Health: processes for public engagement
Autor(a) principal: | |
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Data de Publicação: | 2024 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Em Questão (Online) |
Texto Completo: | https://seer.ufrgs.br/index.php/EmQuestao/article/view/129795 |
Resumo: | This article intends to map research actions and methodologies in the field of health that are characterized as Citizen Science. Through a qualitative and exploratory research, it used a methodology composed of a bibliographic survey in Information Science databases– such as BRAPCI, BENANCIB, and Scielo– and Health– such as PubMed Central, MEDLINE, BVS, and LILACS. It analyzes the evolution of the Open Science movement and the Citizen Science approach. It deals with collaborative research and how it is designed in the field of health. It presents three methodological actions present in the literature that involve the active participation of the public, such as Community-Based Participatory Research, Partnership, Partner Engagement, and Collaboration and Patient and Public Involvement. It is concluded that there are research processes in the field of health focused on Citizen Science that promote joint actions by laypeople, private and public organizations, and policymakers that bring effective results from shared responsibility. |
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Paths of Citizen Science in Health: processes for public engagementPercursos da Ciência Cidadã em Saúde: processos para o engajamento públicociência abertaciência cidadãpesquisas em saúdepesquisas colaborativasengajamento públicoopen sciencecitizen sciencehealth researchcollaborative researchpublic engagementThis article intends to map research actions and methodologies in the field of health that are characterized as Citizen Science. Through a qualitative and exploratory research, it used a methodology composed of a bibliographic survey in Information Science databases– such as BRAPCI, BENANCIB, and Scielo– and Health– such as PubMed Central, MEDLINE, BVS, and LILACS. It analyzes the evolution of the Open Science movement and the Citizen Science approach. It deals with collaborative research and how it is designed in the field of health. It presents three methodological actions present in the literature that involve the active participation of the public, such as Community-Based Participatory Research, Partnership, Partner Engagement, and Collaboration and Patient and Public Involvement. It is concluded that there are research processes in the field of health focused on Citizen Science that promote joint actions by laypeople, private and public organizations, and policymakers that bring effective results from shared responsibility.Este artigo pretende mapear ações e metodologias de pesquisa no campo da saúde que se caracterizam como Ciência Cidadã. A partir de uma pesquisa qualitativa e exploratória, realizou-se uma metodologia composta por um levantamento bibliográfico em base de dados da Ciência da Informação – BRAPCI, BENANCIB e SciELO – e da Saúde – PubMed Central/ MEDLINE, BVS e LILACS. Analisa a evolução do movimento de Ciência aberta e da abordagem da Ciência cidadã. Trata sobre as pesquisas colaborativas e como elas se desenham no campo da saúde. Apresenta três ações metodológicas presentes na literatura que envolvem a participação ativa do público, como: Pesquisa Participativa Baseada na Comunidade, Partnership, Partner Engagement, and Collaboration e Envolvimento do Paciente e do Público. Conclui-se que existem processos de pesquisa no campo da saúde voltadas à Ciência Cidadã que promovem ações conjuntas de leigos, organismos privados, públicos e formuladores de políticas que trazem resultados eficazes a partir da responsabilidade compartilhada.Universidade Federal do Rio Grande do Sul, Faculdade de Biblioteconomia e Comunicação, Programa de Pós-Graduação em Ciência da Informação (Porto Alegre/RS)2024-02-05info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado por Paresapplication/pdfhttps://seer.ufrgs.br/index.php/EmQuestao/article/view/12979510.1590/1808-5245.30.129795Em Questão; Vol. 30 (2024)Em Questão; Vol. 30 (2024)Em Questão; v. 30 (2024)1808-52451807-8893reponame:Em Questão (Online)instname:Universidade Federal do Rio Grande do Sul (UFRGS)instacron:UFRGSporhttps://seer.ufrgs.br/index.php/EmQuestao/article/view/129795/91310Copyright (c) 2024 Ivanilma de Oliveira Gama, Vinícius Ribeiro Soares dos Santoshttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessGama, Ivanilma de OliveiraRibeiro Soares dos Santos, Vinícius2024-05-20T14:52:19Zoai:seer.ufrgs.br:article/129795Revistahttps://seer.ufrgs.br/emquestao/PUBhttps://seer.ufrgs.br/EmQuestao/oaiemquestao@ufrgs.br||emquestao@ufrgs.br1808-52451807-8893opendoar:2024-05-20T14:52:19Em Questão (Online) - Universidade Federal do Rio Grande do Sul (UFRGS)false |
dc.title.none.fl_str_mv |
Paths of Citizen Science in Health: processes for public engagement Percursos da Ciência Cidadã em Saúde: processos para o engajamento público |
title |
Paths of Citizen Science in Health: processes for public engagement |
spellingShingle |
Paths of Citizen Science in Health: processes for public engagement Gama, Ivanilma de Oliveira ciência aberta ciência cidadã pesquisas em saúde pesquisas colaborativas engajamento público open science citizen science health research collaborative research public engagement |
title_short |
Paths of Citizen Science in Health: processes for public engagement |
title_full |
Paths of Citizen Science in Health: processes for public engagement |
title_fullStr |
Paths of Citizen Science in Health: processes for public engagement |
title_full_unstemmed |
Paths of Citizen Science in Health: processes for public engagement |
title_sort |
Paths of Citizen Science in Health: processes for public engagement |
author |
Gama, Ivanilma de Oliveira |
author_facet |
Gama, Ivanilma de Oliveira Ribeiro Soares dos Santos, Vinícius |
author_role |
author |
author2 |
Ribeiro Soares dos Santos, Vinícius |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Gama, Ivanilma de Oliveira Ribeiro Soares dos Santos, Vinícius |
dc.subject.por.fl_str_mv |
ciência aberta ciência cidadã pesquisas em saúde pesquisas colaborativas engajamento público open science citizen science health research collaborative research public engagement |
topic |
ciência aberta ciência cidadã pesquisas em saúde pesquisas colaborativas engajamento público open science citizen science health research collaborative research public engagement |
description |
This article intends to map research actions and methodologies in the field of health that are characterized as Citizen Science. Through a qualitative and exploratory research, it used a methodology composed of a bibliographic survey in Information Science databases– such as BRAPCI, BENANCIB, and Scielo– and Health– such as PubMed Central, MEDLINE, BVS, and LILACS. It analyzes the evolution of the Open Science movement and the Citizen Science approach. It deals with collaborative research and how it is designed in the field of health. It presents three methodological actions present in the literature that involve the active participation of the public, such as Community-Based Participatory Research, Partnership, Partner Engagement, and Collaboration and Patient and Public Involvement. It is concluded that there are research processes in the field of health focused on Citizen Science that promote joint actions by laypeople, private and public organizations, and policymakers that bring effective results from shared responsibility. |
publishDate |
2024 |
dc.date.none.fl_str_mv |
2024-02-05 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Avaliado por Pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://seer.ufrgs.br/index.php/EmQuestao/article/view/129795 10.1590/1808-5245.30.129795 |
url |
https://seer.ufrgs.br/index.php/EmQuestao/article/view/129795 |
identifier_str_mv |
10.1590/1808-5245.30.129795 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://seer.ufrgs.br/index.php/EmQuestao/article/view/129795/91310 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2024 Ivanilma de Oliveira Gama, Vinícius Ribeiro Soares dos Santos https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2024 Ivanilma de Oliveira Gama, Vinícius Ribeiro Soares dos Santos https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal do Rio Grande do Sul, Faculdade de Biblioteconomia e Comunicação, Programa de Pós-Graduação em Ciência da Informação (Porto Alegre/RS) |
publisher.none.fl_str_mv |
Universidade Federal do Rio Grande do Sul, Faculdade de Biblioteconomia e Comunicação, Programa de Pós-Graduação em Ciência da Informação (Porto Alegre/RS) |
dc.source.none.fl_str_mv |
Em Questão; Vol. 30 (2024) Em Questão; Vol. 30 (2024) Em Questão; v. 30 (2024) 1808-5245 1807-8893 reponame:Em Questão (Online) instname:Universidade Federal do Rio Grande do Sul (UFRGS) instacron:UFRGS |
instname_str |
Universidade Federal do Rio Grande do Sul (UFRGS) |
instacron_str |
UFRGS |
institution |
UFRGS |
reponame_str |
Em Questão (Online) |
collection |
Em Questão (Online) |
repository.name.fl_str_mv |
Em Questão (Online) - Universidade Federal do Rio Grande do Sul (UFRGS) |
repository.mail.fl_str_mv |
emquestao@ufrgs.br||emquestao@ufrgs.br |
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1799766161886281728 |