Child with autistic spectrum disorder: care from the family

Detalhes bibliográficos
Autor(a) principal: Mapelli,Lina Domenica
Data de Publicação: 2018
Outros Autores: Barbieri,Mayara Caroline, Castro,Gabriela Van Der Zwaan Broekman, Bonelli,Maria Aparecida, Wernet,Monika, Dupas,Giselle
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Escola Anna Nery
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S1414-81452018000400232
Resumo: Abstract Objective: To know the experience of the family in the care of the child with Autism Spectrum Disorder (ASD) and to discuss possibilities of health care. Method: Descriptive research with qualitative approach, carried out with 15 families of children with ASD, living in two municipalities in the interior of the state of São Paulo, from October 2016 to March 2017. The Symbolic Interactionism was used as theoretical reference, and Narrative Analysis, as method. Results: Families perceive signs of autism, however, believe that there are not suspicious behaviors, but the child's personalities. When diagnosis is defined, family acceptance is painful and sad. The mother shows to be the main caretaker, while the father remains in the background. A significant change of direction of the family towards the care/attention/stimulation of the autistic child is observed. Conclusion: Unveiling family experience in the care of children with ASD amplifies strategies for reinforcement and adaptation.
id UFRJ-4_99a78db2c68fa0b9cc1e119498edb25d
oai_identifier_str oai:scielo:S1414-81452018000400232
network_acronym_str UFRJ-4
network_name_str Escola Anna Nery
repository_id_str
spelling Child with autistic spectrum disorder: care from the familyAutistic DisorderFamilyNursingChild CareChildAbstract Objective: To know the experience of the family in the care of the child with Autism Spectrum Disorder (ASD) and to discuss possibilities of health care. Method: Descriptive research with qualitative approach, carried out with 15 families of children with ASD, living in two municipalities in the interior of the state of São Paulo, from October 2016 to March 2017. The Symbolic Interactionism was used as theoretical reference, and Narrative Analysis, as method. Results: Families perceive signs of autism, however, believe that there are not suspicious behaviors, but the child's personalities. When diagnosis is defined, family acceptance is painful and sad. The mother shows to be the main caretaker, while the father remains in the background. A significant change of direction of the family towards the care/attention/stimulation of the autistic child is observed. Conclusion: Unveiling family experience in the care of children with ASD amplifies strategies for reinforcement and adaptation.Universidade Federal do Rio de Janeiro2018-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S1414-81452018000400232Escola Anna Nery v.22 n.4 2018reponame:Escola Anna Neryinstname:Universidade Federal do Rio de Janeiro (UFRJ)instacron:UFRJ10.1590/2177-9465-ean-2018-0116info:eu-repo/semantics/openAccessMapelli,Lina DomenicaBarbieri,Mayara CarolineCastro,Gabriela Van Der Zwaan BroekmanBonelli,Maria AparecidaWernet,MonikaDupas,Giselleeng2018-11-14T00:00:00Zoai:scielo:S1414-81452018000400232Revistahttps://www.scielo.br/scielo.php?script=sci_serial&pid=1414-8145ONGhttps://old.scielo.br/oai/scielo-oai.phpannaneryrevista@gmail.com||eean_revista@eean.ufrj.br||icabral444@gmail.com2177-94651414-8145opendoar:2018-11-14T00:00Escola Anna Nery - Universidade Federal do Rio de Janeiro (UFRJ)false
dc.title.none.fl_str_mv Child with autistic spectrum disorder: care from the family
title Child with autistic spectrum disorder: care from the family
spellingShingle Child with autistic spectrum disorder: care from the family
Mapelli,Lina Domenica
Autistic Disorder
Family
Nursing
Child Care
Child
title_short Child with autistic spectrum disorder: care from the family
title_full Child with autistic spectrum disorder: care from the family
title_fullStr Child with autistic spectrum disorder: care from the family
title_full_unstemmed Child with autistic spectrum disorder: care from the family
title_sort Child with autistic spectrum disorder: care from the family
author Mapelli,Lina Domenica
author_facet Mapelli,Lina Domenica
Barbieri,Mayara Caroline
Castro,Gabriela Van Der Zwaan Broekman
Bonelli,Maria Aparecida
Wernet,Monika
Dupas,Giselle
author_role author
author2 Barbieri,Mayara Caroline
Castro,Gabriela Van Der Zwaan Broekman
Bonelli,Maria Aparecida
Wernet,Monika
Dupas,Giselle
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Mapelli,Lina Domenica
Barbieri,Mayara Caroline
Castro,Gabriela Van Der Zwaan Broekman
Bonelli,Maria Aparecida
Wernet,Monika
Dupas,Giselle
dc.subject.por.fl_str_mv Autistic Disorder
Family
Nursing
Child Care
Child
topic Autistic Disorder
Family
Nursing
Child Care
Child
description Abstract Objective: To know the experience of the family in the care of the child with Autism Spectrum Disorder (ASD) and to discuss possibilities of health care. Method: Descriptive research with qualitative approach, carried out with 15 families of children with ASD, living in two municipalities in the interior of the state of São Paulo, from October 2016 to March 2017. The Symbolic Interactionism was used as theoretical reference, and Narrative Analysis, as method. Results: Families perceive signs of autism, however, believe that there are not suspicious behaviors, but the child's personalities. When diagnosis is defined, family acceptance is painful and sad. The mother shows to be the main caretaker, while the father remains in the background. A significant change of direction of the family towards the care/attention/stimulation of the autistic child is observed. Conclusion: Unveiling family experience in the care of children with ASD amplifies strategies for reinforcement and adaptation.
publishDate 2018
dc.date.none.fl_str_mv 2018-01-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://old.scielo.br/scielo.php?script=sci_arttext&pid=S1414-81452018000400232
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S1414-81452018000400232
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 10.1590/2177-9465-ean-2018-0116
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
dc.publisher.none.fl_str_mv Universidade Federal do Rio de Janeiro
publisher.none.fl_str_mv Universidade Federal do Rio de Janeiro
dc.source.none.fl_str_mv Escola Anna Nery v.22 n.4 2018
reponame:Escola Anna Nery
instname:Universidade Federal do Rio de Janeiro (UFRJ)
instacron:UFRJ
instname_str Universidade Federal do Rio de Janeiro (UFRJ)
instacron_str UFRJ
institution UFRJ
reponame_str Escola Anna Nery
collection Escola Anna Nery
repository.name.fl_str_mv Escola Anna Nery - Universidade Federal do Rio de Janeiro (UFRJ)
repository.mail.fl_str_mv annaneryrevista@gmail.com||eean_revista@eean.ufrj.br||icabral444@gmail.com
_version_ 1750128124391063552

Registros relacionados