EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Texto & contexto enfermagem (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072021000100370 |
Resumo: | ABSTRACT Objective: to understand the experience of families facing cancer in palliative care of one of its members. Method: this is a qualitative research based on the theoretical-methodological framework of Grounded Theory. Six families participated, totaling 15 people. Data were collected from January to December 2019 in the homes of families in a municipality in southern Brazil, through an in-depth interview with the construction of a genogram. Analysis followed the constant comparative method steps: open, selective and theoretical coding. Results: the concepts discovering cancer; suffering with the reality imposed by the illness; preparing to face illness; deciding on treatment; facing the finitude of life, they are part of the central category “Living one day at a time”, which symbolically defines families’ experiences. The substantive theory elaborated shows that the definitions, actions and strategies adopted by families, in family dynamics and in interpersonal interactions, along a trajectory that culminates in the terminality of a relative’s life, is permeated by hope maintenance. Conclusion: throughout the illness experience, families promote changes in their daily lives and in family dynamics, undergoing adaptations and using their internal strengths in an attempt to re-establish the balance prior to the disease. Families live with uncertainty about the future, but it is the hope that drives them to live one day at a time. |
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EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CAREFamilyHospice careNeoplasmNursingGrounded theoryABSTRACT Objective: to understand the experience of families facing cancer in palliative care of one of its members. Method: this is a qualitative research based on the theoretical-methodological framework of Grounded Theory. Six families participated, totaling 15 people. Data were collected from January to December 2019 in the homes of families in a municipality in southern Brazil, through an in-depth interview with the construction of a genogram. Analysis followed the constant comparative method steps: open, selective and theoretical coding. Results: the concepts discovering cancer; suffering with the reality imposed by the illness; preparing to face illness; deciding on treatment; facing the finitude of life, they are part of the central category “Living one day at a time”, which symbolically defines families’ experiences. The substantive theory elaborated shows that the definitions, actions and strategies adopted by families, in family dynamics and in interpersonal interactions, along a trajectory that culminates in the terminality of a relative’s life, is permeated by hope maintenance. Conclusion: throughout the illness experience, families promote changes in their daily lives and in family dynamics, undergoing adaptations and using their internal strengths in an attempt to re-establish the balance prior to the disease. Families live with uncertainty about the future, but it is the hope that drives them to live one day at a time.Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem2021-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072021000100370Texto & Contexto - Enfermagem v.30 2021reponame:Texto & contexto enfermagem (Online)instname:Universidade Federal de Santa Catarina (UFSC)instacron:UFSC10.1590/1980-265x-tce-2020-0669info:eu-repo/semantics/openAccessOliveski,Cínthia CristinaGirardon-Perlini,Nara Marilene OliveiraCogo,Silvana BastosCordeiro,Franciele RobertaMartins,Fernanda CristóvãoPaz,Priscila Perfeitoeng2021-09-01T00:00:00Zoai:scielo:S0104-07072021000100370Revistahttp://www.scielo.br/tcePUBhttps://old.scielo.br/oai/scielo-oai.phptextoecontexto@nfr.ufsc.br1980-265X0104-0707opendoar:2021-09-01T00:00Texto & contexto enfermagem (Online) - Universidade Federal de Santa Catarina (UFSC)false |
dc.title.none.fl_str_mv |
EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE |
title |
EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE |
spellingShingle |
EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE Oliveski,Cínthia Cristina Family Hospice care Neoplasm Nursing Grounded theory |
title_short |
EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE |
title_full |
EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE |
title_fullStr |
EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE |
title_full_unstemmed |
EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE |
title_sort |
EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE |
author |
Oliveski,Cínthia Cristina |
author_facet |
Oliveski,Cínthia Cristina Girardon-Perlini,Nara Marilene Oliveira Cogo,Silvana Bastos Cordeiro,Franciele Roberta Martins,Fernanda Cristóvão Paz,Priscila Perfeito |
author_role |
author |
author2 |
Girardon-Perlini,Nara Marilene Oliveira Cogo,Silvana Bastos Cordeiro,Franciele Roberta Martins,Fernanda Cristóvão Paz,Priscila Perfeito |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Oliveski,Cínthia Cristina Girardon-Perlini,Nara Marilene Oliveira Cogo,Silvana Bastos Cordeiro,Franciele Roberta Martins,Fernanda Cristóvão Paz,Priscila Perfeito |
dc.subject.por.fl_str_mv |
Family Hospice care Neoplasm Nursing Grounded theory |
topic |
Family Hospice care Neoplasm Nursing Grounded theory |
description |
ABSTRACT Objective: to understand the experience of families facing cancer in palliative care of one of its members. Method: this is a qualitative research based on the theoretical-methodological framework of Grounded Theory. Six families participated, totaling 15 people. Data were collected from January to December 2019 in the homes of families in a municipality in southern Brazil, through an in-depth interview with the construction of a genogram. Analysis followed the constant comparative method steps: open, selective and theoretical coding. Results: the concepts discovering cancer; suffering with the reality imposed by the illness; preparing to face illness; deciding on treatment; facing the finitude of life, they are part of the central category “Living one day at a time”, which symbolically defines families’ experiences. The substantive theory elaborated shows that the definitions, actions and strategies adopted by families, in family dynamics and in interpersonal interactions, along a trajectory that culminates in the terminality of a relative’s life, is permeated by hope maintenance. Conclusion: throughout the illness experience, families promote changes in their daily lives and in family dynamics, undergoing adaptations and using their internal strengths in an attempt to re-establish the balance prior to the disease. Families live with uncertainty about the future, but it is the hope that drives them to live one day at a time. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-01-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072021000100370 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072021000100370 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1590/1980-265x-tce-2020-0669 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem |
publisher.none.fl_str_mv |
Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem |
dc.source.none.fl_str_mv |
Texto & Contexto - Enfermagem v.30 2021 reponame:Texto & contexto enfermagem (Online) instname:Universidade Federal de Santa Catarina (UFSC) instacron:UFSC |
instname_str |
Universidade Federal de Santa Catarina (UFSC) |
instacron_str |
UFSC |
institution |
UFSC |
reponame_str |
Texto & contexto enfermagem (Online) |
collection |
Texto & contexto enfermagem (Online) |
repository.name.fl_str_mv |
Texto & contexto enfermagem (Online) - Universidade Federal de Santa Catarina (UFSC) |
repository.mail.fl_str_mv |
textoecontexto@nfr.ufsc.br |
_version_ |
1750118396708519936 |