Difficulties experienced by the mothers of people with cystic fibrosis

• Autor(a) principal: Tavares,Keila Okuda
• Data de Publicação: 2014
• Outros Autores: Carvalho,Maria Dalva de Barros, Pelloso,Sandra Marisa
• Tipo de documento: Artigo
• Idioma: eng
• Título da fonte: Texto & contexto enfermagem (Online)
• Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072014000200294
• topic: Cystic fibrosis; Mother-child relations; Family; Nursing

This study aimed to understand difficulties experienced by mothers in life with, and caring for, their children with cystic fibrosis. A descriptive-exploratory study with a qualitative character, its population consisted of 14 women. Data collection involved a semi-structured interview. The statements' analysis allowed the identification of two units of meaning: 'The treatment of cystic fibrosis: facing difficulties'; and 'The child's future: the difficult coexistence with the hope for a cure and a normal development'. Difficulties experienced by the mothers relate to disbelief regarding the diagnosis, the mourning for the loss of the dreamt-of child, acceptance of the inevitable and the struggle for the child's life and comfort. It is important for the health team to present another perspective on the health-illness process regarding chronic illnesses in order to support individuals affected and their families in the most efficacious and complete way.