Experience of women with a school-age child with down syndrome

Detalhes bibliográficos
Autor(a) principal: Kortchmar,Estela
Data de Publicação: 2014
Outros Autores: Jesus,Maria Cristina Pinto de, Merighi,Miriam Aparecida Barbosa
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Texto & contexto enfermagem (Online)
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072014000100013
Resumo: The aim of this study was to understand the experience and expectations of women having a school-age child with Down Syndrome. Participants were ten mothers of children with this syndrome who attended a mainstream school and were interviewed in June 2011. The following categories emerged from the testimonies: 'coping with challenges', 'search for balance', 'future projection of the child with Down Syndrome' and 'conciliation among being a woman, worker and mother to a child with Down Syndrome'. The women feel overburdened by the need to conciliate multiple roles. They are concerned with not knowing who will take care of their child in the future, do not have time to take care of themselves and everything related to the personal life is referred to as a postponed desire. Despite nuances of particularities, these women's experiences represent a typical behavior that characterizes the action of women having a child with Down syndrome.
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spelling Experience of women with a school-age child with down syndromeWoman's healthMothersDown SyndromeThe aim of this study was to understand the experience and expectations of women having a school-age child with Down Syndrome. Participants were ten mothers of children with this syndrome who attended a mainstream school and were interviewed in June 2011. The following categories emerged from the testimonies: 'coping with challenges', 'search for balance', 'future projection of the child with Down Syndrome' and 'conciliation among being a woman, worker and mother to a child with Down Syndrome'. The women feel overburdened by the need to conciliate multiple roles. They are concerned with not knowing who will take care of their child in the future, do not have time to take care of themselves and everything related to the personal life is referred to as a postponed desire. Despite nuances of particularities, these women's experiences represent a typical behavior that characterizes the action of women having a child with Down syndrome.Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem2014-03-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072014000100013Texto & Contexto - Enfermagem v.23 n.1 2014reponame:Texto & contexto enfermagem (Online)instname:Universidade Federal de Santa Catarina (UFSC)instacron:UFSC10.1590/S0104-07072014000100002info:eu-repo/semantics/openAccessKortchmar,EstelaJesus,Maria Cristina Pinto deMerighi,Miriam Aparecida Barbosaeng2014-04-08T00:00:00Zoai:scielo:S0104-07072014000100013Revistahttp://www.scielo.br/tcePUBhttps://old.scielo.br/oai/scielo-oai.phptextoecontexto@nfr.ufsc.br1980-265X0104-0707opendoar:2014-04-08T00:00Texto & contexto enfermagem (Online) - Universidade Federal de Santa Catarina (UFSC)false
dc.title.none.fl_str_mv Experience of women with a school-age child with down syndrome
title Experience of women with a school-age child with down syndrome
spellingShingle Experience of women with a school-age child with down syndrome
Kortchmar,Estela
Woman's health
Mothers
Down Syndrome
title_short Experience of women with a school-age child with down syndrome
title_full Experience of women with a school-age child with down syndrome
title_fullStr Experience of women with a school-age child with down syndrome
title_full_unstemmed Experience of women with a school-age child with down syndrome
title_sort Experience of women with a school-age child with down syndrome
author Kortchmar,Estela
author_facet Kortchmar,Estela
Jesus,Maria Cristina Pinto de
Merighi,Miriam Aparecida Barbosa
author_role author
author2 Jesus,Maria Cristina Pinto de
Merighi,Miriam Aparecida Barbosa
author2_role author
author
dc.contributor.author.fl_str_mv Kortchmar,Estela
Jesus,Maria Cristina Pinto de
Merighi,Miriam Aparecida Barbosa
dc.subject.por.fl_str_mv Woman's health
Mothers
Down Syndrome
topic Woman's health
Mothers
Down Syndrome
description The aim of this study was to understand the experience and expectations of women having a school-age child with Down Syndrome. Participants were ten mothers of children with this syndrome who attended a mainstream school and were interviewed in June 2011. The following categories emerged from the testimonies: 'coping with challenges', 'search for balance', 'future projection of the child with Down Syndrome' and 'conciliation among being a woman, worker and mother to a child with Down Syndrome'. The women feel overburdened by the need to conciliate multiple roles. They are concerned with not knowing who will take care of their child in the future, do not have time to take care of themselves and everything related to the personal life is referred to as a postponed desire. Despite nuances of particularities, these women's experiences represent a typical behavior that characterizes the action of women having a child with Down syndrome.
publishDate 2014
dc.date.none.fl_str_mv 2014-03-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072014000100013
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072014000100013
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 10.1590/S0104-07072014000100002
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
dc.publisher.none.fl_str_mv Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem
publisher.none.fl_str_mv Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem
dc.source.none.fl_str_mv Texto & Contexto - Enfermagem v.23 n.1 2014
reponame:Texto & contexto enfermagem (Online)
instname:Universidade Federal de Santa Catarina (UFSC)
instacron:UFSC
instname_str Universidade Federal de Santa Catarina (UFSC)
instacron_str UFSC
institution UFSC
reponame_str Texto & contexto enfermagem (Online)
collection Texto & contexto enfermagem (Online)
repository.name.fl_str_mv Texto & contexto enfermagem (Online) - Universidade Federal de Santa Catarina (UFSC)
repository.mail.fl_str_mv textoecontexto@nfr.ufsc.br
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