Experience of women with a school-age child with down syndrome
Autor(a) principal: | |
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Data de Publicação: | 2014 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Texto & contexto enfermagem (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072014000100013 |
Resumo: | The aim of this study was to understand the experience and expectations of women having a school-age child with Down Syndrome. Participants were ten mothers of children with this syndrome who attended a mainstream school and were interviewed in June 2011. The following categories emerged from the testimonies: 'coping with challenges', 'search for balance', 'future projection of the child with Down Syndrome' and 'conciliation among being a woman, worker and mother to a child with Down Syndrome'. The women feel overburdened by the need to conciliate multiple roles. They are concerned with not knowing who will take care of their child in the future, do not have time to take care of themselves and everything related to the personal life is referred to as a postponed desire. Despite nuances of particularities, these women's experiences represent a typical behavior that characterizes the action of women having a child with Down syndrome. |
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Experience of women with a school-age child with down syndromeWoman's healthMothersDown SyndromeThe aim of this study was to understand the experience and expectations of women having a school-age child with Down Syndrome. Participants were ten mothers of children with this syndrome who attended a mainstream school and were interviewed in June 2011. The following categories emerged from the testimonies: 'coping with challenges', 'search for balance', 'future projection of the child with Down Syndrome' and 'conciliation among being a woman, worker and mother to a child with Down Syndrome'. The women feel overburdened by the need to conciliate multiple roles. They are concerned with not knowing who will take care of their child in the future, do not have time to take care of themselves and everything related to the personal life is referred to as a postponed desire. Despite nuances of particularities, these women's experiences represent a typical behavior that characterizes the action of women having a child with Down syndrome.Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem2014-03-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072014000100013Texto & Contexto - Enfermagem v.23 n.1 2014reponame:Texto & contexto enfermagem (Online)instname:Universidade Federal de Santa Catarina (UFSC)instacron:UFSC10.1590/S0104-07072014000100002info:eu-repo/semantics/openAccessKortchmar,EstelaJesus,Maria Cristina Pinto deMerighi,Miriam Aparecida Barbosaeng2014-04-08T00:00:00Zoai:scielo:S0104-07072014000100013Revistahttp://www.scielo.br/tcePUBhttps://old.scielo.br/oai/scielo-oai.phptextoecontexto@nfr.ufsc.br1980-265X0104-0707opendoar:2014-04-08T00:00Texto & contexto enfermagem (Online) - Universidade Federal de Santa Catarina (UFSC)false |
dc.title.none.fl_str_mv |
Experience of women with a school-age child with down syndrome |
title |
Experience of women with a school-age child with down syndrome |
spellingShingle |
Experience of women with a school-age child with down syndrome Kortchmar,Estela Woman's health Mothers Down Syndrome |
title_short |
Experience of women with a school-age child with down syndrome |
title_full |
Experience of women with a school-age child with down syndrome |
title_fullStr |
Experience of women with a school-age child with down syndrome |
title_full_unstemmed |
Experience of women with a school-age child with down syndrome |
title_sort |
Experience of women with a school-age child with down syndrome |
author |
Kortchmar,Estela |
author_facet |
Kortchmar,Estela Jesus,Maria Cristina Pinto de Merighi,Miriam Aparecida Barbosa |
author_role |
author |
author2 |
Jesus,Maria Cristina Pinto de Merighi,Miriam Aparecida Barbosa |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Kortchmar,Estela Jesus,Maria Cristina Pinto de Merighi,Miriam Aparecida Barbosa |
dc.subject.por.fl_str_mv |
Woman's health Mothers Down Syndrome |
topic |
Woman's health Mothers Down Syndrome |
description |
The aim of this study was to understand the experience and expectations of women having a school-age child with Down Syndrome. Participants were ten mothers of children with this syndrome who attended a mainstream school and were interviewed in June 2011. The following categories emerged from the testimonies: 'coping with challenges', 'search for balance', 'future projection of the child with Down Syndrome' and 'conciliation among being a woman, worker and mother to a child with Down Syndrome'. The women feel overburdened by the need to conciliate multiple roles. They are concerned with not knowing who will take care of their child in the future, do not have time to take care of themselves and everything related to the personal life is referred to as a postponed desire. Despite nuances of particularities, these women's experiences represent a typical behavior that characterizes the action of women having a child with Down syndrome. |
publishDate |
2014 |
dc.date.none.fl_str_mv |
2014-03-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072014000100013 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072014000100013 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1590/S0104-07072014000100002 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem |
publisher.none.fl_str_mv |
Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem |
dc.source.none.fl_str_mv |
Texto & Contexto - Enfermagem v.23 n.1 2014 reponame:Texto & contexto enfermagem (Online) instname:Universidade Federal de Santa Catarina (UFSC) instacron:UFSC |
instname_str |
Universidade Federal de Santa Catarina (UFSC) |
instacron_str |
UFSC |
institution |
UFSC |
reponame_str |
Texto & contexto enfermagem (Online) |
collection |
Texto & contexto enfermagem (Online) |
repository.name.fl_str_mv |
Texto & contexto enfermagem (Online) - Universidade Federal de Santa Catarina (UFSC) |
repository.mail.fl_str_mv |
textoecontexto@nfr.ufsc.br |
_version_ |
1750118391903944704 |