School inclusion: the perspective of mothers of students with Down Syndrome
Autor(a) principal: | |
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Data de Publicação: | 2014 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Educação Especial (UFSM) |
Texto Completo: | http://periodicos.ufsm.br/educacaoespecial/article/view/5908 |
Resumo: | The research aimed to know the perception of the parents on the pertaining to school life of their child with Down syndrome. Its objective was to identify feelings, to know experiences and factors that contribute or make the process difficult, bringing in the problematic of inclusion in regular public system of Santa Maria, Rio Grande do Sul. A qualitative research, with five mothers, was carried through. The data collected in semistructuralized interview had been analyzed based on Bardin (2002). Three final categories had emerged: the search for the inclusion of the child with Down syndrome; the fragility of the inclusion in the regular education net; the contributions and difficulties of the inclusion process in regular schools. Results point that the disparities between what it is ranked as ideal and what it carries through in the practical way is seen by mothers as an inefficient and harmful process to the mental health of children. Disturbing experiences are provoked by the lack of observation of what can be found in the inclusive rank of laws and rules, making the mothers feel hurt, sadness, and frustration. The inclusion law shows that there’s an obligation in accepting all the children without distinction, however, it does not show the ways to make it possible, or how to include each context, taking into account its especificities, what makes each experience singular. A single solution is difficult to point out, since the school was constituted, and still remains, as an exculpatory institution. However, the task to include the child with Down syndrome passes for the commitment to discover and organize actions to solve, in an adequate way, the people’s expectations. |
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School inclusion: the perspective of mothers of students with Down SyndromeInclusão escolar: a perspectiva das mães de alunos com Síndrome de DownMothersSchool InclusionDown syndrome.The research aimed to know the perception of the parents on the pertaining to school life of their child with Down syndrome. Its objective was to identify feelings, to know experiences and factors that contribute or make the process difficult, bringing in the problematic of inclusion in regular public system of Santa Maria, Rio Grande do Sul. A qualitative research, with five mothers, was carried through. The data collected in semistructuralized interview had been analyzed based on Bardin (2002). Three final categories had emerged: the search for the inclusion of the child with Down syndrome; the fragility of the inclusion in the regular education net; the contributions and difficulties of the inclusion process in regular schools. Results point that the disparities between what it is ranked as ideal and what it carries through in the practical way is seen by mothers as an inefficient and harmful process to the mental health of children. Disturbing experiences are provoked by the lack of observation of what can be found in the inclusive rank of laws and rules, making the mothers feel hurt, sadness, and frustration. The inclusion law shows that there’s an obligation in accepting all the children without distinction, however, it does not show the ways to make it possible, or how to include each context, taking into account its especificities, what makes each experience singular. A single solution is difficult to point out, since the school was constituted, and still remains, as an exculpatory institution. However, the task to include the child with Down syndrome passes for the commitment to discover and organize actions to solve, in an adequate way, the people’s expectations.http://dx.doi.org/10.5902/1984686X5908 Este trabalho surge da necessidade de se investigar o que dizem os manuais diagnósticos acerca da deficiência mental, principalmente, no que se refere ao conceito de deficiência mental, aos critérios de diagnóstico e classificação. Na presente pesquisa trabalhou-se com: o Manual Diagnóstico e Estatístico de Transtornos Mentais – DSM-IV (2002); a Classificação Internacional das Doenças – CID-10, (OMS, 1993); a Classificação Internacional de Funcionalidade, Incapacidade e Saúde – CIF, (OMS, 2003); e com Retardo mental: definição, classificação e sistemas de apoio (AAMR, 2002). Os pressupostos teóricos do pensamento sistêmico serviram de ferramenta analítica do material investigado. Foi possível observar uma estreita ligação entre a proposição teórica dos diferentes manuais. Apesar da existência de algumas diferenças, essas mudanças não chegam a produzir uma ruptura epistemológica nas formas de se conceber e identificar o fenômeno em questão, apresentando-se filiada aos pressupostos tradicionais do pensamento científico. Entende-se que a compreensão teórico-conceitual a respeito do fenômeno da deficiência mental traz implicações diretas na proposição e nas configurações das práticas pedagógicas, justificando-se, desta forma, realização desse estudo.Universidade Federal de Santa Maria2014-06-02info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttp://periodicos.ufsm.br/educacaoespecial/article/view/590810.5902/1984686X5908Special Education Magazine; Revista Educação Especial, v. 27, n. 49, maio/ago. 2014; 403-416Revista de Educación Especial; Revista Educação Especial, v. 27, n. 49, maio/ago. 2014; 403-416Revista Educação Especial; Revista Educação Especial, v. 27, n. 49, maio/ago. 2014; 403-4161984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/5908/pdfSmeha, Luciane NajarOliveira, Véra Lúcia Pacheco deinfo:eu-repo/semantics/openAccess2015-06-02T17:28:23Zoai:ojs.pkp.sfu.ca:article/5908Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2015-06-02T17:28:23Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
School inclusion: the perspective of mothers of students with Down Syndrome Inclusão escolar: a perspectiva das mães de alunos com Síndrome de Down |
title |
School inclusion: the perspective of mothers of students with Down Syndrome |
spellingShingle |
School inclusion: the perspective of mothers of students with Down Syndrome Smeha, Luciane Najar Mothers School Inclusion Down syndrome. |
title_short |
School inclusion: the perspective of mothers of students with Down Syndrome |
title_full |
School inclusion: the perspective of mothers of students with Down Syndrome |
title_fullStr |
School inclusion: the perspective of mothers of students with Down Syndrome |
title_full_unstemmed |
School inclusion: the perspective of mothers of students with Down Syndrome |
title_sort |
School inclusion: the perspective of mothers of students with Down Syndrome |
author |
Smeha, Luciane Najar |
author_facet |
Smeha, Luciane Najar Oliveira, Véra Lúcia Pacheco de |
author_role |
author |
author2 |
Oliveira, Véra Lúcia Pacheco de |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Smeha, Luciane Najar Oliveira, Véra Lúcia Pacheco de |
dc.subject.por.fl_str_mv |
Mothers School Inclusion Down syndrome. |
topic |
Mothers School Inclusion Down syndrome. |
description |
The research aimed to know the perception of the parents on the pertaining to school life of their child with Down syndrome. Its objective was to identify feelings, to know experiences and factors that contribute or make the process difficult, bringing in the problematic of inclusion in regular public system of Santa Maria, Rio Grande do Sul. A qualitative research, with five mothers, was carried through. The data collected in semistructuralized interview had been analyzed based on Bardin (2002). Three final categories had emerged: the search for the inclusion of the child with Down syndrome; the fragility of the inclusion in the regular education net; the contributions and difficulties of the inclusion process in regular schools. Results point that the disparities between what it is ranked as ideal and what it carries through in the practical way is seen by mothers as an inefficient and harmful process to the mental health of children. Disturbing experiences are provoked by the lack of observation of what can be found in the inclusive rank of laws and rules, making the mothers feel hurt, sadness, and frustration. The inclusion law shows that there’s an obligation in accepting all the children without distinction, however, it does not show the ways to make it possible, or how to include each context, taking into account its especificities, what makes each experience singular. A single solution is difficult to point out, since the school was constituted, and still remains, as an exculpatory institution. However, the task to include the child with Down syndrome passes for the commitment to discover and organize actions to solve, in an adequate way, the people’s expectations. |
publishDate |
2014 |
dc.date.none.fl_str_mv |
2014-06-02 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/5908 10.5902/1984686X5908 |
url |
http://periodicos.ufsm.br/educacaoespecial/article/view/5908 |
identifier_str_mv |
10.5902/1984686X5908 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/5908/pdf |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
dc.source.none.fl_str_mv |
Special Education Magazine; Revista Educação Especial, v. 27, n. 49, maio/ago. 2014; 403-416 Revista de Educación Especial; Revista Educação Especial, v. 27, n. 49, maio/ago. 2014; 403-416 Revista Educação Especial; Revista Educação Especial, v. 27, n. 49, maio/ago. 2014; 403-416 1984-686X reponame:Revista Educação Especial (UFSM) instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
instname_str |
Universidade Federal de Santa Maria (UFSM) |
instacron_str |
UFSM |
institution |
UFSM |
reponame_str |
Revista Educação Especial (UFSM) |
collection |
Revista Educação Especial (UFSM) |
repository.name.fl_str_mv |
Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM) |
repository.mail.fl_str_mv |
educacaoespecial@smail.ufsm.br||clenioberni@gmail.com |
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