Adaptation process and occupational performance of mothers of children with autism spectrum disorders
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Cadernos Brasileiros de Terapia Ocupacional |
Texto Completo: | https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3304 |
Resumo: | Introduction: Adapting to a child with Autism Spectrum Disorder (ASD) can impact the occupational performance of mothers because of the care they demand, which can lead to difficulties in carrying out their occupations. Objective: To investigate the occupational performance and adaptation of mothers to their children with ASD. Method: Cross-sectional, descriptive, quantitative and qualitative study conducted with 11 mothers of children with ASD aged 2-9 years. Data were collected using the Parental Disability Adaptation Scale (EPAD) and the Canadian Occupational Performance Measure (COPM). EPAD data were analyzed by adding the scores of each participant and calculating the general average, whereas COPM data were analyzed from the values assigned to performance and satisfaction. Results: The mothers were well adapted to their children; however, they evaluated the presence of functional problems for occupational performance after their birth. Functional problems in the productivity category, specifically in work performance due to the demands of caring for the children, were mentioned by most mothers. In the self-care category, some mothers reported problems going to the salon and taking a shower. In the leisure category, some mothers indicated problems with reading, physical activity, traveling and/or visiting friends. Conclusion: The mothers in this study reported that adapting to their children with ASD involves factors such as transmission of the diagnosis, information, characteristics of the children, socioeconomic conditions, resilience, and personal beliefs and expectations. In conclusion, the mothers of children with ASD investigated presented functional problems regarding their occupational performance after the birth of these children. |
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Adaptation process and occupational performance of mothers of children with autism spectrum disordersO processo de adaptação e desempenho ocupacional de mães de crianças no transtorno do espectro autistaAdaptação PsicológicaDesempenho de PapéisMãesAutismoPsychological AdaptationRole PlayingMothersAutismIntroduction: Adapting to a child with Autism Spectrum Disorder (ASD) can impact the occupational performance of mothers because of the care they demand, which can lead to difficulties in carrying out their occupations. Objective: To investigate the occupational performance and adaptation of mothers to their children with ASD. Method: Cross-sectional, descriptive, quantitative and qualitative study conducted with 11 mothers of children with ASD aged 2-9 years. Data were collected using the Parental Disability Adaptation Scale (EPAD) and the Canadian Occupational Performance Measure (COPM). EPAD data were analyzed by adding the scores of each participant and calculating the general average, whereas COPM data were analyzed from the values assigned to performance and satisfaction. Results: The mothers were well adapted to their children; however, they evaluated the presence of functional problems for occupational performance after their birth. Functional problems in the productivity category, specifically in work performance due to the demands of caring for the children, were mentioned by most mothers. In the self-care category, some mothers reported problems going to the salon and taking a shower. In the leisure category, some mothers indicated problems with reading, physical activity, traveling and/or visiting friends. Conclusion: The mothers in this study reported that adapting to their children with ASD involves factors such as transmission of the diagnosis, information, characteristics of the children, socioeconomic conditions, resilience, and personal beliefs and expectations. In conclusion, the mothers of children with ASD investigated presented functional problems regarding their occupational performance after the birth of these children.Introdução: A adaptação a um filho no Transtorno do Espectro do Autismo (TEA) pode impactar o desempenho ocupacional das mães em razão dos cuidados demandados, que podem dificultar a realização das suas ocupações. Objetivo: Investigar a adaptação e o desempenho ocupacional das mães de filhos com TEA. Método: Estudo descritivo transversal de abordagem quantiqualitativa com 11 mães de filhos no TEA com idade entre 2 e 9 anos. Os dados foram coletados por meio da Escala Parental de Adaptação à Deficiência (EPAD) e da Medida Canadense de Desempenho Ocupacional (COPM). Os dados da EPAD foram analisados pela soma dos escores de cada participante e cálculo da média geral e os da COPM a partir dos valores atribuídos para o desempenho e satisfação. Resultados: As mães estavam em adaptadas a seus filhos; entretanto, avaliaram a presença de problemas funcionais para o desempenho ocupacional após o nascimento deles. Problemas na categoria produtividade, especificamente para trabalhar, por conta das demandas de cuidados com o filho, foram referidos pela maioria das mães. Na categoria autocuidado, algumas mães referiram problemas para ir ao salão de beleza e tomar banho. Na categoria lazer, algumas mães indicaram problemas para realizar leitura, atividade física, viajar e/ou visitar amigos. Conclusão: As mães deste estudo demostraram que a adaptação a seus filhos envolve fatores como transmissão do diagnóstico, informação, características dos filhos, condições socioeconômicas, resiliência, crenças e expectativas pessoais. Conclui-se que as mães de filhos no TEA investigadas apresentaram problemas funcionais para o desempenho ocupacional após o nascimento desses filhos.Brazilian Journal of Occupational TherapyCuadernos Brasilenos de Terapia OcupacionalCadernos Brasileiros de Terapia Ocupacional2023-01-06info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/330410.1590/2526-8910.ctoAO252633041Brazilian Journal of Occupational Therapy; Vol. 31 (2023); e3304Cuadernos Brasilenos de Terapia Ocupacional; Vol. 31 (2023); e3304Cadernos Brasileiros de Terapia Ocupacional; v. 31 (2023); e33042526-8910reponame:Cadernos Brasileiros de Terapia Ocupacionalinstname:Universidade Federal de São Carlos (UFSCAR-DTO)instacron:UFSCARporenghttps://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3304/3743https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3304/3745Copyright (c) 2023 Cadernos Brasileiros de Terapia Ocupacionalhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccess Roiz, Roberta GiampáFigueiredo, Mirela de Oliveira2023-07-31T11:17:24Zoai:ojs.www.cadernosdeterapiaocupacional.ufscar.br:article/3304Revistahttp://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/indexPUBhttps://old.scielo.br/oai/scielo-oai.phpcadto@ufscar.br||cadto@ufscar.br2526-89102526-8910opendoar:2023-07-31T11:17:24Cadernos Brasileiros de Terapia Ocupacional - Universidade Federal de São Carlos (UFSCAR-DTO)false |
dc.title.none.fl_str_mv |
Adaptation process and occupational performance of mothers of children with autism spectrum disorders O processo de adaptação e desempenho ocupacional de mães de crianças no transtorno do espectro autista |
title |
Adaptation process and occupational performance of mothers of children with autism spectrum disorders |
spellingShingle |
Adaptation process and occupational performance of mothers of children with autism spectrum disorders Roiz, Roberta Giampá Adaptação Psicológica Desempenho de Papéis Mães Autismo Psychological Adaptation Role Playing Mothers Autism |
title_short |
Adaptation process and occupational performance of mothers of children with autism spectrum disorders |
title_full |
Adaptation process and occupational performance of mothers of children with autism spectrum disorders |
title_fullStr |
Adaptation process and occupational performance of mothers of children with autism spectrum disorders |
title_full_unstemmed |
Adaptation process and occupational performance of mothers of children with autism spectrum disorders |
title_sort |
Adaptation process and occupational performance of mothers of children with autism spectrum disorders |
author |
Roiz, Roberta Giampá |
author_facet |
Roiz, Roberta Giampá Figueiredo, Mirela de Oliveira |
author_role |
author |
author2 |
Figueiredo, Mirela de Oliveira |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Roiz, Roberta Giampá Figueiredo, Mirela de Oliveira |
dc.subject.por.fl_str_mv |
Adaptação Psicológica Desempenho de Papéis Mães Autismo Psychological Adaptation Role Playing Mothers Autism |
topic |
Adaptação Psicológica Desempenho de Papéis Mães Autismo Psychological Adaptation Role Playing Mothers Autism |
description |
Introduction: Adapting to a child with Autism Spectrum Disorder (ASD) can impact the occupational performance of mothers because of the care they demand, which can lead to difficulties in carrying out their occupations. Objective: To investigate the occupational performance and adaptation of mothers to their children with ASD. Method: Cross-sectional, descriptive, quantitative and qualitative study conducted with 11 mothers of children with ASD aged 2-9 years. Data were collected using the Parental Disability Adaptation Scale (EPAD) and the Canadian Occupational Performance Measure (COPM). EPAD data were analyzed by adding the scores of each participant and calculating the general average, whereas COPM data were analyzed from the values assigned to performance and satisfaction. Results: The mothers were well adapted to their children; however, they evaluated the presence of functional problems for occupational performance after their birth. Functional problems in the productivity category, specifically in work performance due to the demands of caring for the children, were mentioned by most mothers. In the self-care category, some mothers reported problems going to the salon and taking a shower. In the leisure category, some mothers indicated problems with reading, physical activity, traveling and/or visiting friends. Conclusion: The mothers in this study reported that adapting to their children with ASD involves factors such as transmission of the diagnosis, information, characteristics of the children, socioeconomic conditions, resilience, and personal beliefs and expectations. In conclusion, the mothers of children with ASD investigated presented functional problems regarding their occupational performance after the birth of these children. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-01-06 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3304 10.1590/2526-8910.ctoAO252633041 |
url |
https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3304 |
identifier_str_mv |
10.1590/2526-8910.ctoAO252633041 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3304/3743 https://www.cadernosdeterapiaocupacional.ufscar.br/index.php/cadernos/article/view/3304/3745 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2023 Cadernos Brasileiros de Terapia Ocupacional https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2023 Cadernos Brasileiros de Terapia Ocupacional https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Brazilian Journal of Occupational Therapy Cuadernos Brasilenos de Terapia Ocupacional Cadernos Brasileiros de Terapia Ocupacional |
publisher.none.fl_str_mv |
Brazilian Journal of Occupational Therapy Cuadernos Brasilenos de Terapia Ocupacional Cadernos Brasileiros de Terapia Ocupacional |
dc.source.none.fl_str_mv |
Brazilian Journal of Occupational Therapy; Vol. 31 (2023); e3304 Cuadernos Brasilenos de Terapia Ocupacional; Vol. 31 (2023); e3304 Cadernos Brasileiros de Terapia Ocupacional; v. 31 (2023); e3304 2526-8910 reponame:Cadernos Brasileiros de Terapia Ocupacional instname:Universidade Federal de São Carlos (UFSCAR-DTO) instacron:UFSCAR |
instname_str |
Universidade Federal de São Carlos (UFSCAR-DTO) |
instacron_str |
UFSCAR |
institution |
UFSCAR |
reponame_str |
Cadernos Brasileiros de Terapia Ocupacional |
collection |
Cadernos Brasileiros de Terapia Ocupacional |
repository.name.fl_str_mv |
Cadernos Brasileiros de Terapia Ocupacional - Universidade Federal de São Carlos (UFSCAR-DTO) |
repository.mail.fl_str_mv |
cadto@ufscar.br||cadto@ufscar.br |
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1797688312267276288 |