Action Research with mothers of people with intellectual disabilities: reducing overload as a life project
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Educação Especial (UFSM) |
Texto Completo: | http://periodicos.ufsm.br/educacaoespecial/article/view/40373 |
Resumo: | The article aims to report action research conducted with groups of mothers of people with intellectual disabilities, aiming to contribute to the improvement in the quality of life and the re - signification of their life projects. The action research was fulfilled with two groups, and in one of them 24 meetings were held during eight months, and in the other, 12 meetings were held during four months. All the meetings were recorded through systematic observations. An analysis of content and main group phenomena, as well as evaluation of perception of change, after completion of the experiment was also developed. At the beginning of the research, there was resistance on the part of the mothers in relation to the project of life as a consequence of little some difficulties in relation to the capacity their children.That is, it was observed that the mothers offered little possibilities for their children to develop autonomy and independence for activities of the daily life, causing them to be overloaded while caregivers. Thus, the focus of the action research was to discuss concrete activities that could generate autonomy, considering the limits and possibilities of the children and questions related to the subjective experiences of the mothers, taking as a trigger the Inventory of Independent Living Skills. It was found that the reflection on the daily activities of the children, on ways of stimulation for greater independence and on strategies that could be used for the child to develop certain behavior, besides reducing the overload, is a life project for mothers. |
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Action Research with mothers of people with intellectual disabilities: reducing overload as a life projectInvestigación Acción con madres de personas con discapacidad intelectual: reducir la sobrecarga como proyecto de vidaInvestigação-ação com mães de pessoas com deficiência intelectual: a redução da sobrecarga como um projeto de vidaIntellectual disabilitiesoverlaodlife project.Discapacidad intelectualsobrecargaproyecto de vida.Deficiência intelectualsobrecargaprojeto de vida.The article aims to report action research conducted with groups of mothers of people with intellectual disabilities, aiming to contribute to the improvement in the quality of life and the re - signification of their life projects. The action research was fulfilled with two groups, and in one of them 24 meetings were held during eight months, and in the other, 12 meetings were held during four months. All the meetings were recorded through systematic observations. An analysis of content and main group phenomena, as well as evaluation of perception of change, after completion of the experiment was also developed. At the beginning of the research, there was resistance on the part of the mothers in relation to the project of life as a consequence of little some difficulties in relation to the capacity their children.That is, it was observed that the mothers offered little possibilities for their children to develop autonomy and independence for activities of the daily life, causing them to be overloaded while caregivers. Thus, the focus of the action research was to discuss concrete activities that could generate autonomy, considering the limits and possibilities of the children and questions related to the subjective experiences of the mothers, taking as a trigger the Inventory of Independent Living Skills. It was found that the reflection on the daily activities of the children, on ways of stimulation for greater independence and on strategies that could be used for the child to develop certain behavior, besides reducing the overload, is a life project for mothers.El artículo tiene como objetivo relatar la investigación acción realizada con grupos de madres de personas con discapacidad intelectual, buscando contribuir a la mejora en la calidad de vida y en la resignificación de sus proyectos de vida. La investigación acción se realizó con dos grupos, siendo que en uno de ellos se realizaron 24 encuentros durante ocho meses, y en el otro, se realizaron 12 encuentros durante cuatro meses. Se realizó el registro de todos los encuentros, a través de observaciones sistemáticas y realizando análisis de contenido y de los principales fenómenos grupales, además de evaluaciones de la percepción de cambio post finalización de la experiencia. En el inicio de la investigación , se observó resistencia por parte de las madres en relación al tema proyecto de vida como consecuencia de dificultades poco trabajadas en relación a la capacidad de sus hijos.Es decir, se observó que las madres ofrecían pocas posibilidades para que sus hijos desarrollaran autonomía e independencia para actividades de la vida diaria , causando sobrecarga a las mismas, como cuidadoras. Así, el foco de la investigación acción fue discutir sobre actividades concretas que pudieran generar autonomía, considerando los límites y posibilidades de los hijos y cuestiones relacionadas a las vivencias subjetivas de las madres, teniendo como desencadenante el Inventario de Habilidades de Vida Independiente. Se encontró que la reflexión sobre las actividades diarias de los niños, sobre las formas de estimulación para una mayor independencia y sobre las estrategias que podrían usarse para que el niño desarrolle cierto comportamiento, además de reducir la sobrecarga, constituye un proyecto de vida para las madres.O artigo tem por objetivo relatar investigação-ação realizada com grupos de mães de pessoas com deficiência intelectual, visando contribuir para a melhoria na qualidade de vida e na ressignificação de seus projetos de vida. A investigação-ação foi realizada com dois grupos, sendo que em um deles realizou-se 24 encontros durante oito meses, e, no outro, foram realizados 12 encontros durante quatro meses. Foram registrados todos os encontros, através de observações sistemáticas, e realizada a análise de conteúdo e dos principais fenômenos grupais, além de avaliação da percepção de mudança após finalização da experiência. No início da pesquisa, observou-se resistência por parte das mães em relação ao tema projeto de vida como consequência de dificuldades pouco trabalhadas em relação à capacidade de seus filhos. Isto é, observou-se que as mães ofereciam poucas possibilidades de seus filhos desenvolverem autonomia e independência para atividades da vida diária, causando sobrecarga às mesmas, enquanto cuidadoras. Assim, o foco da investigação-ação foi discutir sobre atividades concretas que pudessem gerar autonomia, considerando os limites e as possibilidades dos filhos e questões relacionadas às vivências subjetivas das mães, tendo como disparador o Inventário de Habilidades de Vida Independente. Verificou-se que a reflexão sobre atividades diárias dos filhos, sobre formas de estimulação para maior independência e sobre estratégias que poderiam ser utilizadas para o filho desenvolver determinado comportamento, além de reduzir a sobrecarga, constitui-se em um projeto de vida para as mães.Universidade Federal de Santa Maria2020-07-08info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdftext/htmlhttp://periodicos.ufsm.br/educacaoespecial/article/view/4037310.5902/1984686X40373Special Education Magazine; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e19/ 1-21Revista de Educación Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e19/ 1-21Revista Educação Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e19/ 1-211984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/40373/pdfhttp://periodicos.ufsm.br/educacaoespecial/article/view/40373/htmlCopyright (c) 2020 Revista Educação Especialinfo:eu-repo/semantics/openAccessFonseca, Sarah CecílioCarvalho-Freitas, Maria Nivalda deAlves, Beatriz André2020-12-21T22:14:15Zoai:ojs.pkp.sfu.ca:article/40373Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2020-12-21T22:14:15Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
Action Research with mothers of people with intellectual disabilities: reducing overload as a life project Investigación Acción con madres de personas con discapacidad intelectual: reducir la sobrecarga como proyecto de vida Investigação-ação com mães de pessoas com deficiência intelectual: a redução da sobrecarga como um projeto de vida |
title |
Action Research with mothers of people with intellectual disabilities: reducing overload as a life project |
spellingShingle |
Action Research with mothers of people with intellectual disabilities: reducing overload as a life project Fonseca, Sarah Cecílio Intellectual disabilities overlaod life project. Discapacidad intelectual sobrecarga proyecto de vida. Deficiência intelectual sobrecarga projeto de vida. |
title_short |
Action Research with mothers of people with intellectual disabilities: reducing overload as a life project |
title_full |
Action Research with mothers of people with intellectual disabilities: reducing overload as a life project |
title_fullStr |
Action Research with mothers of people with intellectual disabilities: reducing overload as a life project |
title_full_unstemmed |
Action Research with mothers of people with intellectual disabilities: reducing overload as a life project |
title_sort |
Action Research with mothers of people with intellectual disabilities: reducing overload as a life project |
author |
Fonseca, Sarah Cecílio |
author_facet |
Fonseca, Sarah Cecílio Carvalho-Freitas, Maria Nivalda de Alves, Beatriz André |
author_role |
author |
author2 |
Carvalho-Freitas, Maria Nivalda de Alves, Beatriz André |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Fonseca, Sarah Cecílio Carvalho-Freitas, Maria Nivalda de Alves, Beatriz André |
dc.subject.por.fl_str_mv |
Intellectual disabilities overlaod life project. Discapacidad intelectual sobrecarga proyecto de vida. Deficiência intelectual sobrecarga projeto de vida. |
topic |
Intellectual disabilities overlaod life project. Discapacidad intelectual sobrecarga proyecto de vida. Deficiência intelectual sobrecarga projeto de vida. |
description |
The article aims to report action research conducted with groups of mothers of people with intellectual disabilities, aiming to contribute to the improvement in the quality of life and the re - signification of their life projects. The action research was fulfilled with two groups, and in one of them 24 meetings were held during eight months, and in the other, 12 meetings were held during four months. All the meetings were recorded through systematic observations. An analysis of content and main group phenomena, as well as evaluation of perception of change, after completion of the experiment was also developed. At the beginning of the research, there was resistance on the part of the mothers in relation to the project of life as a consequence of little some difficulties in relation to the capacity their children.That is, it was observed that the mothers offered little possibilities for their children to develop autonomy and independence for activities of the daily life, causing them to be overloaded while caregivers. Thus, the focus of the action research was to discuss concrete activities that could generate autonomy, considering the limits and possibilities of the children and questions related to the subjective experiences of the mothers, taking as a trigger the Inventory of Independent Living Skills. It was found that the reflection on the daily activities of the children, on ways of stimulation for greater independence and on strategies that could be used for the child to develop certain behavior, besides reducing the overload, is a life project for mothers. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-07-08 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/40373 10.5902/1984686X40373 |
url |
http://periodicos.ufsm.br/educacaoespecial/article/view/40373 |
identifier_str_mv |
10.5902/1984686X40373 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/40373/pdf http://periodicos.ufsm.br/educacaoespecial/article/view/40373/html |
dc.rights.driver.fl_str_mv |
Copyright (c) 2020 Revista Educação Especial info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2020 Revista Educação Especial |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf text/html |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
dc.source.none.fl_str_mv |
Special Education Magazine; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e19/ 1-21 Revista de Educación Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e19/ 1-21 Revista Educação Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e19/ 1-21 1984-686X reponame:Revista Educação Especial (UFSM) instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
instname_str |
Universidade Federal de Santa Maria (UFSM) |
instacron_str |
UFSM |
institution |
UFSM |
reponame_str |
Revista Educação Especial (UFSM) |
collection |
Revista Educação Especial (UFSM) |
repository.name.fl_str_mv |
Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM) |
repository.mail.fl_str_mv |
educacaoespecial@smail.ufsm.br||clenioberni@gmail.com |
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1788536242388860928 |