Analysis and correlation of social support and of parental satisfaction of families of children with Down syndrome

Detalhes bibliográficos
Autor(a) principal: Montes, Kananda Fernanda
Data de Publicação: 2023
Outros Autores: Cia, Fabiana, Spinazola, Cariza de Cássia
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Educação Especial (UFSM)
Texto Completo: http://periodicos.ufsm.br/educacaoespecial/article/view/67399
Resumo: The family is the child's first social environment and a basis for his development. Families of children with disabilities have necessaries arising from the demands and characteristics of the disability itself. Knowing these families makes it possible to create programs to help them. Thus, the objectives of the research were: (a) to identify and analyze parental satisfaction and social support for families of children with Down syndrome and (b) to report parental satisfaction and social support with the sociodemographic data of the families. Fifteen guardians of children with Down syndrome participated in the research The questionnaires used were: Questionnaire Criterion Brazil, Questionnaire of social support and Questionnaire of parental satisfaction. The data captured was quantitative. To correlate the variables, Spearman's correlation test was used. The results indicated that parents were happy to be with their disabled child, since the items that obtained the highest parental satisfaction averages were related to the situations that valued these moments. Regarding social support, a supportive person most mentioned was the spouse. Regarding the correlation between variables, the age of the participants presented a positive correlation with the degree of satisfaction in being a father and mother and with the social support induced in moments that needed emotional help. Some items on the Social Support scale were also positively correlated with items on the Parental Satisfaction Scale. It is concluded that, as parents get older, social support and parental satisfaction increase and that these variables are correlated with each other.
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spelling Analysis and correlation of social support and of parental satisfaction of families of children with Down syndromeAnálisis y correlación del apoyo social y la satisfacción de los padres de niños com síndrome de DownAnálise e correlação do suporte social e da satisfação parental de famílias de crianças com síndrome de DownfamiliaSindrome de Down2-Educação EspecialFamilySpecial EducationDown’s syndrome.Educación Especial Síndrome de DownThe family is the child's first social environment and a basis for his development. Families of children with disabilities have necessaries arising from the demands and characteristics of the disability itself. Knowing these families makes it possible to create programs to help them. Thus, the objectives of the research were: (a) to identify and analyze parental satisfaction and social support for families of children with Down syndrome and (b) to report parental satisfaction and social support with the sociodemographic data of the families. Fifteen guardians of children with Down syndrome participated in the research The questionnaires used were: Questionnaire Criterion Brazil, Questionnaire of social support and Questionnaire of parental satisfaction. The data captured was quantitative. To correlate the variables, Spearman's correlation test was used. The results indicated that parents were happy to be with their disabled child, since the items that obtained the highest parental satisfaction averages were related to the situations that valued these moments. Regarding social support, a supportive person most mentioned was the spouse. Regarding the correlation between variables, the age of the participants presented a positive correlation with the degree of satisfaction in being a father and mother and with the social support induced in moments that needed emotional help. Some items on the Social Support scale were also positively correlated with items on the Parental Satisfaction Scale. It is concluded that, as parents get older, social support and parental satisfaction increase and that these variables are correlated with each other.La familia es el primer entorno social del niño y la base de su desarrollo. Las familias de niños con discapacidad tienen necesidades específicas, derivadas de las características de la propia discapacidad. Conocer a estas familias permite crear programas para ayudarlas. Los objetivos fueron: (a) identificar y analizar la satisfacción parental y el apoyo social de las familias de niños con síndrome de Down y (b) relacionar la satisfacción parental y el apoyo social con los datos sociodemográficos de las familias. Quince tutores de niños con  síndrome de Down participaron en la investigación. Las medidas evaluativas fueron los cuestionarios: Criterio Brasil, apoyo social y satisfacción de los padres. Los datos obtenidos fueron cuantitativos. Para correlacionar las variables se utilizó la prueba de correlación de Spearman. Los resultados indicaron que los padres estaban felices de estar con su hijo discapacitado, ya que los ítems que obtuvieron los mayores promedios de satisfacción estaban relacionados con las situaciones que valoraban estos momentos. En cuanto al apoyo social, la persona solidaria más mencionada fue el cónyuge. Acerca de la correlación entre variables, la edad de los participantes mostró una correlación positiva con el grado de satisfacción por ser padre y madre y con el apoyo social recibido en momentos que requirieron ayuda emocional. Algunos elementos también se correlacionaron positivamente con los elementos de la escala de satisfacción de los padres. Se concluye que, a medida que los padres envejecen, aumenta el apoyo social y la satisfacción de los padres y que estas variables se correlacionan.  A família é o primeiro ambiente social da criança e a base para seu desenvolvimento. Famílias de crianças com deficiência possuem necessidades específicas, advindas das demandas e das próprias características da deficiência em si. Conhecer essas famílias possibilita criar programas para auxiliá-las. Dessa forma, os objetivos da pesquisa foram: (a) identificar e analisar a satisfação parental e o suporte social de famílias de crianças com síndrome de Down e (b) relacionar a satisfação parental e o suporte social com os dados sociodemográficos das famílias. Participaram da pesquisa 15 responsáveis de crianças com síndrome de Down. As medidas avaliativas foram: Questionário Critério Brasil, Questionário de suporte social e Questionário de satisfação parental. Os dados obtidos foram quantitativos. Para correlacionar as variáveis foi utilizado o teste de correlação de Spearman. Os resultados indicaram que os pais sentiam prazer em ficar com o filho com deficiência, visto que os itens que obtiveram maiores médias de satisfação parental estavam relacionados às situações que valorizavam esses momentos. Com relação ao suporte social, a pessoa suportiva mais mencionada foi o/a cônjuge. Sobre a correlação entre variáveis, a idade dos participantes apresentou correlação positiva com o grau de satisfação em ser pai/mãe e com o suporte social recebido em momentos que necessitavam de ajuda emocional. Alguns itens da escala de Suporte Social também estavam positivamente correlacionados com itens da Escala de Satisfação Parental. Conclui-se que, conforme os pais ficam mais velhos aumenta o suporte social e sua satisfação parental e que tais variáveis estão correlacionadas entre si.Universidade Federal de Santa Maria2023-05-23info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdftext/htmlhttp://periodicos.ufsm.br/educacaoespecial/article/view/6739910.5902/1984686X67399Special Education Magazine; Vol. 36 No. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e29/1-25Revista de Educación Especial; Vol. 36 Núm. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e29/1-25Revista Educação Especial; v. 36 n. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e29/1-251984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/67399/60834http://periodicos.ufsm.br/educacaoespecial/article/view/67399/60838Copyright (c) 2023 Revista Educação Especialhttps://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessMontes, Kananda FernandaCia, FabianaSpinazola, Cariza de Cássia2023-07-13T18:37:29Zoai:ojs.pkp.sfu.ca:article/67399Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2023-07-13T18:37:29Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false
dc.title.none.fl_str_mv Analysis and correlation of social support and of parental satisfaction of families of children with Down syndrome
Análisis y correlación del apoyo social y la satisfacción de los padres de niños com síndrome de Down
Análise e correlação do suporte social e da satisfação parental de famílias de crianças com síndrome de Down
title Analysis and correlation of social support and of parental satisfaction of families of children with Down syndrome
spellingShingle Analysis and correlation of social support and of parental satisfaction of families of children with Down syndrome
Montes, Kananda Fernanda
familia
Sindrome de Down
2-Educação Especial
Family
Special Education
Down’s syndrome.
Educación Especial
Síndrome de Down
title_short Analysis and correlation of social support and of parental satisfaction of families of children with Down syndrome
title_full Analysis and correlation of social support and of parental satisfaction of families of children with Down syndrome
title_fullStr Analysis and correlation of social support and of parental satisfaction of families of children with Down syndrome
title_full_unstemmed Analysis and correlation of social support and of parental satisfaction of families of children with Down syndrome
title_sort Analysis and correlation of social support and of parental satisfaction of families of children with Down syndrome
author Montes, Kananda Fernanda
author_facet Montes, Kananda Fernanda
Cia, Fabiana
Spinazola, Cariza de Cássia
author_role author
author2 Cia, Fabiana
Spinazola, Cariza de Cássia
author2_role author
author
dc.contributor.author.fl_str_mv Montes, Kananda Fernanda
Cia, Fabiana
Spinazola, Cariza de Cássia
dc.subject.por.fl_str_mv familia
Sindrome de Down
2-Educação Especial
Family
Special Education
Down’s syndrome.
Educación Especial
Síndrome de Down
topic familia
Sindrome de Down
2-Educação Especial
Family
Special Education
Down’s syndrome.
Educación Especial
Síndrome de Down
description The family is the child's first social environment and a basis for his development. Families of children with disabilities have necessaries arising from the demands and characteristics of the disability itself. Knowing these families makes it possible to create programs to help them. Thus, the objectives of the research were: (a) to identify and analyze parental satisfaction and social support for families of children with Down syndrome and (b) to report parental satisfaction and social support with the sociodemographic data of the families. Fifteen guardians of children with Down syndrome participated in the research The questionnaires used were: Questionnaire Criterion Brazil, Questionnaire of social support and Questionnaire of parental satisfaction. The data captured was quantitative. To correlate the variables, Spearman's correlation test was used. The results indicated that parents were happy to be with their disabled child, since the items that obtained the highest parental satisfaction averages were related to the situations that valued these moments. Regarding social support, a supportive person most mentioned was the spouse. Regarding the correlation between variables, the age of the participants presented a positive correlation with the degree of satisfaction in being a father and mother and with the social support induced in moments that needed emotional help. Some items on the Social Support scale were also positively correlated with items on the Parental Satisfaction Scale. It is concluded that, as parents get older, social support and parental satisfaction increase and that these variables are correlated with each other.
publishDate 2023
dc.date.none.fl_str_mv 2023-05-23
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://periodicos.ufsm.br/educacaoespecial/article/view/67399
10.5902/1984686X67399
url http://periodicos.ufsm.br/educacaoespecial/article/view/67399
identifier_str_mv 10.5902/1984686X67399
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv http://periodicos.ufsm.br/educacaoespecial/article/view/67399/60834
http://periodicos.ufsm.br/educacaoespecial/article/view/67399/60838
dc.rights.driver.fl_str_mv Copyright (c) 2023 Revista Educação Especial
https://creativecommons.org/licenses/by-nc/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2023 Revista Educação Especial
https://creativecommons.org/licenses/by-nc/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
text/html
dc.publisher.none.fl_str_mv Universidade Federal de Santa Maria
publisher.none.fl_str_mv Universidade Federal de Santa Maria
dc.source.none.fl_str_mv Special Education Magazine; Vol. 36 No. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e29/1-25
Revista de Educación Especial; Vol. 36 Núm. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e29/1-25
Revista Educação Especial; v. 36 n. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e29/1-25
1984-686X
reponame:Revista Educação Especial (UFSM)
instname:Universidade Federal de Santa Maria (UFSM)
instacron:UFSM
instname_str Universidade Federal de Santa Maria (UFSM)
instacron_str UFSM
institution UFSM
reponame_str Revista Educação Especial (UFSM)
collection Revista Educação Especial (UFSM)
repository.name.fl_str_mv Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)
repository.mail.fl_str_mv educacaoespecial@smail.ufsm.br||clenioberni@gmail.com
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