Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences:
Autor(a) principal: | |
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Data de Publicação: | 2024 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Educação Especial (UFSM) |
Texto Completo: | http://periodicos.ufsm.br/educacaoespecial/article/view/84906 |
Resumo: | This article has set out to thoroughly investigate family dynamics, with a particular focus on the analysis of the central events that permeate the daily routine of children diagnosed with Autism Spectrum Disorder (ASD) during morning, afternoon, and evening periods. To achieve this goal, a qualitative descriptive approach was employed, utilizing primary data in a cross-sectional design, categorized as a case study. Mothers of children up to the age of ten, who were receiving care at a Psychosocial Care Center in Campo Grande, Mato Grosso do Sul, were interviewed in the year 2021. The results, analyzed through Thematic Content Analysis, unveiled the complex situations faced by mothers who undertake the role of caregivers for children with ASD. The interview narratives emphasized intense routines, involving therapies, dietary issues, and the inherent challenges of ASD. It is crucial to highlight the notable lack of support from public policies, aggravated by the difficulties exacerbated by the pandemic. The necessity for multidisciplinary assistance, particularly in the psychological realm, emerged as imperative, while the resilience of mothers in adapting strategies to confront adversities was acknowledged. The concluding remarks underscore the crucial importance of multidisciplinary support and robust support networks. The study emphasizes the urgency of a compassionate and holistic approach, grounded in effective public policies and accessible services, aimed at promoting the well-being of families in the challenging context of ASD. |
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Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences: Explorando la dinámica familiar de niños con Trastorno del Espectro Autista: un análisis de los eventos cotidianos y las experiencias maternas: Explorando a dinâmica familiar de crianças com Transtorno do Espectro do Autismo: uma análise dos eventos cotidianos e experiências maternas: Transtorno do Espectro AutistaRelações familiaresPráticas interdisciplinaresAutism Spectrum DisorderFamily relationsInterdisciplinary placementTrastorno del Espectro AutistaRelaciones familiaresPrácticas interdisciplinariasThis article has set out to thoroughly investigate family dynamics, with a particular focus on the analysis of the central events that permeate the daily routine of children diagnosed with Autism Spectrum Disorder (ASD) during morning, afternoon, and evening periods. To achieve this goal, a qualitative descriptive approach was employed, utilizing primary data in a cross-sectional design, categorized as a case study. Mothers of children up to the age of ten, who were receiving care at a Psychosocial Care Center in Campo Grande, Mato Grosso do Sul, were interviewed in the year 2021. The results, analyzed through Thematic Content Analysis, unveiled the complex situations faced by mothers who undertake the role of caregivers for children with ASD. The interview narratives emphasized intense routines, involving therapies, dietary issues, and the inherent challenges of ASD. It is crucial to highlight the notable lack of support from public policies, aggravated by the difficulties exacerbated by the pandemic. The necessity for multidisciplinary assistance, particularly in the psychological realm, emerged as imperative, while the resilience of mothers in adapting strategies to confront adversities was acknowledged. The concluding remarks underscore the crucial importance of multidisciplinary support and robust support networks. The study emphasizes the urgency of a compassionate and holistic approach, grounded in effective public policies and accessible services, aimed at promoting the well-being of families in the challenging context of ASD. Este artículo se propuso investigar de manera minuciosa la dinámica familiar, con un enfoque especial en el análisis de los acontecimientos centrales que impregnan la rutina diaria de los niños diagnosticados con Trastorno del Espectro Autista (TEA) en los períodos matutino, vespertino y nocturno. Para alcanzar este objetivo, se empleó un enfoque cualitativo de naturaleza descriptiva, utilizando datos primarios en un diseño transversal, categorizado como un estudio de caso en el cual se entrevistaron a madres de niños de hasta diez años, atendidos en un Centro de Atención Psicosocial en Campo Grande, Mato Grosso do Sul, en el año 2021. Los resultados, analizados a través del Análisis de Contenido Temático, revelaron las complejas situaciones enfrentadas por las madres que desempeñan el papel de cuidadoras de niños con TEA. Las narrativas de las entrevistas destacaron rutinas intensas que involucraban terapias, cuestiones alimentarias y los desafíos inherentes al TEA. Es importante resaltar la notable falta de apoyo proveniente de las políticas públicas, agravada por las dificultades exacerbadas por la pandemia. La necesidad de asistencia multidisciplinaria, especialmente en el ámbito psicológico, emergió como un imperativo, mientras que se reconoció la resiliencia de las madres para adaptar estrategias y enfrentar las adversidades. Las consideraciones finales resaltan la importancia crucial de un apoyo multidisciplinario y redes de apoyo robustas. El estudio enfatiza la urgencia de un enfoque compasivo y holístico, basado en políticas públicas efectivas y servicios accesibles, con el objetivo de promover el bienestar de las familias en el desafiante contexto del TEA.Este artigo se propôs a investigar de maneira minuciosa a dinâmica familiar, com foco especial na análise dos acontecimentos centrais que permeiam a rotina diária de crianças diagnosticadas com Transtorno do Espectro do Autismo (TEA) nos períodos matutino, vespertino e noturno. Para atingir esse objetivo, foi empregada uma abordagem qualitativa de natureza descritiva, utilizando dados primários em um delineamento transversal, sendo categorizada como um estudo de caso, no qual mães de crianças com até dez anos, atendidas em um Centro de Atenção Psicossocial em Campo Grande, Mato Grosso do Sul, foram entrevistadas no ano de 2021. Os resultados, analisados por meio da Análise de Conteúdo Temática, revelaram as complexas situações enfrentadas pelas mães que desempenham o papel de cuidadoras de crianças com TEA. As narrativas das entrevistas destacaram rotinas intensas, que envolviam terapias, questões alimentares e os desafios inerentes ao TEA. É importante ressaltar a notável falta de suporte proveniente das políticas públicas, agravada pelas dificuldades exacerbadas pela pandemia. A necessidade de assistência multidisciplinar, especialmente no âmbito psicológico, emergiu como um imperativo, enquanto a resiliência das mães em adaptar estratégias para enfrentar as adversidades foi reconhecida. As considerações finais destacam a crucial importância de um apoio multidisciplinar e redes de apoio robustas. O estudo enfatiza a urgência de uma abordagem compassiva e holística, alicerçada em políticas públicas eficazes e serviços acessíveis, visando promover o bem-estar das famílias no contexto desafiador do TEA.Universidade Federal de Santa Maria2024-01-16info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdftext/htmlhttp://periodicos.ufsm.br/educacaoespecial/article/view/8490610.5902/1984686X84906Special Education Magazine; v. 37 n. 1 (2024): Revista Educação Especial – Publicação Contínua; e4/1-29Revista de Educación Especial; v. 37 n. 1 (2024): Revista Educação Especial – Publicação Contínua; e4/1-29Revista Educação Especial; v. 37 n. 1 (2024): Revista Educação Especial – Publicação Contínua; e4/1-291984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/84906/63070http://periodicos.ufsm.br/educacaoespecial/article/view/84906/63071Copyright (c) 2024 Revista Educação Especialhttps://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessSaad, Amanda Pereira RissoBastos, Paulo Roberto Haidamus de Oliveira2024-02-20T16:04:08Zoai:ojs.pkp.sfu.ca:article/84906Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2024-02-20T16:04:08Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences: Explorando la dinámica familiar de niños con Trastorno del Espectro Autista: un análisis de los eventos cotidianos y las experiencias maternas: Explorando a dinâmica familiar de crianças com Transtorno do Espectro do Autismo: uma análise dos eventos cotidianos e experiências maternas: |
title |
Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences: |
spellingShingle |
Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences: Saad, Amanda Pereira Risso Transtorno do Espectro Autista Relações familiares Práticas interdisciplinares Autism Spectrum Disorder Family relations Interdisciplinary placement Trastorno del Espectro Autista Relaciones familiares Prácticas interdisciplinarias |
title_short |
Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences: |
title_full |
Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences: |
title_fullStr |
Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences: |
title_full_unstemmed |
Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences: |
title_sort |
Exploring the family dynamics of children with Autism Spectrum Disorder: an analysis of daily events and maternal experiences: |
author |
Saad, Amanda Pereira Risso |
author_facet |
Saad, Amanda Pereira Risso Bastos, Paulo Roberto Haidamus de Oliveira |
author_role |
author |
author2 |
Bastos, Paulo Roberto Haidamus de Oliveira |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Saad, Amanda Pereira Risso Bastos, Paulo Roberto Haidamus de Oliveira |
dc.subject.por.fl_str_mv |
Transtorno do Espectro Autista Relações familiares Práticas interdisciplinares Autism Spectrum Disorder Family relations Interdisciplinary placement Trastorno del Espectro Autista Relaciones familiares Prácticas interdisciplinarias |
topic |
Transtorno do Espectro Autista Relações familiares Práticas interdisciplinares Autism Spectrum Disorder Family relations Interdisciplinary placement Trastorno del Espectro Autista Relaciones familiares Prácticas interdisciplinarias |
description |
This article has set out to thoroughly investigate family dynamics, with a particular focus on the analysis of the central events that permeate the daily routine of children diagnosed with Autism Spectrum Disorder (ASD) during morning, afternoon, and evening periods. To achieve this goal, a qualitative descriptive approach was employed, utilizing primary data in a cross-sectional design, categorized as a case study. Mothers of children up to the age of ten, who were receiving care at a Psychosocial Care Center in Campo Grande, Mato Grosso do Sul, were interviewed in the year 2021. The results, analyzed through Thematic Content Analysis, unveiled the complex situations faced by mothers who undertake the role of caregivers for children with ASD. The interview narratives emphasized intense routines, involving therapies, dietary issues, and the inherent challenges of ASD. It is crucial to highlight the notable lack of support from public policies, aggravated by the difficulties exacerbated by the pandemic. The necessity for multidisciplinary assistance, particularly in the psychological realm, emerged as imperative, while the resilience of mothers in adapting strategies to confront adversities was acknowledged. The concluding remarks underscore the crucial importance of multidisciplinary support and robust support networks. The study emphasizes the urgency of a compassionate and holistic approach, grounded in effective public policies and accessible services, aimed at promoting the well-being of families in the challenging context of ASD. |
publishDate |
2024 |
dc.date.none.fl_str_mv |
2024-01-16 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/84906 10.5902/1984686X84906 |
url |
http://periodicos.ufsm.br/educacaoespecial/article/view/84906 |
identifier_str_mv |
10.5902/1984686X84906 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/84906/63070 http://periodicos.ufsm.br/educacaoespecial/article/view/84906/63071 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2024 Revista Educação Especial https://creativecommons.org/licenses/by-nc/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2024 Revista Educação Especial https://creativecommons.org/licenses/by-nc/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf text/html |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
dc.source.none.fl_str_mv |
Special Education Magazine; v. 37 n. 1 (2024): Revista Educação Especial – Publicação Contínua; e4/1-29 Revista de Educación Especial; v. 37 n. 1 (2024): Revista Educação Especial – Publicação Contínua; e4/1-29 Revista Educação Especial; v. 37 n. 1 (2024): Revista Educação Especial – Publicação Contínua; e4/1-29 1984-686X reponame:Revista Educação Especial (UFSM) instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
instname_str |
Universidade Federal de Santa Maria (UFSM) |
instacron_str |
UFSM |
institution |
UFSM |
reponame_str |
Revista Educação Especial (UFSM) |
collection |
Revista Educação Especial (UFSM) |
repository.name.fl_str_mv |
Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM) |
repository.mail.fl_str_mv |
educacaoespecial@smail.ufsm.br||clenioberni@gmail.com |
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1799944197625610240 |