Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e prática
Autor(a) principal: | |
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Data de Publicação: | 2016 |
Tipo de documento: | Dissertação |
Idioma: | por |
Título da fonte: | Manancial - Repositório Digital da UFSM |
dARK ID: | ark:/26339/0013000010wnn |
Texto Completo: | http://repositorio.ufsm.br/handle/1/7471 |
Resumo: | Disclosure of the diagnosis of infection with Human Immunodeficiency Virus (HIV) is configured with a gradual, continuous and progressive process that enables the confirmation of the diagnosis for children and adolescents, who lived until then under the silence. However, there are barriers, as the reluctance of family, and sometimes unpreparedness of health professionals for conducting this process. This study have as aim: lead to collective construction of a disclosure process of HIV diagnosis in the Infectious Diseases Clinic Pediatric. This is a Convergent Care Research (PCA) conducted at the University Hospital of Santa Maria (HUSM) with health professionals working in the specialized service for production data was used three data collection techniques: participant observation, individual interviews and convergence groups. Ethical principles were respected, according to the Resolution 466 / 2012 of the National Health Council. The results of participant observation is that the revelation of the diagnosis occurs at the Infectious Diseases Clinic Pediatric of HUSM, however there is no monitoring of this process. The individuas interviews, allowed understand the meaning of the revelation of the HIV diagnosis, triggers for disclosure of HIV diagnosis, the actors responsible for disclosing the diagnosis of HIV, which strategies to use for disclosing the diagnosis of HIV and limits and possibilities found by health professionals on disclosure of HIV diagnosis. The convergence of group allowed the construction of the action plan to monitor the development process of HIV diagnosis for children and adolescents in a specialized service. On the action plan there are child identification or adolescent and family / caregiver and information about disclosing the diagnosis of HIV and Six Steps to follow this process. 1st step: questions and curiosities that lead to disclosure of HIV diagnosis; Step 2: age revelation of the HIV diagnosis , Step 3: reasons that lead to disclosure of HIV diagnosis , Step 4: actors involved in the development of HIV diagnosis , Step 5 : Include the family in the development of HIV diagnosis , 6th step : developing strategies for the diagnosis of HIV . It is concluded that reveal the diagnosis is a complex task, but possible and necessary, especially rights of children and adolescents living with HIV. Therefore, it is essential the monitoring, from the preparation to reveal until repercussions as responsibility among multidisciplinary team and family. With the elaboration of the action plan, health professionals will be are able to perform and support the family / caregivers in the process revealing the diagnosis of HIV and therefore benefit children and adolescents in treatment adherence and self care. |
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Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e práticaProcess hiv diagnosis of disclosures for adolescents and children: convergence between theory and practiceHIVSaúde da criançaSaúde do adolescenteRevelação da verdadeChild healthAdolescent healthTruth disclosureCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMDisclosure of the diagnosis of infection with Human Immunodeficiency Virus (HIV) is configured with a gradual, continuous and progressive process that enables the confirmation of the diagnosis for children and adolescents, who lived until then under the silence. However, there are barriers, as the reluctance of family, and sometimes unpreparedness of health professionals for conducting this process. This study have as aim: lead to collective construction of a disclosure process of HIV diagnosis in the Infectious Diseases Clinic Pediatric. This is a Convergent Care Research (PCA) conducted at the University Hospital of Santa Maria (HUSM) with health professionals working in the specialized service for production data was used three data collection techniques: participant observation, individual interviews and convergence groups. Ethical principles were respected, according to the Resolution 466 / 2012 of the National Health Council. The results of participant observation is that the revelation of the diagnosis occurs at the Infectious Diseases Clinic Pediatric of HUSM, however there is no monitoring of this process. The individuas interviews, allowed understand the meaning of the revelation of the HIV diagnosis, triggers for disclosure of HIV diagnosis, the actors responsible for disclosing the diagnosis of HIV, which strategies to use for disclosing the diagnosis of HIV and limits and possibilities found by health professionals on disclosure of HIV diagnosis. The convergence of group allowed the construction of the action plan to monitor the development process of HIV diagnosis for children and adolescents in a specialized service. On the action plan there are child identification or adolescent and family / caregiver and information about disclosing the diagnosis of HIV and Six Steps to follow this process. 1st step: questions and curiosities that lead to disclosure of HIV diagnosis; Step 2: age revelation of the HIV diagnosis , Step 3: reasons that lead to disclosure of HIV diagnosis , Step 4: actors involved in the development of HIV diagnosis , Step 5 : Include the family in the development of HIV diagnosis , 6th step : developing strategies for the diagnosis of HIV . It is concluded that reveal the diagnosis is a complex task, but possible and necessary, especially rights of children and adolescents living with HIV. Therefore, it is essential the monitoring, from the preparation to reveal until repercussions as responsibility among multidisciplinary team and family. With the elaboration of the action plan, health professionals will be are able to perform and support the family / caregivers in the process revealing the diagnosis of HIV and therefore benefit children and adolescents in treatment adherence and self care.Coordenação de Aperfeiçoamento de Pessoal de Nível SuperiorA revelação do diagnóstico de infecção pelo vírus da imunodeficiência humana (HIV) configura-se como um processo gradual, contínuo e progressivo que possibilita a descoberta/confirmação do diagnóstico pela criança ou pelo adolescente, os quais viviam, até então, sob o pacto do silêncio. No entanto, encontram-se barreiras como a relutância dos familiares e, por vezes, despreparo dos profissionais da saúde para a condução deste processo. Este estudo tem como objetivo: Conduzir a construção coletiva de um processo de revelação do diagnóstico de HIV no Ambulatório de Doenças Infecciosas Pediátricas. Trata-se de uma Pesquisa Convergente Assistencial (PCA) realizado no Hospital Universitário de Santa Maria (HUSM) com os profissionais de saúde que atuam no serviço especializado Para produção de dados, foi utilizado três técnicas de coleta de dados: observação participante, entrevista individual e grupos de convergência. Os princípios éticos foram respeitados, segundo a Resolução nº466/2012 do Conselho Nacional de Saúde. Como resultados das observações participantes tem-se que a revelação do diagnóstico acontece no Ambulatório de Doenças Infecciosas Pediátricas do HUSM, no entanto não há um acompanhamento desse processo. Quanto as entrevista individuas, estas permitiram compreender o significado da revelação do diagnóstico de HIV, os disparadores para revelação do diagnóstico de HIV, os atores responsáveis pela revelação do diagnóstico de HIV, quais estratégias utilizar para revelação do diagnóstico de HIV e limites e possibilidades encontradas pelos profissionais da saúde sobre revelação do diagnóstico de HIV. Os grupos de convergência possibilitaram a construção do plano de ação para acompanhamento do processo de revelação do diagnóstico de HIV para criança e adolescente em serviço especializado. O plano de ação conta dados de identificação da criança ou adolescente e familiar/cuidador, informações acerca da revelação do diagnóstico de HIV e seis etapas para acompanhamento deste processo. 1º etapa: questionamentos e curiosidades que levam para revelação do diagnóstico de HIV; 2ª etapa: idade para revelação do diagnóstico de HIV, 3ª etapa: motivos que levam a revelação do diagnóstico de HIV, 4ª etapa: atores envolvidos na revelação do diagnóstico de HIV, 5ª etapa: incluir a família na revelação do diagnóstico de HIV, 6ª etapa: estratégias para revelação do diagnóstico de HIV. Desse modo, conclui-se que revelar o diagnóstico representa uma tarefa complexa, mas possível e necessária, especialmente de direito das crianças e adolescentes que vivem com HIV. Para tanto, é imprescindível o acompanhamento desde o preparo para revelar até suas repercussões como corresponsabilidade entre equipe multidisciplinar e família. Com a elaboração do plano de ação, os profissionais da saúde sejam capazes de realizar e apoiar os familiares/cuidadores no processo revelação do diagnóstico de HIV e, consequentemente, beneficiar as crianças e adolescentes na adesão ao tratamento e cuidado de si.Universidade Federal de Santa MariaBREnfermagemUFSMPrograma de Pós-Graduação em EnfermagemPaula, Cristiane Cardoso dehttp://lattes.cnpq.br/8247264269439154Trentini, Mercedeshttp://lattes.cnpq.br/2245975729593681Padoin, Stela Maris de Mellohttp://lattes.cnpq.br/6899455553008245Velho, Maria Teresa Aquino de Camposhttp://lattes.cnpq.br/3242426873145535Zanon, Bruna Pase2016-05-192016-05-192016-02-16info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisapplication/pdfapplication/pdfZANON, Bruna Pase. PROCESS HIV DIAGNOSIS OF DISCLOSURES FOR ADOLESCENTS AND CHILDREN: CONVERGENCE BETWEEN THEORY AND PRACTICE. 2016. 116 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Maria, Santa Maria, 2016.http://repositorio.ufsm.br/handle/1/7471ark:/26339/0013000010wnnporinfo:eu-repo/semantics/openAccessreponame:Manancial - Repositório Digital da UFSMinstname:Universidade Federal de Santa Maria (UFSM)instacron:UFSM2022-03-24T15:41:30Zoai:repositorio.ufsm.br:1/7471Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufsm.br/ONGhttps://repositorio.ufsm.br/oai/requestatendimento.sib@ufsm.br||tedebc@gmail.comopendoar:2022-03-24T15:41:30Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e prática Process hiv diagnosis of disclosures for adolescents and children: convergence between theory and practice |
title |
Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e prática |
spellingShingle |
Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e prática Zanon, Bruna Pase HIV Saúde da criança Saúde do adolescente Revelação da verdade Child health Adolescent health Truth disclosure CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
title_short |
Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e prática |
title_full |
Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e prática |
title_fullStr |
Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e prática |
title_full_unstemmed |
Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e prática |
title_sort |
Processo de revelação do diagnóstico de HIV para crianças e adolescentes: convergência entre teoria e prática |
author |
Zanon, Bruna Pase |
author_facet |
Zanon, Bruna Pase |
author_role |
author |
dc.contributor.none.fl_str_mv |
Paula, Cristiane Cardoso de http://lattes.cnpq.br/8247264269439154 Trentini, Mercedes http://lattes.cnpq.br/2245975729593681 Padoin, Stela Maris de Mello http://lattes.cnpq.br/6899455553008245 Velho, Maria Teresa Aquino de Campos http://lattes.cnpq.br/3242426873145535 |
dc.contributor.author.fl_str_mv |
Zanon, Bruna Pase |
dc.subject.por.fl_str_mv |
HIV Saúde da criança Saúde do adolescente Revelação da verdade Child health Adolescent health Truth disclosure CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
topic |
HIV Saúde da criança Saúde do adolescente Revelação da verdade Child health Adolescent health Truth disclosure CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
description |
Disclosure of the diagnosis of infection with Human Immunodeficiency Virus (HIV) is configured with a gradual, continuous and progressive process that enables the confirmation of the diagnosis for children and adolescents, who lived until then under the silence. However, there are barriers, as the reluctance of family, and sometimes unpreparedness of health professionals for conducting this process. This study have as aim: lead to collective construction of a disclosure process of HIV diagnosis in the Infectious Diseases Clinic Pediatric. This is a Convergent Care Research (PCA) conducted at the University Hospital of Santa Maria (HUSM) with health professionals working in the specialized service for production data was used three data collection techniques: participant observation, individual interviews and convergence groups. Ethical principles were respected, according to the Resolution 466 / 2012 of the National Health Council. The results of participant observation is that the revelation of the diagnosis occurs at the Infectious Diseases Clinic Pediatric of HUSM, however there is no monitoring of this process. The individuas interviews, allowed understand the meaning of the revelation of the HIV diagnosis, triggers for disclosure of HIV diagnosis, the actors responsible for disclosing the diagnosis of HIV, which strategies to use for disclosing the diagnosis of HIV and limits and possibilities found by health professionals on disclosure of HIV diagnosis. The convergence of group allowed the construction of the action plan to monitor the development process of HIV diagnosis for children and adolescents in a specialized service. On the action plan there are child identification or adolescent and family / caregiver and information about disclosing the diagnosis of HIV and Six Steps to follow this process. 1st step: questions and curiosities that lead to disclosure of HIV diagnosis; Step 2: age revelation of the HIV diagnosis , Step 3: reasons that lead to disclosure of HIV diagnosis , Step 4: actors involved in the development of HIV diagnosis , Step 5 : Include the family in the development of HIV diagnosis , 6th step : developing strategies for the diagnosis of HIV . It is concluded that reveal the diagnosis is a complex task, but possible and necessary, especially rights of children and adolescents living with HIV. Therefore, it is essential the monitoring, from the preparation to reveal until repercussions as responsibility among multidisciplinary team and family. With the elaboration of the action plan, health professionals will be are able to perform and support the family / caregivers in the process revealing the diagnosis of HIV and therefore benefit children and adolescents in treatment adherence and self care. |
publishDate |
2016 |
dc.date.none.fl_str_mv |
2016-05-19 2016-05-19 2016-02-16 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/masterThesis |
format |
masterThesis |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
ZANON, Bruna Pase. PROCESS HIV DIAGNOSIS OF DISCLOSURES FOR ADOLESCENTS AND CHILDREN: CONVERGENCE BETWEEN THEORY AND PRACTICE. 2016. 116 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Maria, Santa Maria, 2016. http://repositorio.ufsm.br/handle/1/7471 |
dc.identifier.dark.fl_str_mv |
ark:/26339/0013000010wnn |
identifier_str_mv |
ZANON, Bruna Pase. PROCESS HIV DIAGNOSIS OF DISCLOSURES FOR ADOLESCENTS AND CHILDREN: CONVERGENCE BETWEEN THEORY AND PRACTICE. 2016. 116 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Maria, Santa Maria, 2016. ark:/26339/0013000010wnn |
url |
http://repositorio.ufsm.br/handle/1/7471 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Maria BR Enfermagem UFSM Programa de Pós-Graduação em Enfermagem |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria BR Enfermagem UFSM Programa de Pós-Graduação em Enfermagem |
dc.source.none.fl_str_mv |
reponame:Manancial - Repositório Digital da UFSM instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
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Universidade Federal de Santa Maria (UFSM) |
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UFSM |
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UFSM |
reponame_str |
Manancial - Repositório Digital da UFSM |
collection |
Manancial - Repositório Digital da UFSM |
repository.name.fl_str_mv |
Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM) |
repository.mail.fl_str_mv |
atendimento.sib@ufsm.br||tedebc@gmail.com |
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1815172426798989312 |